posted
I am sure other's can empathize with my frustration.
I have been on Doxycycline for almost 2 months now. Two weeks ago, I felt 2 million times better than I had felt in years.
Even my dr said I looked great and he could see I felt great.
Well...the past three days, I have been feeling how I felt two months ago.
I start Gamma Globulin treatments next week...for the neuropothies caused by the Lyme.
I am trying to remain positive, but feeling so bad again brings back the onslaught of feelings of helplessness and feeling like a waste of space.
I see my endo and LLMD today and my internist tomo. My fear is when I went camping over Labor day weekend, I got reinfected or something.
I had finally gotten the motivation and physical strength to work out again - as I had gained a tremendous amount of weight over the past months from being lethargic.
I guess depression comes with the Lyme. I guess I am just looking for some words of encouragement, as I have been unable to work out the past 4 days and getting out of bed and even walking seems like i'm running a 26k marathon.
Best wishes to everybody! Contessa
Posts: 9 | From Oakland, NJ | Registered: Jul 2007
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posted
I think the fact that you had a spell of feeling good is a very good sign. I'm thinking it shows that the antibiotics are working and you are likely in a herx now. Many people don't show such an improvement in such a short period of time....to be able to work out is amazing!
It's frustrating because you can't help but think "oh no, here we go again. Thought I was past this" but you just have some more bugs to kill and you'll be feeling decent again before you know it!!
Posts: 561 | From mass | Registered: Jul 2007
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quote:Originally posted by contessa420: I am sure other's can empathize with my frustration.
I have been on Doxycycline for almost 2 months now. Two weeks ago, I felt 2 million times better than I had felt in years.
Even my dr said I looked great and he could see I felt great.
Well...the past three days, I have been feeling how I felt two months ago.
I start Gamma Globulin treatments next week...for the neuropothies caused by the Lyme.
I am trying to remain positive, but feeling so bad again brings back the onslaught of feelings of helplessness and feeling like a waste of space.
I see my endo and LLMD today and my internist tomo. My fear is when I went camping over Labor day weekend, I got reinfected or something.
I had finally gotten the motivation and physical strength to work out again - as I had gained a tremendous amount of weight over the past months from being lethargic.
I guess depression comes with the Lyme. I guess I am just looking for some words of encouragement, as I have been unable to work out the past 4 days and getting out of bed and even walking seems like i'm running a 26k marathon.
Best wishes to everybody! Contessa
Hi this is Jane, I have had Lyme for over a year now, ifn ot longer. I too have had a day or two of feeling less brain fogged and even did the dishes, for the first time in 9 months. I'm on Doxyclyline for 3 months and Ceftin for 2 months now. I am also getting worse, and never really got better. I feel I need a wheelchair but my husband is fighting we on this. He too does not understand my disability. This disease is a nightmare, and I feel like not living alot of days
-------------------- Diagnosed with Lyme (Finally) June 2007 Posts: 3 | From Connecticut, USA | Registered: Sep 2007
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posted
Depending on your immune system, how long you've had Lyme, and the presence of coinfections, you could be in for a long ordeal! It took me more than two years to nail the Lyme and co-infections; I was one sick pup! You're lucky you found the LymeNet board so quick! Make use of it; its an incredibly good resource.
So get ready for a long fight, but you have to keep fighting every day! It's an exhausting illness to get over. That said, I of course hope you are a statistical outlier and recover within weeks! Best Wishes, DaveS
Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I am coming up on my one year of antibiotic treatment mark.
Back on doxy, which I haven't been on since Dec of last year while my LLMD was addressing co-infections.
It really packs a punch the second time around! Ouch!!!
Hang in there.
It's great you had some really good days in there.
Kind of seems like a tease though.
Eventually, there will be more and more good days and less bad.
Just come here for support. We are always here for you.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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