posted
Round Two-this time she stuck it in the vein right where my wrist bends near my thumb in my right arm. Kind of aches when I type too much.
But ,Stymie, I hope this cheers you up some. She drew blood separately from the left arm.
Here's a totally unrelated problem-there's birds nesting in the vent over the stove at the trailer. I can hear them. If I take the vent off I can just tell they'll be flying around the kitchen with two crazy dogs chasing them.
Maybe I'll post in off topic on this one. But I think it needs to be cleared before any eggs are laid.If I turn the fan on I'm afraid I'll chop one of their heads off-eeeewwww.
just don
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Member # 1129
posted
Hey Carol, You ARE making it,,,one day at a time,,,just like us,,,and YOU thought you couldnt do this,,,goes to SHOW ya!!!!
Your humor is refreshing,,,at least!! Sounds more like a rerun from my old life,,,except for the 999 day part. their is "ACTUALLY" an insurance company that would approve that long up front???
You are so lucky, think of all the others that arent!! Keep talking,,its music to my ears!!
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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lymemomtooo
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Take the air bubbles out if possible. lmt
Posts: 2360 | From SE PA | Registered: Mar 2004
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Geneal
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posted
Dear Carol,
How are you feeling? Are you herxing or just feeling better?
Maybe you could ask some of those ghosts to scare those birds away.......
I am glad you are doing well. Your humor and resiliance is fantastic!!!!
No bubbles allowed.....except IN the champagne!!!
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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Just read your story, you are hilarious have you every thought of writing a book?
Is nurse Karen related to Lucile Ball?
Hope everything goes well for you
Take care your friend Cassie
-------------------- Posts: 564 | From Toronto Ontario Canada | Registered: Jan 2002
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Cobweb
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posted
Thanks all-I was getting tired of talking to myself!
Truth about how I'm feeling??????Well, quite honestly my thought just before posting was "is this really worth it?" YIKES It's trying to understand the ole "why is it good to feel bad? question. Read my lips-H-E-R-X.
Thank goodness I know the routine. It's not the "I'm gonna die, I just know I'm gonna die" feeling, which I have had on a couple of other meds.
It's really just the body aches, thick head, I wanna go to bed-wake me up when this is over feeling.
Now I must admit, in her defense, Nurse K pronounces spirochetes very well, even if I can't spell it very well. And she warned me-just as Stymie, or was that Docdave, did that the second and third week could get a bit discouraging.
One of the perks is that I'm an aging hippie, and shooting drugs gives me this perverse pleasure. Like it takes me back to the good old days when I was young and wearing moccasins and beads and feeling the LOVE.
I actually just sold an old VW van. It was to the point the only place we could get parts was at the junk yard. My kids gave it new life for a while when I let them paint it with flowers and peace symbols.
They thought it was cool to ride around town in the hippie van. One day my oldest, just got her license, hormonal, never drove a stick,16 year old , got real mad when I wouldn't give her the keys to my car. "Fine", she said ,"I'll take the van !"
She got as far as my neighbor's front lawn. It was a rather humbling experience for her. But teenagers need to be humbled from time to time.
And I need to go to bed-my body has turned to lead.
I have found out a little bubbly in the line really is fine-then again maybe that's why I'm feeling a bit like an airhead at the moment.
bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
"Why is it good to feel bad?", she says.
That's what I keep asking myself.
I just got to the point in my life where I'm learning to be gentle on myself and give myself a break, and its back to "no pain no gain."
Like I want to get out my old Jane Fonda workout video. "Feel the burn!"
Say it again... Yeeeeeeouzah! Make it hurt so good!"
Sleep tight. Sweet dreams all.
bejoy
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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bettyg
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carol, had to read the latest of your escapades out there! yep, you haven't lost your humor ... good deal with us lymies here!
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Geneal
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Dear Carol,
I was hoping that you were maybe waving that old herx truck on by.
Maybe you can shave your head and pass out flowers on the corner? Or just draw a smiley face on your IV bag....
I am a child of the 60's too. I begged my parents to get one of those vans or at least a VW bug (original one). I am so jealous!!!
NO such luck. They purchased a Pontiac Catalina. That is the car that I was allowed to drive.
It became rather embarassing in my later teenage years.
