posted
I posted a question about a month ago about neurontin and if anyone has had luck with it.
Well, my LLMD put me on it last month, and we have been slowly increasing the dosage so that I'm now on 900 mg daily, spread out over the day. He says he can give me up to 2400 with no problem.
I just want to say Why the heck didn't he give me this sooner?
Wow, do I ever notice a difference in the pain levels, and I'm also sleeping very well at night. Before I was lucky to get 4-5 hrs. of sleep, now I'm up to 8, and 9 if I don't have to get up for anything. I have even cut back on my sleeping meds.
I have been in treatment for 5 years and this is the first time that I have ever had anything to relieve the neck and shoulder pain, not counting PT, etc.
-------------------- "Few of us can do great things, but all of us can do small things with great love". Mother Theresa
kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
So happy to hear that something is working for you.
I took Neurontin for several years for interstitial cystitis.
It makes you sleepy so I guess that's probably why you are resting better. It was hard for me to stay awake on it. That's one of the reasons I quit taking it.
I'm wondering if it would help my daughter with her pain?? I might ask her doctor about next time.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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posted
I also took it for a long time: was at 3600 mg a day cause of extreme nerve pain. Now only take 600 mg at night, to sleep.
Posts: 360 | From New York | Registered: Oct 2009
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littlebit27
Frequent Contributor (1K+ posts)
Member # 24477
posted
I'm on it. Was on 1800 mg. But am working my way up to 2400 mg this week.
It does help me to an extent, I still have severe pain. I am hoping by uping it it will help more.
My nerve pain is taken care of, people can touch me and it doesn't feel like they are stabbing me anymore but the rest of my body still hurts so much that I take a ton of tylenol (not over 4000mg) a day. Plus flexeril, naproxen, cat's claw and sasparilla for inflammation, and am just starting to try our curamin.
I'm glad it is helping. Oh and it does make me sleep pretty heavy as well.
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Why didn't he give it to you sooner?
My guess is because most people can't ever get up to an effective dose, and most people don't get any benefit from it. So, it doesn't have a very high success rate.
You are fortunate that it is helping you.
One of my docs gave it to me, but I couldn't handle even low doses of it. That is typical from what I have heard.
So, I believe you are in the minority of people who are able to take it and actually get any benefit from it.
It did nothing of any benefit for me--just gave me lousy side effects.
Posts: 9931 | From Maryland | Registered: Dec 2007
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I'm glad it's helping you. Did you by chance have a hard time when you first started? meaning dopey, spacey, feelings of falling over and wild vivid dreams?
I would have stuck it out if I knew these symptoms would have stopped but couldn't do it more than a week and it didn't help my pain at all.
I have bad burning neck, shoulder pain but couldn't get past the side effects of the neurontin.
Glad you found some relief.
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Glad it's working for you. I tried many times and it was always an intense opposite experience. My experiences were so bad that it amazes that anyone can even tolerate - but the fact you are doing so much better really goes to show us that the same medicine is not at all the same for everyone.
Good luck with continued success. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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