posted
I would really appreciate anyones input on this.
I was recently told by my llmd that I need to go on mepron, zithro and artemesinin for a babs test result that is inconclusive. My ins wont pay unless there is a very positive bld smear.
With that and all of the supp's, bld tests, etc it is going to be around $8,ooo for the first 5 months. I priced things through canada pharmacy online.
My husband and I can do that with savings, but then she said if it doesnt work, we will go to iv.
This is all to treat the babs, then after I still have to treat the lyme!
There is no guarantee that this will even work. If we start off with this, we cant afford to go on and do any more treatment.
I was bit by a tick when I was 8 yr old. Had lots of symptoms, no lyme test. I am now 37.
Has it hoestly been too long to realistically expect a cure with antibiotics?
We have 3 kids and I hate to spend every penny on this when I feel like it's a gamble (not much of a gambler... never even bought a lotto ticket:).
does anyone know of a cheaper place for meds?
Has anyone heard of someone having it this long and getting better?
Is there some way to "make" a test come back positive with supp., antibiotic manipulation?
Thanks, Christine
[ 03-13-2009, 12:24 PM: Message edited by: CAGCLEC ]
Posts: 10 | From Clovis, CA | Registered: Nov 2008
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bettyg
Unregistered
posted
christine,
i'd copy/paste your post to MEDICAL where you will get more reading/replying.
also look at top of forum about financial aspects and suggestions ok!!
also look thru my newbie package links, table of contents, for FINANCIAL BURDENS info pages 72-92 give/take.
then just delete this one, so you can have all replies in one post.
click on pencil to right of your name. go to top left corner click delete post; hit enter, and it's gone.
ignore moderator's comments; you posted this and can delete anytime including if it has replies like this one.
if you have a DUPLICATE POST elsewhere, please copy all replies and paste them to the other post so the person's efforts are not wasted; big thanks!
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hey hey C A...
You said.. "I was recently told by my llmd that I need to go on mepron, zithro and artemesinin for a babs test result that is inconclusive."
Is that like being a little bit pregnant?
I will assume you have a good LLMD? If so, I would take his/her advise. And do remember, it isn't the LLMD's fault this is happening. They are trying to help.
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You said.. "This is all to treat the babs, then after I still have to treat the lyme! There is no guarantee that this will even work."
I agree. Lyme disease sucks.
And so do the IDIOTS who let you go this far without help.
None of us got a guarantee when we started treatment either. There isn't such a thing.
It doesn't seem fair.
The only thing you and your LLMD can do is try to make you feel better the best way we know how.
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You said... "My ins wont pay unless there is a very positive bld smear."
You need to fight them. Roll up your sleeves and go at it. If they can do this to you.. they can and WILL do it to others... like your kids. Fight for THEM.
And I can't tell you what to spend your money on.. and wouldn't try.
But I can say if you have babs and Lyme and it isn't treated...
You will only get worse.
I am so sorry you are in such a dither. I hope and pary you will feel better some day ... and soon.
posted
Did you move this to Medical?? I didn't see it there....??
If you'll go to Medical .. click on the FIRST topic. It's all about being able to obtain meds when you can't afford them.
Also.. yes, you can make the next test (Igenex) more likely to show positive if you'll take antibiotics for 3 weeks, then go off for at least 2 wks .. then retest.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I recall another person posting about the same obstacle.
Hopefully, they will come along and let you know where they were able to get the mepron.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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