kam
Honored Contributor (10K+ posts)
Member # 3410
posted
My body shut down tonight. It hasn't done that in a long time. It happened in a building with lots of people and senior citizens playing songs.
The lights, sound, heat, etc seemed to shut my body to a point that I couldn't even think. Again, when I got outside to the quiet I started to feel human again and the stuff going on in the head and with the ears lightened up.
Strange.
I was trying to be normal today and I guess I over did it.
I had a great deal of difficulty moving my legs and body to get out of there and into the truck.
From the truck to my home, I walked sideways and it worked much better than walking regularly. This is something that has been the same since this hit.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I woke up with that old everything hurts in the body stuff. I haven't had that since I learned to use the power chair more to move my body.
I sure will be glad when the power chair is up and running again.
I was pleasantly surprised that I was able to make it to the park again with Buster this morning. I think I was on my feet from 20 to 45 min. I looked at my watch but couldn't recall what time it was when I left the house. I will write it down next time.
I let Buster off leash again at the park. We did OK until he saw some people and ran to greet them. They were all the way on the other side of the park. And then, a dog in a fenced in yard across the street caught his attention and he ran across the street. No, he did not stop and look for cars first.
So, I am back to needing to get to a fenced in area to exercise him. That is tricky because I don't think my feet will get me to the closest fenced in area.
I came home and rested and then made breakfast. I fixed scrambled eggs with spinach, onion, cheese, garlic and tomatoes. IT was great. I can't recall when I have been able to do this. The multitasking thing you know gets in the way most of the time and I have to keep things to just one step.
But, I am wiped out now. I will be holding down the camp chair recliner in hopes of recharging so I can get Buster out this evening somehow to exercise.
The house keeper told me the vacuum is not working. She said that she saw a vacuum at Sears for $30.
I hope to be able to see for myself how the vacuum is doing. I know I tried it the other day to clean up the power chair and it didn't work. The bag had a hole in it though and I replaced it. I haven't tried it since.
I am all ready in a negative balance on my checking account which will come out of next month's budget.
Not sure how all of this is going to work. With all the hair from Buster...I really need to get a vacuum that works.
I wonder how sweeping the carpet would work??
Spending money on food is more important.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I was able to take Buster to the fenced in area this morning.
But, it was really tough on my body and mind. A friend walked by while I was laying on the bench. She went back home and got her car and drove Buster and I back.
So, our outing was cut short but I don't know how long I could have laid on that hard bench feeling so sick.
The plan was to lay there an hour in order to get the strength to walk back.
I also was not able to do anything after taking Buster to the park and fixing breakfast.
I slept until 2pm and then off and on the rest of the day. Took Buster out for very short walks a couple of times so he could toilet.
I think I will have my power chair back on Friday. It is so sad to be back to having such a rough time with this. The power chair made such a big difference.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
It is the beginning of another week. Hopefully, I will be able to follow up on the paper work this week.
I have not been able to read in the am and before bedtime for quite some time now. Hopefully, that will come back too.
It looks like I might have the batteries for my power chair at the end of this week. I sure hope so.
That power chair has made such a big difference in my life. It is something that I can do....cruise every now and then and get out and about.
I am able to do this almost every day when I have it to move my body for two short periods of time and sometimes longer.
Without it, I am pretty much housebound again and even at that not able to sit upright or move about in the house.
Hopefully, I will get the check in the mail for the change of life grant with Canine Support Team too.
I would like to be able to pay back those who helped.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
I emailed you
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I WAS ABLE TO WALK BUSTER TO THE FENCED IN AREA. WE BOTH JUST LAID DOWN WHILE WE WERE THERE. I GUESS HE WAS TIRED TOO. I USED THE GENTLE LEAD. HE DOES MUCH BETTER WITH IT WITH THE EXCEPTION OF NOT WANTING TO GET STARTED. HE RESISTS IT AT FIRST.
THE WALK WAS ABOUT 6 SHORT BLOCKS THIS TIME. NOT BAD. MY COGNITIVE AND LARGE MOTOR SKILLS WERE WORKING. THIS IS GOOD AND A TREAT.
I STAYED DOWN ALL DAY TODAY WITH THE EXCEPTION OF TAKING BUSTER OUT IN THE AM AND PM.
I AM WONDERING HOW TO HANDLE THIS WEEK AND WHEN MY POWER CHAIR GETS BACK ON LINE.
I AM THINKING THAT I MIGHT TRY WALKING IN THE EVENING IF I HAVE THE RESERVES TO DO SO.
AND USING THE POWER CHAIR THE REST OF THE TIME.
I WOULD LIKE TO BE ABLE TO BE ABLE TO BE ON MY FEET FOR LONGER PERIODS OF TIME.
