posted
Before I get people saying i shouldnt use a lyme Doctor's name on a public site, I want to point out that this doctor practices very publicly and I am in no way 'outing' him. It is okay to use a doctors name on LN if they are self publicized and allow their status as a lyme doctor to be publicly known. Other examples would be Dr. K, Dr. H and Dr. J. I am using the doctors name because he is highly publicized in many news articles and has been featured on television. He also maintains a blog called lyme md which links to his practice website. He is a publicly known LLMD. I also hope this may be of help to others who are suffering and want to seek his help without having to play the 'decoding' game in trying to guess who I am talking about.
All that said, now to my question. I have an appointment coming up this month with him. I have a doctor where I live in GA. Although she treats lyme she doesnt really specialize in lyme but more in the area of chronic fatigue and fibromyalgia and she treats many different types of chronic ailments. She is willing to prescribe longterm antibiotics, but I feel she is simply a prescription stamp and she doesnt seem to have a very clear strategy for me, and I feel in many ways I am directing my own care and am at a standstill. So I am hoping to start over with a doctor who has more experience in treating lyme and co specifically, so I am making the 700 mile drive to go see Dr. J this month.
I just wanted to see if anyone here has any experiences good or bad, first or even secondhand about him and his practices treating lyme. Although there is a lot of information out there about him, and he has posted a lot of his thoughts and theories regarding lyme on his blog, I havent been able to find very many reviews or accounts of his care from the patients perspective.
Any thoughts, opinions or experiences under his care either directly or second hand would be greatly appreciated.
**It is against Lymenet policy to use the full name of any LLMD. Please only use the first inital of their last name**
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
This is what you agreed to when you started using the LymeNet site:
"5. You also agree not to post the last name, or the first name, of any person that treats Lyme disease. Instead, please use the first initial of the last name only, with the state, but not city. For example, Dr. B. in NY. This person's contact information should not be displayed on LymeNet. However, you may email this information. This is to protect those that treat Lyme and the Lyme community."
posted
My mistake. Perhaps my Lyme brain kicking in again. I must have confused the rules here on LN with the rules from the other Lyme discussion boards I have been using.
Other boards make exceptions for the name rule when discussing well known LLMDs who advertise and publicize their practices openly.
It seems the initials alone might create some confusion, especially for the casual reader who may be new to Lyme. There are many doctors whose name stars with J. Just seems like we are hoarding information. But I digress. When posting in the future, I will just have to fight through the Lyme brain and remember which site I am using and which rules apply where.
Posts: 5 | From ATL | Registered: Jun 2016
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You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are.
Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.
Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.
Btw- I know you are new, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.
To do this click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.
Posts: 9020 | From Illinois | Registered: May 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Log Moss,
Like most who treat Lyme that doctor has fans and those who are not fans. I see both here and in other venues. Some only last for one appointment and quit him, others stay longer.
Favors use of hyperbaric. Is still learning. May be under investigation again by medical board, so before you make a serious commitment you may want to check the status of that situation so you don't wake one day to find you have no doctor.
Just so know you have other option...
Please go to www.MarylandLyme.org and look at the menu to your left you will see "DOCTOR REFERRALS".
Click there to find the names and contact information for health care professionals in many fields who are treating Lyme & TBD's in all of the states.
Here are some ways to locate alternative health care professionals too.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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