Hoping your herx starts letting up soon.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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stymielymie
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hey man, go get a doobee and smoke it. it will make you feel better.\
shame you don't live at the old place .mj is cheap down there.
my dad had a head shop on the corner of falls and 39th? never smoked but good business.
the cops used to come in for supplies.
docdave Posts: 1820 | From Boone and Southport, NC | Registered: Sep 2006
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Cobweb
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Reminds me of a bumper sticker I saw the other day.
Geneal
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posted
Don't be doin any doobies, even if they are prescribed by a MD.
Did you hear about the lady with brain cancer in Ca?
They have decided to prosecute her for medicinal use of marijuana.
Too much government!!!!!
I don't condone the use of illegal drugs, but if you are in pain and dying, then who cares?
Obviously your government does. They really want to protect us from ourselves......and others.......but not ticks!!!!
Hope you are having a "groovy" day.
Peace.
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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Cobweb
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posted
I'm a genius!
The sock covering my IV, pure white, brand new to begin with, was getting a little grey-almost black. Thought that might be an indication I needed to take a shower soon. But how?
Then it hit me. Inspired by the Holy Crab. I could use the plastic sleeve covering the newspaper when it was delivered. Perfect length, size, even bright yellow-like crime scene tape-and the fact my lyme progressed to the point of needing IV is, in fact ,a crime.
Furthermore, I figured out I didn't have to cut out the lighthouse port hole on the shower curtain to stick my arm through if I held onto the curtain rod, not only was I able to keep my balance, but my arm was above the shower spray. TAAADAAAH.
Learning to use my left hand , thereby earning an honorary certificate in Ambitextriology was a real bonus.
Of course, sweat inside the makeshift plastic sleeve almost ruined the whole plan-but that just gave me a good excuse to make it quick. Next time maybe I'll put some holes into it so it can "breathe".
This Rocephin must be working- I'm getting smarter by the day!
Too bad I don't get the daily paper. Well Washed for now, Webby
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just don
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Hmmmm, you even smell puuuurty,,,from here!!
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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Cobweb
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Gosh JD-I'm blushing-as I'm flushing-Heparin that is. thanks. Cobweb
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Cobweb
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posted
I would only admit this on lymenet. I put dayglo cling-on snowflakes on my picture window. Big ones-about 4 inches in diameter. Why?
So the paramedics would be able to identify my apartment in case of an emergency. How's that for thinking ahead-as I gasp into the phone-"I've fallen-and I don't know which way is up"
I think it's especially clever since they glow in the dark,too.- Why aren't they called "nightglo" instead of dayglo.
Anyway- don't believe what they say about no two snowflakes are alike. I have ten of them and they are ALL identical.
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posted
How come no one told me this thread was here, causing people to LAUGH?? I LOVE laughing at the expense of others! Just kidding!!
Yes, I agree. I hope you have a little talk with NK. Tell her that because your immune system is so compromised, you're really concerned about germs.
And...I didn't know you were an old hippie!! GROOVY indeed!! I grew up during that time, but I was a dismal excuse for a hippie.
Never wore the peace symbol, never smoked a joint, never streaked on a college campus, didn't even play a kazoo!
Gosh, the things I missed!!
I did, however, wear cut off ragged jean shorts and had VERY long straight hair during college. Had to LOOK like I fit in!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Cobweb
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When Nurse K asked me how I was feeling and I answered "I feel like I'm going to die, and I don't care." she said "Good, it means your treatment is working!"
She also told me I have "little squiggly" veins. Is that a real medical term-squiggly?" What does it mean? I looked it up in the Merck Manual but I couldn't find it. She told me it's because I don't excersize enough.
I asked her if there was a portable IV pole so I could go play tennis with Stymie. She told me that's why mine has wheels.
It's a heavy mother. It's even hard for me to drag to the kitchen for some more chocolate sauce on my ice cream (for Betty G) or another root beer float (for JD )or another ounce of Xango :lick (for Tutu)or stirfry tofu (for Bejoy).
I will say-all those trips to the kitchen have given me more "coverage" for a quick warmup of the Rocephin. Isn't that right Geneal?
