Yes, I sent some info on the problems with lyme testing, in the hopes of demonstrating that the emphasis on one lab was misplaced. The response showed me that the outcome is predetermined and we will get just another hatchet job. Sorry, folks, keep sending your messages, but it doesn't look good to me at this point.

You people who sincerely believe that press on this subject might actually help us....please come back next week and comment after this story is printed.

Anyone who actually tried to find out the story on why the LUAT was dammed by Klempner could have easily learned that the samples were mishandled. It seems to me that some people here are bending over backwards to believe Steerites, when they do not offer the same opportunities to the people on the other side of the controversy. Guess it is easier to be on the side with all the power and money.

Lou.. You said..

"You people who sincerely believe that press on this subject might actually help us....please come back next week and comment after this story is printed."

I am not responding to you directly here. I am trying to use your reply to address the topic in general for others. You have already replied and helped.. as you always do. So... thanks for posing the idea here for me to address.

To those who want to know if your efforts will help...

To be honest.. I have NO clue.

Who knows what would help control the idiots and stop them from making a living destroying our lives like they have been for years... other than a 45 between the eyes. And since we all know that is illegal.. what else is there?

And no.. I don't always feel ANY old action should be done just to do SOMETHING. Not at all. Actions should be thought out, planned, and done with the best behind the scenes info in mind.. and to the best of our ability.

Will they always work? No. Of course not. It would be silly to think they would.

We are in a battle... or a war actually... with this being ONE of the battles. It is one we NEED to win to help save lives. The outcome here is important.. not just for IGexeX.. but for the entire process.

We are fighting many people who have no sense of pride, no dignity, no respect, no truth and fairness in their vocabulary, and no other thing in mind than their ownselves and/or money.

But.. we have been asked to help out with this situation by well respected folks, all volunteers who are TOTALLY dedicated to us and to finding us help... and those who have a MUCH better idea of what is going on behind the scenes than you or I ever will. This is their lives.. their whole lives.

And they have years of experience working on this stuff.. and an excellent track record to boot.

Sooooooooooooo...

Yes.. I can sit here all day and second guess them.. and in the early years I did.. but when I did.. in the end.. they were usually right... and my energy was wasted.

I have come to trust them after many experiences with them and I know their hearts. I have spent time with them personally (tto much if you ask them- HA) and I know their intentions.. which have always been honorable and ALWAYS with OUR best interests in mind.

Until someone can prove this will hurt the situation.. or until the nay-sayers (many just trolls) come up with a better plan instead of just cutting these posts to pieces for fun.. we should do what we can to help.

I would not feel right sitting around debating the topic at this point without offering a better solution... and while our efforts MIGHT actually make a positive difference.

They already plan to do this article. So IF.. and that is a big IF.. we can make a difference.. let's, at the least, TRY.

To sit back and do nothing is where the shame lies. To not act and let bad things happen to others without lifting a finger makes a person as guilty as the ones actually intending the harm.

Of course that is MY opinion.

One would expect that to happen. And if proven it could have knocked that klempner study right out of the ballpark so it would have benefitted Igenex and the Lyme community.

Why didn't igenex defend themselves? Just doesn't make sense and it sure looked suspicious. I was disappointed because I really used to believe in them. I've seen the lab director speak and he seemed really credible and on the up and up to me.

So I don't know who or what to believe anymore.

If you were talking about me? I sure wish I was on the side of money and power because then I'd have some instead of none.

But I'm not on any side except good care for all of us and good health.

I said I think this whole battle is a mistake about positive tests it should be about clinical diagnosis fuggedabout the tests they all stink.

I think it is a mistake to write to this reporter bashing him for a negative story that hasn't been written yet. Ho does anyone know what emphasis or angle a story will take? I'm not asking anyone to reveal a secret source. But I know a little about journalism and I sincerely doubt the informatin is accurate but I do think that some of the letters being sent are not going to help. More likely to produce a backlash and if the story was going to be positive, I doubt it will be now. If it was going to be negative, I think it will still be negative so I agree with you there.

I've seen a lot of stuff here about being divisive. Don't you think calling people who have any different opinion steerites or trolls is at least a little bit divisive? How do you know who's on the side of the angels here?

quote:

---

Originally posted by lou:
How can you tell which are trolls and which are just longwinded naive people?

Yes, I sent some info on the problems with lyme testing, in the hopes of demonstrating that the emphasis on one lab was misplaced. The response showed me that the outcome is predetermined and we will get just another hatchet job. Sorry, folks, keep sending your messages, but it doesn't look good to me at this point.

You people who sincerely believe that press on this subject might actually help us....please come back next week and comment after this story is printed.

Anyone who actually tried to find out the story on why the LUAT was dammed by Klempner could have easily learned that the samples were mishandled. It seems to me that some people here are bending over backwards to believe Steerites, when they do not offer the same opportunities to the people on the other side of the controversy. Guess it is easier to be on the side with all the power and money.

[This message has been edited by lou (edited 08 July 2005).]

---

It seems to me that we should assume that any reporter would at least like to create the appearance of writing a responsible article. How can he do that without hearing in depth from all sides before writing his article? Patients presenting the reporter with their stories are helping him do his homework.

In any case, the number of people who read follow-up letters are miniscule compared to those who see the article, and particularly the headline.

In fact, in my opinion, the worst damage to the public has been from NY Times headlines- which are not always supported by a close reading of the text. A prime example was their headline a few years ago stating that Lyme was hard to catch and easy to treat.

"AIDS LAB OVERDIAGNOSIS"
or
"AIDS, HARD TO CATCH, EASY TO TREAT"
or
"30 DAYS OF AIDS COCKTAIL CURES, AIDS SYMDROME AFTER THAT"
or
TOO MANY AIDS DIAGNOSIS HANDED OUT, REALLY HYPOCHONDRIACS"