posted
I have a colonoscopy on friday having major stomach issues for past three months, alot of blood and mucus, bloating, cant eat , rashes ALOT of pain, nausea. I am not treating lyme right now. Went off probiotic couple months before all this started becuase i couldnt afford it for a while. My doctor thinks I have crohns disease. Im scaerd to death its cancer! Can lyme first off cause all these symp in your gut? And if it does show up at crohns i cant take steroids, so how to I treat it naturally. Do I just start treating the lyme and bart agian and hope that will address my stomach? im a nervous reck, so scared this is something very serious! Im 28 if that makes a difference to anyone, Thank You!
Posts: 229 | From front royal, VA | Registered: Jun 2008
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posted
I have both crohns and Lyme. My physician is not sure what came first......and what excaberated what. Symptoms overlap, etc. Immunosuppresive medications for crohns really set me off and caused a great deal of neurological symptoms. I took imuran, humira, remicade, prednisone, etc. I was taking asacol and I believe it is ok for crohns and Lyme. I do u derstand your above symptoms as I have had them all. They can also be a symptom of bartonella. Good luck.
-------------------- gatorade girl
"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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posted
gatorade girl, have your symptoms improved with treatment at all? Steriods arent an option for me!
Posts: 229 | From front royal, VA | Registered: Jun 2008
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posted
I was diagnosed with ulcerative colitis almost 20 yrs ago. I was fortunate that my gastro sought assistance for my problems and sent me to Johns Hopkins where I was diagnosed with Lyme disease. I sought further treatment from a llmd and after they found and began treating babesia, my intestines returned to normal. My wife has been treating crohns since a year after we met(18 yrs) Since her symptoms were so similar to mine I continued to ask her docs to test her for babesia, to appease me one of her docs finally did and it was positive. Since she started babesia treatment her symptoms have been dramatically improving. I wish you the best Ken
-------------------- "We can easily forgive a child whom is frightened of the dark: the real tragedy is when men are afraid of the light." Plato Posts: 37 | From OuterBanks NC | Registered: Apr 2007
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Thank you for posting that is so interesting! I tested neg for babs but you never know! Im going to ask for a sample to be sent off and tested for borellia and bart and myco I will now add babs to the list! I read an artice from john hopkins that they are finding borellia bacteria in crohns patients.....damn lyme disease! Im so glad you are doing well and your wife is improving, this gives me hope! Morgan
Posts: 229 | From front royal, VA | Registered: Jun 2008
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TICKIN!!!! your in the outerbanks?? Im in beaufort NC by morehead city!!! are there any docs around here you can recommend?
Posts: 229 | From front royal, VA | Registered: Jun 2008
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gwb
Frequent Contributor (1K+ posts)
Member # 7273
posted
quote:Originally posted by Tickn: I was diagnosed with ulcerative colitis almost 20 yrs ago. I was fortunate that my gastro sought assistance for my problems and sent me to Johns Hopkins where I was diagnosed with Lyme disease. I sought further treatment from a llmd and after they found and began treating babesia, my intestines returned to normal. My wife has been treating crohns since a year after we met(18 yrs) Since her symptoms were so similar to mine I continued to ask her docs to test her for babesia, to appease me one of her docs finally did and it was positive. Since she started babesia treatment her symptoms have been dramatically improving. I wish you the best Ken
posted
Believe it or not.....my crohns has gotten better with Lyme and babesia treatment. Things that make you say hmmm!
-------------------- gatorade girl
"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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When I first got sick with my most recent bout with Lyme, after the fever and knee pain .... I had watery diarrhea all the time, 7-10 times per day at least, even in the middle of the night. I had trouble leaving the house and was known to stop somewhere and run in to the bathroom. I was losing a pound a week, yet was eating 4000 calories per day. I weighed 123 pounds (15 pounds lighter than I am now). I was very weak and fatigued.
I went to the GI. He found nothing. He wanted to look at my gallbladder, so I ditched him, I looked up gallbladder symptoms and there was no match whatsoever. Gluten-free helped some, it didn't make the symptoms go away, but gluten sure made me feel worse.
I ended up on a mostly liquid diet with few foods I could eat.
I had a bad gut infection. My LLMD treated me for klebsiella and citrobacter in the gut (first Cipro for 21 days, then followed up with oregano oil, plant tannins, and uva ursi, then switched to Humaworm). I also took VSL#3, no other probiotic touched this problem. I treated for bartonella and parasites and finally had my first relief.
At this point, my gut is almost normal. I still take HCL frequently to help with digestion. I eat fermented foods. I have done Dr. Natura Cleanse (helped TONS). I have done liver cleanses. I have done four rounds of Humaworm (passed a tapeworm, 7 + feet long). I took enula, which helped with roundworms (I saw at least 30 of them, 10-15 inches long). I also did a Thisilyn Cleanse.
I can eat normally, but I have to still be careful of raw veggies and fruits as they don't digest well. I can eat a small side salad without pain, but it doesn't digest very well.
My experience is that you can have very severe gut problems due to your body being weak from Lyme Disease.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
For almost 10 yrs I was taking 6-10 imodium every day just to try to make it to work-it was pretty rough.
I am now able to eat whatever I want without discomfort. There is hope!!!
I was tested through Quest wa1 igg ab,ifa 5-6 times before it showed positive.
I also have Immune suppression, my body does not make igg antibodies as it should so I was surprised when I tested positive.
Send me a Pm and I'll give you my number 1-800 If anyone wants more info. My typing skills are still quite slow. Take Care, Ken
-------------------- "We can easily forgive a child whom is frightened of the dark: the real tragedy is when men are afraid of the light." Plato Posts: 37 | From OuterBanks NC | Registered: Apr 2007
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WildCondor
Unregistered
posted
There is a steroid you can take that is not absorbed like regular steroids are...Entocort...try that one for pain relief. Glutamine can also help crohns. Noone knows what causes it but it could be a bacteria infection. SOmetimes c.diff can mimic crohns as well.
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janet thomas
Frequent Contributor (1K+ posts)
Member # 7122
-------------------- I am not a doctor and this is not medical advice but only my personal experience and opinion. Posts: 2001 | From NJ | Registered: Mar 2005
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
Anything that whacks a normal immune response, can also cause an autoimmune disease.
I have Crohn's but do not have Lyme. My immune system does not function properly, and may be related to a pathogen, or pathogens, but which is unknown.
I think the Babesia/Crohn's connection is rather interesting, in that it does possibly connect one pathogen to the disease.
Other pathogens that I suspect may play a role in the immune system dysfunction of Crohn's are the XMRV virus, Porphyromonas Gingivalis. Other opportunistic pathogens that may contribute to symptoms are certain strains of E-Coli, H-Pylori, and Mycobacterium avium subspecies Paratuberculosis (MAP).
I found MMS was quite effective is resolving many of the intestinal symptoms of Crohn's.
I use Low Dose Naltrexone as a long term Crohn's treatment. Also a good Lyme treatment.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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