This time she stuck me in the vein that pops out on the thumb side of your wrist, well, my wrist, at least. The infusion kept stopping whenever I moved my hand. Nurse K told me to get a popsicle stick to stabalize it. Now how am I going to keep the tape dry with a popsicle taped to my wrist?
She said next time she was going to bring a board. Oh no! Was I dreaming again? I immediately pictured a white pine 2x4 about 8 feet long to whack me over the head with because of my "little squiggly" veins.
And yes, Cavey, I did pull out my poetic license for the part about dragging my pole to the kitchen. I can't even stand up from my couch without rocking back and forth to gain momentum. Even then I need a two handed push off. Too much co-ordination necessary. It has to be timed just right for lift off or I just fall back onto the couch.
Geneal
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posted
Dear Carol,
Trust me I could warm that bag of antibiotics lickety-split!!!!!!
You need to get one of those wheel chairs with the IV pole attached.
We could nickname you "Hot Wheels"!!!!
Seriously though, I am sorry you are not feeling well. Strange disease where the cure is worse than the illness!!!!
I have to tell myself that every time I feel like death warmed over.....it's working, it's working, .....I'm dying, I'm dying,.......Oh Wait...
The ketes are dying, the ketes are dying.......
I had a funny reminder yesterday that I still have a long way to go.
Trying to get LLMD's office to fax me a Rx for my husbands Igenex test (which I am sending out today).
Home phone line is same as fax line. Have to d/c the phone line, hook up the fax.
I had maybe 2 minutes to get this done (Something I have done hundreds of times).
Sat in front of that fax machine with one of those "deer caught in the headlights" expressions.
Couldn't for the life of me remember how to do it.
I knew that I knew how to do this. Tried to find the right place to stick the phone jack in.
Searched frantically all over that fax machine.
Just as the phone was ringing, it came to me.
I feel like a Lyme version of Dumb and Dumber, but I had to laugh.
Make sure you get to eat the popsicle so you have a fresh stick to tape to your hand!!!!
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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Cobweb
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posted
"I'm dying, I'm dying,.......Oh Wait...
The ketes are dying, the ketes are dying......."
Good take on the situation ,Geneal. Thanks
Tomorrow's the first day of Spring, time for me to come out of my Groundhog Burrow-but I don't know where to go.
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bettyg
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posted
carol, just come here; we'll take you and your wonderful sense of humor just as you are!
what a witty post above; you included as many of us as you could in those kitchen treats; didn't you?
hope you get to feeling better soon!
my friend who just died 1 month ago would have been 100 tomorrow! we'd been playing dominos for 5-7 years; what a sweetheart she was! take care carol; WE LOVE YOU AS YOU ARE!
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sometimesdilly
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posted
hey cobby-
checking in after some long stretch. is see that that you are doing IV's and that it is good. skipped through the feeling bad parts of the story, because i'm determined that it have a happy ending.
hate to tell you, but you're no wooz. doing the iv thing. boldy. being funny.
if i were corrigible i'd be inspired.
as it is, i'm off to have another rum and coke and not take ANY MEDS, again, two weeks in a row.
love, the fallen DILLY
PS- BettyG- are you still scheduled for surgury???
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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bettyg
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dilly,
yes, i go at 1 pm TODAY for my pre-surgery physical, EKG, chest xray, blood/urine tests.
monday, march 26, i'm admited at 1030 am; SURGERY AT NOON to replace my left hip!! wow, it's been a long 7 weeks since i got this originally scheduled, and had to cancel 3 weeks ago to a bad case of the FLU.
finally started doing my mandatory leg/hip exercises yesterday; couldn't before this..so much pain and could barely walk.
thanks for asking; i'll post a reminder on sunday 3-25; then i'm off for 7 plus days!!
LYME WITHDRAWL! i'm going to miss you all!
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Cobweb
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Betty- I have marked my calendar again. I am greatly interested in hearing of your experience because I have a bad hip too.
Aren't we too young for hip replacements-I mean my mother didn't have hers until she was in her 80's.
Will you go to a rehab center afterwards for a short while ? In this day and age they ought to have computers available in rehabs.
posted
Dilly-What you talking about? another rum and coke and no meds! Sounds like you're cruisin' for a bruisin'. Even I know that rum and coke has a high sugar content. Hope you're pulling my leg.
