-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
BIG TIME SUCKS!!!!
feelfit Posts: 3975 | From usa | Registered: Aug 2007
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
I agree...
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
amen. it DOES suck. big time. you're not alone.
The public perseption of lyme is what really truely stinks!!
Most people think they can be cured with the current guidelines and that really sucks.
Julia
-------------------- Please consult your LLMD before making any changes to your treatment regimen. Posts: 641 | From NJ, USA | Registered: Oct 2001
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
I know, this sucks bigtime!
Posts: 2557 | From home | Registered: Aug 2006
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Here's a song that I just heard on the radio. Just imagine the guy as Lyme...and the Way the World Goes 'Round as our roller-coaster Lyme ride/existance!
That's the Way that the World Goes 'Round � John Prine I know a guy that's got a lot to lose. He's a pretty nice fellow but he's kind of confused. He's got muscles in his head that ain't never been used. Thinks he own half of this town. Starts drinking heavy, gets a big red nose. Beats his old lady with a rubber hose, then he takes her out to dinner and buys her new clothes. That's the way that the world goes 'round. That's the way that the world goes 'round. You're up one day and the next you're down. It's half an inch of water and you think you're gonna drown. That's the way that the world goes 'round. I was sitting in the bathtub counting my toes, when the radiator broke, water all froze. I got stuck in the ice without my clothes, naked as the eyes of a clown. I was crying ice cubes hoping I'd croak, when the sun come through the window, the ice all broke I stood up and laughed thought it was a joke That's the way that the world goes 'round.
Hugs,
wiserforit
Posts: 508 | From Banks of the Hudson | Registered: Jul 2006
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posted
thanks all for validating that i'm not the only one struggling. i have been relapsing, need to go the llmd, not going to happen soon.
the day i wrote this post i fell down the stairs eneded up in the hospital ER. went into shock, bruised the tailbone, ripped my shoulder, broke my finger, etc. My giant rear turned into a giant hematoma of the most colorful i have ever seen. then got an embolism from the traveling clot.
shoulder still hurts and its getting to where i can't raise arm so i am sure i ripped something and need to go to the duck. er duck only xrayed viibly purple finger and tailbone, not shoulder, so i don't know what is going on there.
oh did i mention my daughter got reinfected this summer with another tick on her head? local duck gave her a couple wks doxy is all and she needs more but we took what wse could get at the time. i am out or i would have given her some of mine.
and this week my son was home sick (also has lyme) and the principal wants to have a meeting to update the plan for my daughter. i had to miss it because i was giving son breathing neb treatments every 4 hrs and couldn't leave him home with husband scared of a wheezer.
i really really need to go see someone. i wish they made housecalls, ykwim?
calgon take me away. ohthis burning shoulder go away!! i do not want to have surgery!
Blah blah blah thanks for letting em vent
ima whiner
-------------------- **Eat Chocolate** Posts: 942 | From USA | Registered: Mar 2005
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posted
You're not a whiner - you're having a hard time! ouch. I hope you can get the medical care you need soon.
Posts: 13116 | From San Francisco | Registered: May 2006
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
ima, I'm so sorry that you're going though such crap.
Carol
[ 08. September 2008, 03:21 AM: Message edited by: Carol in PA ]
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Oh Ima, we need to compare hematoma photos. I feel down the stairs a year ago and think MINE was the worst ever
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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I'm having a momenmentrary lapse of sleeep but I just thought I'd share with my friends out there that the book 90 minutes in heaven might be an encouragement- boy and I thought I was in pain. This guy was actually dead from a semi rolling over his car for 90 minutes before he came back to all that pain. Hope it inspires you like it has me. It's really a breath of fresh air when you feel like you are in just too much pain!
Then I saw McCain unable to move his arms hardly at all after being a POW with two broken arms and a brokien leg and no one to help him.
Wow, It's good to know we'll get through it eventually.
-------------------- RV Posts: 249 | From Healing in USA | Registered: Mar 2005
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