kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
I have never been tested for lyme, but I am planning on it soon. My daughter has been treating for about five months now.
I got bit by a tick about five days ago and promptly started on antibiotics. Over the last couple of days, I have been having muscle twitches in my thighs. I can SEE my muscles moving. It's like when you're pregnant and the baby is kicking you except it's in my legs!
It makes me wonder. If I have lyme, would the antibiotics cause this. I have had this symptom for a while, but nothing as dramatic as this.
I would love to know if this is a symptom of lyme, or if it's something else that I need to get checked out by my PCP.
Also, after I go off of this antibiotic(I have about five days left) when should I get my Igenex test done??
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Yes, it is a lyme symptoms as well as bartonella. I did not start getting muscle twitching until I started abx treatment.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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I have it mostly in face/neck/throat. I get them in in legs also....
I am on flagyl..I don't believe flagyl would give me a herx every day for months???? Kimmie? do you have experience with this? I am soooo uncomfortable, this symptom is very stubborn, for me it is more of myoclonus now although it started as twitching many years ago when I first got bit. Thanks
Posts: 172 | From ohio | Registered: Feb 2010
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posted
I also get muscle twitching, mostly in my face, arms and hands. I have lyme, bart and babs
Posts: 104 | From No. VA | Registered: Aug 2009
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WHen I only did IV rocephin...I was basically asymptomatic. I think everything was in cyst form and not causing a problem. 24 hours after my first dose of flagyl...it is back.
I have been twitching the entire month now. It is hard to say...I twitched before antibiotics when going down hill and I twitched worse with herxes.
My assumption...Bb is being killed and the neurotoxins are causing the twitching. I read about peripheral nerve hyperexcitability. I am not a good detoxer so that may be why. My brain fog/drunk feeling is way better however.
Myoclonus? I get that too but only when on flagyl or off ABX. What meds are you on?
Posts: 747 | From Utah | Registered: Apr 2010
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posted
Go to General Support and find TNKIM's post about the muscle twitching... she has video!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
Thanks ya'll. I am just freaking out. I have been thinking that it might all be in my head that I could have lyme.
This symptom has me a bit overwhelmed. I will start taking the magnesium and see how things go.
I have only been on antibiotics for five days, but I am already having yeast problems. I can't imagine being a long term treatment like my daughter.
Tutu, I will go and look at that video.
Christie
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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The myoclonus got very strong during some sort of relapse in December 2009. This happened on its own. I did get significant relief in March and April, then it started to come back in May.
In March was on Amoxy, April started Ceftin and Flagyl for two months. June was on Rocephin and Flagyl...symptoms continued to get worse, now back on amoxy and flagyl, symptoms getting worse.
I wonder if this is from a virus and not from Lyme..or something else. I have taken tons of magnesium so I don't think it is due to magnesium.
I am getting a little distressed about how intransient this symptom is. I thought herxes were short-term. I am soooo confused. I am in Peru and my neurologist here is actually (surprise!) very interested in my case and is doing research on Lyme. He says that for a chronic case the types of movement (myoclonus in neck/face) seems unusual...of course he is just looking up papers at this point. At least he is trying, bless his soul. He is going to videotape me and send the videos to other doctors in Europe, etc. If I find anything out will share. If anybody has something to share, please do.
Is this a symptom of chronic Lyme? Myoclonus? Can flagyl affect it that much? I have been on flagyl daily.
thanks!
Posts: 172 | From ohio | Registered: Feb 2010
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posted
Yes, like Sutherngirl says, try taking magnesium for muscle twitching. It really worked for our daughter, maybe it will help you too.
Posts: 228 | From Mass. | Registered: Feb 2009
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I am so sorry to hear of your problems. Yes myoclonus goes along with Lyme, chronic or acute. I actually had it in the initial stage of my disease too.
I wonder if the flagyl is aggravating it? It can be toxic to the neurological system. I dont know of your daily dose, but the neurotoxic effects seem to be related to the cumulative dose. If you have been on it daily for awhile, maybe you need a break from it?
Could you try a macrolide (zith or biaxin) along with the amox? Maybe doing so will let things calm down and then you could try tindamax or grapefruit seed extract instead.
Flagyl can be very effective, but has some serious potential side effects. Usually they resolve once the drug is stopped over several weeks. You could try a different cyst buster or if you go back to flagyl, maybe a lower dose or pulsed rather than daily?
Rocephin usually is "neuroprotective" and has a calming effect on the CNS. I think the myoclonus could be a result of the flagyl.
Just my thoughts. I am sorry you are still dealing with this uncomfortable symptom. Please let me know what happens. Best wishes.
Posts: 747 | From Utah | Registered: Apr 2010
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Electrolytes helps with the nerves as well as B12IM. Liquid Mag. can give some great much needed sleep. But don't overdo it.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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I don't know which disease is causing it, but it is mostly suppressed on Biaxin or zithromax.
For some reason, Ketek (another macrolide) doesn't help it as much and doxy seems to do nothing for it.
Posts: 984 | From US | Registered: Dec 2007
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