BTW- did you ever tell us how your son did after his harrowing trip to vomitville? I assume he's recovered.
I'm still curious-why the detour for you without meds? Carol
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sometimesdilly
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hey cobs-
i like your funny thread just as it is.
dilly
[ 21. March 2007, 07:34 PM: Message edited by: sometimesdilly ]
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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CaliforniaLyme
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posted
Emergency SNOWFLAKES*!)*~!)~!*)*!)!!!!!!!!
That was beautiful, enjoyed this thread a lot!!! Missed it first time around*)!!!! Glad you are doing well with it!!! Sincerely, Sarah in CA
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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Cobweb
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posted
I crapped in my pants during this morning's infusion.
It was a real dilemma for me. Here I was, sitting on the couch, minding my own med charts and hanging in there when the first sensation hit.
I quickly looked up at the bag to see how much more drip time I had left. Too much, but somehow the idea of continuing the infusion in the bathroom, sitting next to a ginea pig cage, eyeball to eyeball with Stinky, just didn't seem like the wisest idea.
So I just sat there, thinking of options, hoping maybe, it was a false alarm. The next indication I might be in trouble soon followed. So I did my rock and roll routine to get off the couch and made a mad dash to the computer chair five feet away, knocking over the trash can with the IV pole.
I thought maybe the "sit on it" method would work to hold things back. The computer chair after all is a hard surface. I know it works when I have to pee real bad.
Ever fart in reverse? If you have then you know what I'm talking about. This was getting serious. I tried logging onto Lymenet hoping perhaps the mental diversion would also distract the signals my gut was sending forth.
The bathroom seemed like it was far enough away to be in a another county. Besides ,I eyeballed the path to the bathroom through the unpacked boxes and just knew the base of this antiquated gigantic IV pole wasn't going to fit-even if it was on wheels.
I looked at the bag again and made an executive decision. It was close enough for me to stop the infusion and go for the throne.But remember- I am not a multi tasker, so concentrating on squeezing my butt cheeks while also concentrating on doing the Heparin was not a reasonable expectation.
As soon as I stood up all those reverse farts headed for the Exit at the same time. Like they were in a race to be first in line. So began a serious smear campaign. You win some, you lose some.
Other than that-I'm a genius. TWO socks and a spoon to stabalize my wrist. Popsicle sticks were too messy. But I realized that a plastic spoon, which is even scooped at one end to fit better in the palm of my hand, does the trick.
First pull on one sock to contain tubing. Did you know that's why they're called Tube Socks???? Lick leftovers off spoon, or let the dog clean it. Lay clean spoon on underside of wrist with scoop in palm of hand. Pull on second sock to anchor spoon.
If you can bend your wrist then you're too cheap and need to upgrade your brand of plastic utensils. Nurse K will be so proud of me.
LLMD wants me to stay on the Rocephin for another month. For some reason she seems to think I still have lyme brain.
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Cobby, If you have to walk to the bathroom with the IV, pick up the bag with your free hand, walk to the bathroom, and hang the bag on a hook.
If you don't have a hook in the bathroom, can you use the knob on the medicine cabinet? Or ask someone to buy you one of those self-stick hooks from the drugstore, and stick it on the wall.
I think you need to be prepared for any contingency, as you said you have 999 days allowed.
Carol
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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Cobweb
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Carol in PA-WHY DIDN'T I THINK OF THAT? I had to laugh out loud when I read your suggestion because it was so obvious-and I think I'm so smart-and it NEVER occurred to me that I could slip the bag off the pole and rehang it in the bathroom. DUH.
One of the other contigincies that went through my smooth brain was "what if there was a fire?." and I pictured myself trying to crawl through a window dragging the pole with me.
I actually took up a great deal of head space yesterday trying to figure out how I could make my own lightweight portable pole- say with PVC pipe.
Carol in PA-your simple suggestion was a mega watts "lightbulb going off" moment. and I do thank you. Sincerely- even if I am feeling a bit humbled right now.
This has to be the funniest line of posts i've seen on here for a long time!
My bet is you will get through this just fine with this kind of sense of humor.
BTW, ceftin and ketek, not rocephin, were the ones that made me hellherx. I think it has to do with your bacterial load, and where the darn things are hiding.
