Me: My memory is REALLY bad and it worries me. Doc: Hahaha You're too young to have memory problems. Me: I know. That's why I'm here. Doc: You're fine. Don't worry about it. --------------------- Flash forward to when I was 29 (last time I went to a doc). Not the same doc. Same town, though.
Doc: Chronic Lyme doesn't exist. I have a friend who knows all about it. Me: Well, there's SOMEthing wrong with me and I want to know what it is. Doc: It's probably just depression. Me: I haven't been depressed for FOUR YEARS straight. Doc: I can't do anything more.
-------------------- [insert motivational quote here] Posts: 27 | From CT | Registered: Feb 2009
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posted
That is exactly what infuriates me. Sent to specialist after specialist..only to be told the same thing..we can't help you.
I even had some that didn't dispute the lyme, didn't say they thought it was lyme, but didn't dispute..and still said, "nothing can be done".
I was told that I would just get worse and nothing can be done.. NOT good enough.
-------------------- One day at a time Posts: 409 | From TX | Registered: Mar 2004
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
"Vitamin D will take care of lyme. Just go outside and sit in the sun for a few minutes every day."
This man, a pediatrician and deacon at our church, was sitting in my living room when he said it. Too bad you can't throttle the deacon from your church while he is a guest in your home.
My son said he could see the hair go up on the back of my neck when he said it.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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posted
The night before ID appt. I read here on Lymenet that ID will say:
"We followed all the protocols, there's nothing we can do".
I'd already had two rounds doxy and was still sick. Later found I've had it for 10 years (that's when neuro problems tore my life apart).
Sitting in front of ID with numb face, leg pain, burning feet, dizzy, fatigue, confusion, comprehension problems..... I listened to her babble with claims "there's no evidence whatsoever continued use of abx helps Lyme" and "chronic Lyme is a fallacy" and then she stared me right in the eyes and said:
"WE FOLLOWED ALL THE PROTOCOLS. THERE'S NOTHING WE CAN DO".
Posts: 99 | From Cali | Registered: Dec 2011
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steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
- I wanted to wake-up this post....I love reading these
Some years ago I went to a (ID, Doc). I showed him all my paper work, scans, blood work etc.
I even had my report from a local Lab here in Boston, that I tested Pos. for Lyme Disease.
Well this is what he said to me> You don't have Lyme disease, what. He didn't care that I tested Pos.
We all learn the hard way when it comes to (ID Docs).
Steve
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
I told one doctor that my primary doc said, "this medicine will kill ya". The new doc said, "yeah, it will, that's one less Lyme patient we'd have to deal with." hahahah. I thought it was funny. I think he was making a joke, but maybe he was serious
I just couldn't believe I flew out to see this new doctor and that was the first thing out of his mouth.
Posts: 2232 | From USA | Registered: Aug 2009
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
THE lyme specialist Dr. Satz from Zurich in Switzerland told me, after I came back from the ER, unable to breath or to move:
"Come back in one year for a check up."
His name has to be here. He's a tragedy doctor and probably killed dozens of his patients for negative diagnosis of lyme, if not hundreds.
Posts: 6200 | From Brussels | Registered: Oct 2007
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Response from PCP after my initial report of bizarre and alarming neurological symptoms, inability to digest food, and sudden, rapid weight loss (down to an emaciated 99 pounds):
"Wow...I wish my stomach was that flat."
Posts: 2072 | From Earth | Registered: Jul 2013
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posted
On bringing my bed ridden son to Children's Hospital when he stopped being able to lift his head:
"There are three children here I'm ACTUALLY worried about"
Posts: 372 | From british columbia | Registered: Feb 2012
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
Me: Can we do a Lyme test?
Immunologist: All the people who think they have Lyme don't have it and the ones that do, don't know it.
(he did not conduct the test).
Posts: 2839 | From California | Registered: Jul 2012
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
(While on the acupuncture table with a fresh bulls-eye rash)...
Me: Can you give me antibiotics?
Acupuncturist/PA: No, a bulls-eye rash isn't necessarily Lyme. Let's wait 8 months, if you're still sick we'll consider antibiotics...
(Later in the same appointment...)
Acupuncturist/PA: Now you must imagine healing angels or you won't heal (said in a very threatening voice while waving a box supposedly sending "healing rays" at me)
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