LymeNet Flash: Contribute Your Story to a Book for Lyme Awareness?

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»	LymeNet Flash » Questions and Discussion » General Support » Contribute Your Story to a Book for Lyme Awareness?

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Topic: Contribute Your Story to a Book for Lyme Awareness?

Biting Back
LymeNet Contributor
Member # 6018

posted

I have experience writing and I made the decision (vow) to move forward and write a book about LD . . . when I'm more able. How many of you would seriously consider contributing a portion of your story to a book, anonymously? IMO, the best avenue for lyme awareness is reading about what others have gone through and how they reached a final diagnosis. It would definitely an opportunity for your voice to be heard, loud and clear. My LLMD already said he would write the forward to my book. This is a serious inquiry.

Thanks!

Posts: 703 | From Almost Heaven | Registered: Aug 2004 | IP: Logged |

AAmeri21
LymeNet Contributor
Member # 5410

posted

I would

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"Walk by Faith, Not by Sight"

Posts: 149 | From New City, NY USA | Registered: Mar 2004 | IP: Logged |

marie
LymeNet Contributor
Member # 3980

posted

I would also.

Posts: 580 | From southern new jersey | Registered: May 2003 | IP: Logged |

Kara Tyson
Frequent Contributor (5K+ posts)
Member # 939

posted

I would.

Posts: 6022 | From Mobile, AL | Registered: Apr 2001 | IP: Logged |

arg82
Frequent Contributor (1K+ posts)
Member # 161

posted

Count me in!

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``The best way out is always through.'' -Robert Frost

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Click here to see my Lyme journal.

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Posts: 2184 | From Rochester, MA | Registered: Oct 2000 | IP: Logged |

WildCondor
Unregistered

posted

Great idea!
I would be happy to contribute also.
Just email me and let me know what you need, and the format.
Thanks!
WC

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Lyme Disease Help
http://www.wildcondor.com

[This message has been edited by WildCondor (edited 13 January 2005).]

IP: Logged |

heartsickmommy
LymeNet Contributor
Member # 6417

posted

I'd be willing to contribute our story - a toddler with Lyme. So far, a fairly uncomplicated case which appears at the moment to be headed toward a happy 'ending'.

I don't know if you'll be wanting to include the whole spectrum of Lyme from simpler cases to the more difficult, but if you do, I'd be happy to contribute.

Posts: 134 | From calif. | Registered: Oct 2004 | IP: Logged |

bg
Junior Member
Member # 46416

posted

Yes, me too; I responded on your original post in medical, but this way all our names are in one post.

Yes, you ARE a very GIFTED writer; made me cry reading of you and your family experiences..uffda, a Norwegian expression!

Betty G.,Iowa

Posts: 1 | From US | Registered: Aug 2015 | IP: Logged |

sapphire101
LymeNet Contributor
Member # 6638

posted

I would love to so count me in, also. Great idea.

Sapphire

Posts: 495 | From KY USA | Registered: Dec 2004 | IP: Logged |

MADDOG
Frequent Contributor (1K+ posts)
Member # 18

posted

Hi, Should I include how many firehydrants I have nailed. AAAAAOOOOOOOOO! MADDOG

Posts: 4083 | From Ohio | Registered: Oct 2000 | IP: Logged |

GEDEN13
Frequent Contributor (1K+ posts)
Member # 4151

posted

my address is on here..i well help.got a story.will some fund's help lyme research? keep some for yourself..i know the expence...be well,,,gary

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Posts: 1108 | From PA. | Registered: Jun 2003 | IP: Logged |

robi
Frequent Contributor (1K+ posts)
Member # 5547

posted

I love to.

robi

Posts: 2503 | From here | Registered: Apr 2004 | IP: Logged |

slcd
LymeNet Contributor
Member # 5708

posted

Great idea! I'm in!

Posts: 415 | From Canton, GA United States | Registered: May 2004 | IP: Logged |

Biting Back
LymeNet Contributor
Member # 6018

posted

I'll keep you all posted and let you know when I get deeper into the planning stages. Currently thinking through the format, but please let me know your thoughts.

I'm trying to brainstorm a title. The title has to peak interest in the so-called CFIDS, fibromyalgia, MS and lupus patients. Just trying to figure out how to get EVERYONE to pick the book up and read it. Hmmmm. What books did I read along the way?

Betty and All:

Will include youngest to oldest; seemingly uncomplicated cases to the very seriously ill.

Ufda, is Norweigan? How 'bout oy, vay? My little Granny used to say that pretty often. Might be a Jewish phrase?

Yes, funds will definitely go to lyme research.

MADDOG, you're a fruit loop! Of course we'll include the hydrants!

Posts: 703 | From Almost Heaven | Registered: Aug 2004 | IP: Logged |

GEDEN13
Frequent Contributor (1K+ posts)
Member # 4151

posted

i also have fibro..funny though,same symtom's as lyme.lol..i do have to laugh.but is not funny....gary

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Posts: 1108 | From PA. | Registered: Jun 2003 | IP: Logged |

shazdancer
Frequent Contributor (1K+ posts)
Member # 1436

posted

Count me in!

Posts: 1558 | From the Berkshires | Registered: Jul 2001 | IP: Logged |

LymeLaura
LymeNet Contributor
Member # 6624

posted

I'd love to help!

Posts: 132 | From Kentucky | Registered: Dec 2004 | IP: Logged |

kam
Honored Contributor (10K+ posts)
Member # 3410

posted

I was wondering if you were going to call the book Biting Back when I first saw your post.

I, too, thought I would like to put a book together when I first came down with this.

But, then reality set in and it was not something I have been well enough to do the past 3 years.

So, I would be interested in doing what I can to help you.

Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002 | IP: Logged |

lymebrat
Frequent Contributor (1K+ posts)
Member # 3208

posted

I would too!

I wrote a poem about my experience with lyme and getting the correct diagnoses and treatment..and the devastation this disease caused me as a person, as well as my husband and children.

I would be honored to share it with others fighting this disease, as I think my poem is something they and their loved ones will be able to relate to..

Good luck in your new project!

~LymeBrat

Posts: 3154 | From NH , USA | Registered: Oct 2002 | IP: Logged |

DolphinLady
LymeNet Contributor
Member # 6275

posted

Great idea, count me in too. -D

Posts: 925 | From California | Registered: Sep 2004 | IP: Logged |

lemonylime
Member
Member # 5615

posted

Definitely! I already wrote my 6 page story for my LLMD! The whole experience gave me an unbelievable urge to express myself! I would love to contribute,, and I was fortunate to have a "happy ending" - I went from walking with difficulty to doing my best time ever in a marathon 10 months after my first abx. I shudder to think what might have happened if I hadn't found this site-which helped me find my doctor! Thanks everyone!

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Posts: 32 | From Tobyhanna, PA, USA | Registered: Apr 2004 | IP: Logged |

hatterasbit
Member
Member # 4573

posted

People {or Dr's} in my neck of the woods don't have a clue!
I'd be happy to help spread the word.

Dar

Posts: 39 | From seneca lake oh | Registered: Sep 2003 | IP: Logged |

PinchotGail
LymeNet Contributor
Member # 5066

posted

I would love to help by sharing my story as well as the rest of my family.......My husband was diagnosed next followed by our 2 daughters.

Great idea!!

Gail

Posts: 562 | From Wellsville, PA, USA | Registered: Jan 2004 | IP: Logged |

giftoflife
Member
Member # 6748

posted

Sounds like a great plan. Count me in. People need to know of this horrific disease and what not only the lyme sufferer but the family goes through.

Posts: 30 | From MA | Registered: Jan 2005 | IP: Logged |

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