One bit of advice if you REALLY get sick (I developed neuro symptoms, major cognitive symptoms, and pain level 10 caused by treatment, lasting a good 9 months): do whatever you can to be kind to yourself, take care of yourself, including pain management.
-------------------- Jeff Posts: 533 | From CA | Registered: Mar 2006
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Cobweb
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Speaking of pain levels- actual conversation with Nurse K:
NK- What's your level of pain?
C- 10
NK-You can't be a 10.
C- But I always wanted to be a 10-like Bo Derek.
NK-You can't be a 10, that's the worst level of pain there is.
C- So if I'm at 10, it couldn't get any worse?
NK- Yeah
C- Then I'm sticking with 10- I don't want it to get any worse.
NK- How about 8 ?
C- I'll say 7. (I was thinking of that moment in childbirth when I was screaming for an epidural)
NK- But I told you last time I was here I didn't want you going above 5.
C- Would you make up your mind-this is beginning to sound like an auction. BIDDA BIDDA BIDDA-do I hear....4 calling birds, 3 French hens, 2 turtle doves, and a spirochete in a lyme brain.
Next time she comes she'll probably just show me that chart of graemlins and have me pick one. or
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Geneal
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Dear Carol,
You almost made me crap in my pants reading your posts.
Maybe we can just multi-braid your hair so you look like Bo Derek.
I am sorry you are still in such pain.
Every time I have an LLMD appt. I get asked the same questions (ie pain, fatigue, etc).
I am to assign a number to each question the nurse asks.
One is the worst and ten is the best.
I never know where to rate it. I want half numbers like 4 and one half.
Really confuse your nurse next time, tell her your pain is a 9.5 on the Lyme Richter Scale.
Thank you so much for the laughs. I always look forward to seeing what you have
written and how you are doing.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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bejoy
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posted
I think I can, I think I can, I think I can...
bejoy
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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Cobweb
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posted
I'm going to stick my tongue out at Nurse K when she gets here today.
My mouth really hurts. Feels like my tongue is scalded and it's painful to eat . Food tastes like cardboard-corrugated cardboard.
I've been sticking my tongue out at myself all weekend trying to figure out the problem. It doesn't look hairy. It's not coated in white. It is GROOVY, but that may just be a retro effect from the 60's.
Maybe we can stick our tongues out at each other to make a comparison.
Bottom line- I could't even finish a piece of German Chocolate Cake with homemade coconut frosting from the church bake sale on Sat. I took two bites and threw the rest away-my mouth hurt so much. Same with pizza. Even when I tried to eat something healthy-like a rice cake with Almond butter it hurt. Like the main ingredient was ground glass.
Anybody want to take a stab at what her diagnosis might be? Remember this is Nurse K.
posted
Nurse K had no idea why my mouth hurt so much, although she did say the loss of taste was probably from the anti-biotics. She wasn't interested in looking at my tongue, but I did get her to stick hers out! Mine's groovier.
Then she went on to practice some sort of voodoo. She stuck me four times without success. Trust me-this was NOT acupuncture . It caused more pain, not less.
So now I'm waiting for Nurse Backup to come.
Nurse K hurt more than my arms-she hurt my feelings,too. I made this great portable IV pole from PVC pipe-cost of materials $3.00. It disassembles easily, is lightweight and original.
I was so proud. When I showed it off to Nurse K, she flicked her hand and said "you don't need all that-just use a hanger" I was crushed. But it did make me feel 40 years younger-like when I was in elementary school and my mother didn't hang my drawings on the fridge.
I think I'll go tuck it back in the bedroom before Nurse B arrives. Maybe I can get her to stick her tongue out,too.
stymielymie
Frequent Contributor (1K+ posts)
Member # 10044
posted
my sincere oppinion is that if you see a longer cylindrical object and NK say bend over. please, please kick her in the knees for me!!!!
her is how the session should go!! nk: god morning you look well today. c: grrrr, yaah i feel marvelous. nk: where would you like your iv today c:in my arm nk: boy your grouchy today. c: you'd be grouchy too if you had 995 days left of iv treatment. nk: roll up you sleeve c: it is up nk:now lets see if we can find a spot thats not all black and blue. c: one more bad needle and you'll be black and blue. nk:now lets see is it the heparin first or the saline. i'll just pick one she won't know the diffence. c:nk you gave me the heparin first , the saline goes first. nk: nah they changed the protocol last week. c: i'm going to change your protocol in 2 minutes. nk:see you tommorow. c: god i sure hope she goes on vacation.
docdave
nk
Posts: 1820 | From Boone and Southport, NC | Registered: Sep 2006
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Cobweb
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posted
Thanks Doc-that was funny. and I needed a good laugh .
