posted
Hello... I'm a newbie on this board. I'm looking for a LLMD in Colorado.
For those who want to hear my story:
When I was 11, I was in Iowa, 5 miles below the Minnesota border. (That's important b/c at the time, Iowa "didn't have Lyme" but Minnesota did. That meant my official diagnosis was denied because I could not have gotten Lyme because I was in Iowa. I guess the deer just stop at the border and turn around!) I got a bullseye rash, but in 1989 no one really knew what that was. Luckily, I had a sinus infection 2 weeks after my bite and I was put on some antibiotics. The tests I eventually got after 2 years of not knowing what was wrong were unclear. I think that getting some antibiotics accidently at the start helped my illness be weaker than most others. I had joined a support group and I was the luckiest person by far.
From 1989 to 1991, I missed 180 days of school. Any time I was able to make it to school, they would pull me out to see the school psychologist who thought I had school phobia. Well, thanks to them and the "probation from the nurse's office" I did have a school phobia!
I don't remember if I had recieved any treatments for specifically for Lyme... definitly nothing significant. If you think no one knows anything about Lyme now, try being in Colorado back then! I eventually got a fever of 104.7 and I wonder if that didn't seem to kill things off because my symptoms seemed to taper.
There have been lots of "odd" things in my health that I blamed on Lyme-- particularly bizarre muscle fatigue/searing pain-- but I didn't think about treatment at this stage until recently. Last year I was misdiagnosed with Lupus. Still don't have a real diagnosis to pin all of my positive autoimmune tests on. My thyroid is definitely a problem so we are treating it. Right now I'm plagued with hives and my synthryoid was increased but it has not helped. Looking for a LLMD's opinion on my history. I'm trying to write down all of the odd physical things I've had go on in 20 years... don't know where to begin!
I can tell already that this is a supportive group! Glad to find you. *If I was supposed to post my intro somewhere else, please let me know. Thanks.
Posts: 2 | From Denver, CO | Registered: Oct 2009
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Siciliano
Frequent Contributor (1K+ posts)
Member # 15920
posted
Hi, Traci, you did a great job posting! And boy, did you find the right place! We have so much info here for you and it's time for you to receive the treatment that you should have had many years ago.
I am sending you some info by private message, a pm, which is done by clicking on the envelope with two people next to it.
We are very happy to have you!
Click on the flashing envelope.
-------------------- I'm sorry but I am no longer accepting any private messages due to my own battle with lyme. Posts: 3897 | From New Hampshire | Registered: Jun 2008
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bettyg
Unregistered
posted
welcome traci
check your profile above for colorado llmds
please break up your entire post into many SHORTER paragraphs for us neuro lyme folks like me who can't comprehend or read them as is.
please double space between each of them also as you did your other paragraphs, and use my guidelines below to help us. big thanks; huges
i was able to read the 1st 2 lines where you mentioned IOWA, what town did you go since i'm a native iowa of 60 years?
Welcome to Lymenet! I'm so glad you found us! You've come to the right place for education and support!
The following is some links that may be helpful to you:
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.
This explains the medical politics around Lyme, and why you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):
ILADS The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases. www.ilads.org
They will also send you a ``test kit'' with their required form, all the test vials, & box to ship it in. Be sure to download Igenex's required form. MD, DO, ND, AC, DC are all fine** must sign, date, and show diagnosis code on there why he's ordering the test.
Optional tests include: co-infection panel for your area of country and PCR whole blood
Igenex is pre-pay/out of network for most insurances. If you are on medicare, Igenex will file the paperwork & it's free to you.
Betty's suggested posting guidelines: Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend.
For easier reading, please edit your post by clicking the ``paper pencil' icon to right of your user name, which opens up the subject line and body text.
You can break up your longer paragraphs into smaller paragraphs. Please hit ``enter'' key twice after each paragraph, also.
Go to left hand corner and mark box to receive `all replies', and click edit send.
Thank you for posting in a manner that makes it easier for all to read and help others.
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![[hi]](graemlins/hi.gif)
Traci, you did a great job posting! And boy, did you find the right place! We have so much info here for you and it's time for you to receive the treatment that you should have had many years ago.![[Smile]](smile.gif)
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