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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Seeking Dr in Iowa or surrounding states

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Author Topic: Seeking Dr in Iowa or surrounding states
hookm
Junior Member
Member # 28559

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My family and I are looking for a lyme literate Dr. in Iowa or the surrounding states.

My dad has had possible symptoms of chronic lyme disease the past 2 years.

He has been to three different neurologist including one at Mayo.

None of the Doctors have been able to diagnose him.

His symptoms started with stiffness of the legs and trouble walking and have recently included periodic paralysis of the arms. These are just the main symptoms.

He has had the blood test to determine if it is lyme disease and it came back negative.Although I have read these test are not very accurate. Since it came back negative the neurologist do not even consider that it may be lymes disease.

My brother was diagnosed with lyme disease about 6 years ago but his was caught in the early stages as he had the bulls eye rash.

I would greatly appreciate any advice on the process of finding a lyme literate dr and a list of Doctors in Iowa or surrounding states.

Thank you for your help!
Posts: 4 | From Iowa | Registered: Oct 2010  |  IP: Logged | Report this post to a Moderator
janet thomas
Frequent Contributor (1K+ posts)
Member # 7122

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try some of the support groups

http://www.lymenet.org/SupportGroups/UnitedStates/

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I am not a doctor and this is not medical advice but only my personal experience and opinion.
Posts: 2001 | From NJ | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
hookm
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Does this mean you do not know of any llmd's in Iowa?

I have already tried a support group based in Iowa and they did not get back to me.
Posts: 4 | From Iowa | Registered: Oct 2010  |  IP: Logged | Report this post to a Moderator
janet thomas
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Personally I don't know of any.

There is Dr C in missouri, Lymetoo's LLMD

Did you try a nearby state?

Wisconsin?

--------------------
I am not a doctor and this is not medical advice but only my personal experience and opinion.
Posts: 2001 | From NJ | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Someone should be along soon who has a list for Iowa. I'll send you the info on Dr C.

--------------------
--Lymetutu--
Opinions, not medical advice!
Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
hookm
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Thank you sooo much for your help!!
Posts: 4 | From Iowa | Registered: Oct 2010  |  IP: Logged | Report this post to a Moderator
littlebit27
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Sending you a PM.

--------------------
*Brittany Lyme Aware on FB*
http://littlebithaslyme.wordpress.com/
Posts: 2310 | From Southeast | Registered: Feb 2010  |  IP: Logged | Report this post to a Moderator
pmerv
Frequent Contributor (1K+ posts)
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If you have already tried IowaLyme at http://health.groups.yahoo.com/group/iowalyme and no one responded, you can try again (the group is small) and you should also contact the LDA of Greater Kansas City. http://www.lymefight.info/

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Phyllis Mervine
LymeDisease.org
Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001  |  IP: Logged | Report this post to a Moderator
   

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