IT TOOK ABOUT A HALF AN HOUR TO GET THERE. REST 1/2 HOUR. AND THEN WALK BACK 1/2 HOUR.
THAT WORKED THIS TIME. CAN'T KNOW IF IT WILL WORK NEXT TIME.
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I was able to walk Buster to the school yard this morning. It only took us about 20 minutes. This seems to be how long I can be on my feet.
I laid down and sat up off and on while I was there for about an hour.
Coming back was difficult. Hard to describe. Perhaps as if I was climbing up hill with a heavy back pack and breathing heavily.
Buster got a good work out. He had a little friend to play with.
Still not sure how to do this being on my feet thing without over doing it so I am down for a long time.
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Stayed down all day after taking Buster out this am. I was able to take him to the school yard on foot again this pm. Same routine...walk 20 minutes, lay down for ? minutes and then walk back.
It feels good to be on my feet but I don't know if I can do this all week.
I also need to get paper work done around the house which requires sitting up and thinking.
It will be a tricky week. I will be glad when the power chair is moving my body again and I can do more.
I finally received part of the change of life grant. The hotel bill. But, I have not received transportation costs, food costs and some of the dog supplies.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I made it to the school yard fine this am. But, the benches were wet so I did not lay down but sat upright.
It was tough getting him. I made it though. I was feeling pretty spiffy when I first got there because I have been able to be on my feet for 20 min. rest and then be on them for 20 more min. twice a day for the past two days. But, I am not feeling very spiffy right now.
That old stiffness and rigormortus feeling hsa kicked in.
I had to walk myself through the cup of tea. OK...get glass...good...find tea bag...good, put tea bag in glass...good, pour water over tea...this is not good...too difficult to fix a spot of tea this morning.
OK. Rest and then try breakfast.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I wasn't able to take Buster out for exercise last night. But, a friend came by in the afternoon and dropped us off at the school yard. Buster just laid there for the most part. I feel asleep on the bench.
At least he was able to toilet.
I took him out this am but it was tough. I keep feeling I am on the verge of tears. It is do to it better so difficult to move the body and the brain not working well.
Back to the camp recliner and vegging in front of the TV.
I am hoping the power chair batteries will be here Friday. I just hope I don't cry from relief when the guy brings them. That is so silly. I don't think very many people would understand why a grown woman is crying over batteries for her power chair.
I hope I am able to follow up on the batteries to day, CALPERS and some other things. But, if it is like the rest of the week I will not be able to.
One more day and then I can get some food in here. This is good.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
My body shut down on me about 10 am today. Walking to bathroom is very difficult...really need to crawl. Hate that.
Limbs and brain connection is very weak. Need to keep it to liquids...digestive system is too weak to take down solids.
It has been a long time since I have had these symptoms. I am hoping they will go away once I am using the power chair to move my body again.
The tears are back too.
Wanted to address an envelope to mail a letter to family and couldn't do it.
What I did do this morning was walk Buster to the school yard, lay down on the bench walk a few blocks to the local coffee shop, listen to a local pastor talk about mission trip to Mexico, and walk back home with Buster.
I also answered one email message and wrote a letter to the family. Then, the body quit.
Rested...typed this entry...back to resting...everything is shutting down again.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
The pressure in the head and the high pitch sound in the ears has been great for several days now too...or weeks??
I wonder if that has something to do with not being able to read, focus, balance the checkbook or write the checks down, etc or other paper work.
When the pressure lets up, I will try to do some paper work and see how it goes.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I woke up in tears this morning. I sure don't know how people who are really battling life threating conditions do it.
I expect I will be fine once I am able to use the power chair again.
I did have a good thing happen this morning. I ran into the guy with the two labs.
He drove Buster and I across town to the school yard where he teaches. Buster got to run and play with the other dogs.
I got to talk to a fellow teacher.
He has a garden project at school. He told me to stop by and help myself once I get the power chair going. Schools out so the veggies are there to pick. I love picking veggies from a garden.
Well. Time to get back in the camp recliner and veg. Not my style but a neccessity (sp?) for now.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
i WONDER IF PAIN MEDS WILL HELP WHEN IT IS LIKE THIS. I WONDER IF I WOULD BE ABLE TO BE ON MY FEET MORE.
BUT, THERE IS ALSO THE PROBLEM OF WEAKNESS.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
i JUST WENT TO THE MAIL BOX ON FOOT. THE PAIN WASN'T THERE, BUT IT WAS A ROUGH TRIP. CAN'T FIGURE THIS OUT. IS IT LACK OF OXYGEN GETTING TO THE BODY AND BRAIN OR BLOOD GETTING TO THE BODY AND BRAIN??
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