posted
A friend of mine has just been diagnosed with Lyme disease. He has been having symptoms of joint aches, headaches and fatigue since August. He tested positive for Lyme disease a few weeks ago. They put him on Doxycycline but he still tested positive after he finished a course of it, so they now have him on Bactrim. He's looking for a specialist somewhere around zip code 06473. Any recommendations would be appreciated. Thanks!
Posts: 1 | From Connecticut | Registered: Oct 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Please check your private messages for the LLMD list for Connecticut and information regarding ILADS, Dr. B's guidelines and lots of helpful links.
Do join in the discussion in our ``medical section'' for additional help, education and support. It's a great place to learn more about this very complex illness. You can also find your local support group on the left hand side of this web page for additional help.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.
This explains the medical politics around Lyme, and why you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):
ILADS The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases. www.ilads.org
They will also send you a ``test kit'' with their required form, all the test vials, & box to ship it in. Be sure to download Igenex's required form. MD, DO, ND, AC, DC are all fine** must sign, date, and show diagnosis code on there why he's ordering the test.
Optional tests include: co-infection panel for your area of country and PCR whole blood
Igenex is pre-pay/out of network for most insurances. If you are on medicare, Igenex will file the paperwork & it's free to you.
Betty's suggested posting guidelines: Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend.
For easier reading, please edit your post by clicking the ``paper pencil' icon to right of your user name, which opens up the subject line and body text.
You can break up your longer paragraphs into smaller paragraphs. Please hit ``enter'' key twice after each paragraph, also.
Go to left hand corner and mark box to receive `all replies', and click edit send.
Thank you for posting in a manner that makes it easier for all to read and help others.
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posted
I have the same question. I'm newly dx'd with Lyme and interested in LLMDs in my area (New Haven, CT). Thanks!
Posts: 2 | From New Haven, CT | Registered: Oct 2009
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bettyg
Unregistered
posted
send pm to newbie mj1979 ******************************
TO NEW PATIENTS ...
PLEASE START YOUR "OWN" POST PLEASE!
look for the small black/white box at top/bottom says NEW POST
subject: show largest city closest to you, your STATE llmd needed
if you need KIDS dr....show KIDS LLMD in ..show YOUR STATE NAME. only 15 nationwide!!!
if it's for a child...WE NEED KIDS AGE; some have age restrictions and we can serve you quicker if we know this to begin with
go to lower left hand corner and mark box to receive all replies; send!
please see my guidelines for posting please; you'll receive my help if you follow this since i've had chronic lyme for 39.5 yrs!! very severe neuro patient
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The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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