posted
After 4 weeks, I took the last Doxycycline pill today. I am hoping symptoms don't return. I still have some neuro issues, which I will have checked out by the Neurologist on Friday.
The ID doctor said I'm cured (no follow up blood work or anything). Im going to wait and see what happens. If symptoms return, then I will make an appointment with the closest LLMD, who is 2 hours away and doesn't take insurance.
posted
Many LLMD's have a significant wait list, especially for first-time appointments since they take longer.
Your plan is linear, you may want to consider working in parallel. Why wait? You can call the LLMD's office and get an idea of how long the wait is for a new patient appt.
You can also ask about their cancellation policy. If they are reasonable, you may be able to schedule something now, just in case, and cancel later if you find it unnecessary.
I hope your standard course of treatment was effective, but you should not let the chance to treat more aggressively slip through your fingers.
Good luck!
Posts: 455 | From Was in PA, then MD, now in the Midwest | Registered: Nov 2008
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posted
According to Dr. B's guidelines, you are supposed to treat until 2 months after you no longer have any symptoms. If you still have symptoms, then you have probably stopped too soon.
I had to wait 4 months for my LLMD appointment. Make one ASAP so it will be there if you need it. You can also ask to get on a cancellation list. If someone cancels, they can call you to take their place sooner, and you can always say no and keep your later appointment, or cancel it if that much time goes by and you are completely fine. But if you feel that you are relapsing or getting worse in the meantime, you would be closer to getting in to see the LLMD.
I hope you recover quickly and completely.
-------------------- Don't forget to laugh! And when you're going through hell, keep going!
Bitten 5/25/2009 in Perry County, Indiana. Diagnosed by LLMD 12/2/2009. Posts: 756 | From Inside the tunnel | Registered: Jan 2010
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posted
Make an appointment. My bet is that you will need it. Sorry to say so! You can always cancel it if you don't need it (but do ask about that ahead of time.)
Are your symptoms GONE? If not, read what LightAtTheEnd said (again).
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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posted
what kind of neuro issues?? i doubt the 4 weeks is enough, sorry to say.
-------------------- 3 months Doxy 8 months of Tetra 7 months of Biaxin/Plaq. 4 months Doxy/Biaxin/Plaq. 5 months Biaxin/Plaq. Back on Doxy/Biax/Plaq On the road to recovery. Trying to make people Lyme Aware....... Posts: 289 | From R.I. | Registered: Jun 2009
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
That's great if your symptoms are gone....woo hoo.
Fingers crossed!
Posts: 4590 | From Midwest | Registered: Jun 2008
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
What is the neurologist gonna tell you that you don't already know?
Please don't let a neurologist whack you out on medications.
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
What symptoms are you still having?
If you're having neuro symptoms that you didn't have before you got bitten, they are very likely Lyme, which means you need more treatment. Don't wait to make that appt.
If somehow ALL your symptoms go away, you can always cancel.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
Listen to these people....now is the time to squash this while you can.
Neuro symptoms are a sign of active infection.
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
Make you appt now. By the way, most LLMD's do not take insurance.
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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Im going to wait and see what happens. If symptoms return, then I will make an appointment with the closest LLMD, who is 2 hours away and doesn't take insurance.![[confused]](graemlins/confused.gif)
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