Nurse B arrived. She was wearing jeans ,a blue denim shirt and boots. Upon first impressions I almost said-"you must be Nurse Butch".
However, since she was about to stick me, I decided to stick her with "You look like the outdoorsy type-how have you avoided Lyme Disease". I elected not to bring up the tongue issue,too.
She said she's had it 3 times!!!!!She told me she always got treated right away so there was never any problems.(say what?) At this point I lost my nerve and didn't ask for how long ? I was just hoping the ketes hadn't made it to her brain yet.
Come to think of it though- she was a little OCD. She said she really liked sticking it to people all day, like she was addicted-it's what she does. She said she wouldn't take it personally though if I decided to have the blood draw at a lab, and just get the IV today.
She may like the outdoors-but I am not a happy camper today. I'm beginning to think seriously about a PICC line if this is going to go on much longer.
Geneal
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Member # 10375
posted
Dear Carol,
Ouch, ouch, ouch and ouch! Too many sticks in one day.
Found burning mouth syndrome on the internet. It also causes change in taste also.
If you get a chance to look it up, see if that describes your tongue and mouth.
I'd look it up, but my kids just ran outside (unchaperoned).
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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stymielymie
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Member # 10044
posted
cobbbbbbby: only 994 days left of abx. maybe you should consider a picc line????? don't decide at 3 days left
994/356=2.8 years left of abx now would be a good time for a picK (picc) don't left your nurse butchers do it.
docdave Posts: 1820 | From Boone and Southport, NC | Registered: Sep 2006
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bejoy
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Member # 11129
posted
I get burning mouth when I have candida or when I'm too acid. If its acid, it goes away when I torture myself by drinking a glass of water with baking soda in it.
I say you win the art project prize!
bejoy
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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Cobweb
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posted
for my buddies.
I did go surfing for Burning Mouth Syndrome-and it all fits.You might not want to read it Bejoy .Interesting that it's linked to post menopause since this month is one year anniversay for my total hysterectomy.
I will try the baking soda rinse-but not today-enough is enough. I bought a peroxide oral rinse yesterday-torture.
posted
You know what Cob? As I am now, at least for now, on the other side of the pain stuff, like a 2-3, I think I was a 9 10 and underestimated it and undertreated it.
Bad news about IV Rocephin: My daughter just got gallstones. It's off to the surgeon to see if he/she has to take it out. Geez. That poor kid.
And what am I supposed to do? I got 3 more months of rocephin I already paid for. I'm either getting off of it or getting on actigal. We are seeing LLMD tomorrow. I love her. But I'm gonna shake my head very disapprovingly . . . her opinion was that none of her rocephin patients ever got gallstones. And what does the research say? 2-3% BUT that's not long term rocephin users.
-------------------- Jeff Posts: 533 | From CA | Registered: Mar 2006
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Cobweb
Unregistered
posted
Hi Jeff- I started 300mg Ursodiol(generic Actigall) 2x daily when I started the Rocephin. I was kind of looking forward to some morphine with a jello chaser if they had to yank the gallbladder.
But I sincerely hope your daughter is all right.
You talked of the odds of developing gallstones with Rocephin. Wonder what the odds are of getting bit by an infected tick?
Wish my luck was as good at playing the lottery! Carol for the kid!
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Dear Carol,
Sorry I didn't have time to provide the link, but glad you found some info on burning mouth
syndrome. Did you see where it is linked to possible disturbances of several cranial nerves?
Maybe this is part of a herx.....
Hoping you get some relief. Warm salt water is also a good to swish around.
In the meantime, I guess this means you can only drink things like ice-cream floats, shakes and stuff.....
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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almost 3 yrs! that's progress! bst wishes for a LONG life with us lymies! you can't leave us! ![[Mad]](mad.gif)
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