LymeNet Flash: Interstitial Cystitis

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Medical Questions » Interstitial Cystitis

UBBFriend: Email this page to someone!

Author

Topic: Interstitial Cystitis

MysteryGirl44
LymeNet Contributor
Member # 10201

posted

How many of you have it? What helps with your symptoms?

--------------------
"Life doesn't have to be perfect to be wonderful."

www.myspace.com/lymediseaseawareness

Posts: 514 | From New Jersey | Registered: Sep 2006 | IP: Logged |

cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165

posted

I have it- physical therapy for pelvic floor dysfunction and sticking to the IC diet have helped me the most

--------------------
"Say it straight simple and with a smile."

"Thus the task is, not so much to see what no one has seen yet,
But to think what nobody has thought yet, About what everybody sees."

-Schopenhauer

pos babs, bart, igenex WB igm/igg

Posts: 3156 | From Lyme limbo | Registered: Oct 2005 | IP: Logged |

riverspirit
LymeNet Contributor
Member # 19435

posted

Finding foods/substances that are triggers.

For example, for me, no "hot" herbs such as ginger or curried dishes or peppers/ salsa/etc.

I can have a small bit of cooked garlic, basil and some mediterranean herbs.

For me, avoiding tomatoes, most fruits, spicy foods, citrus/lemons, gluten, dairy, vinegar, sodas, all chemicals....well the list goes on. I don't eat out, but that isn't a problem for me.

Each person needs to find their own triggers.

Chemicals in detergents, body care products and home cleaning, etc. can cause a flare.

Going organic and bio-degradable as much as possible helps.

Cotton underwear.

Lots of water.

Sometimes with a flare, homeopathic cantharis 30x or Hylands Bladder Irritation formula can help.

Marshmallow root capsules or in a mild tea.

Apparently, lyme and co-infections can mimick or cause i.c.

Sending ease and peace....

Posts: 164 | From North America | Registered: Mar 2009 | IP: Logged |

mojo
Frequent Contributor (1K+ posts)
Member # 9309

posted

Hello! I have a thread going that has some good info from nice people, too!

I practice a low acid/high alkaline diet and it has helped a lot - now I am in a flare and got some good ideas here.

They suggested Baking Soda or Alka Seltzer in a flare.

I would also reccomend low acid coffee if you have to have it (I do and I cold brew it - nothing tastes better!)

I only use non toxic products on my body, for cleaning and in the wash as recommended above.

Only white cotton undies - no bleach and double rinse. No soap on the vulva! Use organic or non bleached feminine hygiene (like Natra care, Seventh Generation, etc)

Posts: 1761 | From USA | Registered: May 2006 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

More info:

www.ichelp.org
www.ic-network.com

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/