posted
I was diagnosed with a relapse of Lyme and the main symptom I am having is the burning and pin prick sensations in my lower legs and feet. The pin prick pains are so bad, I cannot hardly stand it. What is the main relief? Hot baths, ice packs, meds? Anyone with ideas!
Posts: 8 | From Indiana | Registered: Jun 2006
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In retrospect, this was one of my early symptoms. I had recently moved to Florida, and I kept thinking bugs were biting my legs, but when I swatted at them and looked, nothing was there.
Our house has cement floors, and I thought I was just not used to the hardness. It helped to wear slippers instead of going barefoot. My feet ached so bad I walked saying ouch, ouch, ouch with every step.
I remember cold water baths for my feet, and wearing high socks seemed to help. I imagine this is from nerve involvement of some kind.
I sympathize. Maybe someone else will have some ideas.
Posts: 353 | From Florida boonies | Registered: Nov 2005
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or something in that drug class-really, sorry( but this too may pass)
for me it was the only thing within reason that helps with neuropathic pain,
(but I don't take very much but it helps with the pain--and I am assuming your are gettign tx so maybe that will eventually help too!)
best of luck, hopefully your doc will feel comfortable prescribing it or somehting that really helps
jif
oh a bunch of PSs
fyi -for me it does not take away weird sensation it just makes them hurt less, but i only take it at night
fyi-to all of you that read Scientific America (this is not a quiz to see if you udnerstand it, I thought it was getting more technical but now I realize it was me!)
there was good article on pain control in June's issue--basically stating TREAT PAIN WITH MEDS ASAP and then you are more likely to not get into a pain cycle. I don't really know how that goes along wiht Lyme but in my horrible experiences it is true. And the docs I initally saw, not understanding what was going on did not tx my pain for SO LONG! (treating pain) it does not slow the pace of my disease ( that was running rampant without dx) but getting pain under control--well brings the pain down and keeps it more in control.
I thought the article would be good to share with docs that are hesitant to help out with even a little pain management. neuropathic pain needs special care and the right drugs.
Posts: 208 | From Santa Fe | Registered: May 2006
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posted
I developed peripheral neuropathy from 3+ months of Flagyl. Started out with numbness on bottom of feet, then pins and needles. Followed by excruciating pain, worse than labor, like the crushing of all the bones in my feet, walking on red-hot coals, being stabbed with shards of broken glass, words cannot describe it.
Neuro put me on Lyrica, which is for neuropathic pain, and is said to be non-addictive. This stuff is great. Makes you a little drunk-like and sleepy, but really helps the pain.
Best of Luck! Jill
Posts: 203 | From Jacksonville, FLorida | Registered: Oct 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
quote:Originally posted by Jillybean: I developed peripheral neuropathy from 3+ months of Flagyl. Started out with numbness on bottom of feet, then pins and needles. Followed by excruciating pain, worse than labor, like the crushing of all the bones in my feet, walking on red-hot coals, being stabbed with shards of broken glass, words cannot describe it.
I just wanted to say I have never heard this sensation described more accurately.
I had this -- blessedly, only intermittently.
And weirdly, only in the sole of one foot. Go figure.
I had done six weeks of Flagyl in November and this walking-on-burning-coals thing developed several months later.
It was such a brief and unbelievable agony that I can't imagine anyone living with it daily.
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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posted
I hate to suggest this medication because I'm not sure why it even works but it wouldn't hurt to ask your doctor about it. A few years ago I was in a car wreck and my neurologist gave me an anti-seizure medication called Zonegran for the head pain. For some reason it got rid of all of the pain, burning and tingling in my limbs. I have no idea why but it's been amazing.
-------------------- Laura French Posts: 39 | From Bloomington, IN | Registered: Sep 2005
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