I am in need of a LLMD. I am frequently asked if I have Lyme by doctors, but when I ask to be tested based upon my symptoms (I have every sign listed...), they all get very defensive and refuse to test.
One outright called me a hypochondriac because I was bit by three ticks at once and actually had a rash. She refused to treat me, and put in my notes I was paranoid and creating symptoms.
This has gone on long enough that my heart is starting to beat irregularly, I'm losing my memory, and my hands/feet tingle and hurt constantly.
Many have experienced the nastiness of ignorant practitioners just as you have, so you definitely are not alone! The bull's-eye rash is definitive for Lyme.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.
To do this click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.
Posts: 9020 | From Illinois | Registered: May 2006
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
Hi Sarah:
You can order the Western Blot test kit from Igenex but will need a MD to sign the paperwork (it is treated like a lab test which requires a licensed doctor signature) and you can then have the test done.
It will show if there are any reactive bands which indicates exposure only. Also if you don't have any reactive bands that doesn't mean you don't have it.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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