I have been on Mepron, azitro & Artemisian (sp?)for almost 4 months. I will get a good day till around 6 or 7PM. Then the stiffness,chills, neck, arm, leg pain start.
I guess my question is how do others start feeling better? Do the good hours just start getting longer and more? And how do you tell a herx from the abx just not working? Or when do you say enough is enough and change abx?
This is the worst I have ever felt. I have been treating lyme, with a LLMD for 5 years. I am having a hard time functioning for the first time since this nightmare started in 1997. It is lucky I have a sit down job, till I have to stand up. My legs hurt and are stiff and weak.
I do detox. Epsen salt soaks, lemon & olive oil &water liver detox. And probiotics every day.
Have others went this long with out improvement on mepron?
posted
I have been on mepron/zith/tindamax for about nine months. I didn't realize the improvement, it was so gradual. I was switched to malarone. Symptoms started to return, and I realized how much better I had become with Mepron.
The specific symptoms that have improved with Mepron are similar to yours; stiff legs and swollen ankles, achy arm, neck creaking, sweats, and burning on my shins.
I didn't get worse on this regime, just didn't think I was getting better. Try going off abx for a while and see if your symptoms improve. What does you llmd have to say? Five years is a long time to still be treating, and feeling terrible!
Posts: 964 | From san diego | Registered: Oct 2009
| IP: Logged |
posted
My symptoms have gotten worse since treatment.
My LLMD thought this was the missing link with me. He would get me 90% better and I would go down hill again. So he thought we were missing something and I have alot of the babs symtoms and had never been on mepron.
He is out of town for a few weeks. He said he was going to switch me to Bixin, augmetin and mepron-mon, tue & wed-1 1/2 tsp 2xday. Instead of the 1tsp 2xday of mepron.
I have gotten worse on these abx. Alot. My LLMD thinks herx. He says die off toxins are causing all my problems. Says this is normal die off symtoms.
I just wonder if others have to struggle this long before feeling a little better. Someone told me that once I start feeling better I would feel really good quickly.
posted
I have read, and my doctor corroborates, that Mepron can be ineffective unless the dosage is increased to 2 tsp., twice a day.
I did not improve until the dose was increased. Maybe that is something to consider...
Posts: 964 | From san diego | Registered: Oct 2009
| IP: Logged |
posted
I was placed on 2tsps of Mepron twice a day. I took it with Biaxin which worked much better for me than zithromax. I will say that it was a very very gradual process to feel better.
I took Mepron for 1.5 years straight. The last 9 months I have been on Malarone.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic