posted
Hey I've had lyme for 3 years (I'm 22) and was misdiagnosed with MS for 2 and a half. I've been on antibotics for 5 months and it's been pure hell. I just got on Rocephin yesterday so I'm hoping things get a lot better soon.
Bur, my question has been something that's been bothering me. I find it hard to trust anyone after these 3 years of doctors not listening to me and telling me I had MS and to just deal with it. I blame these doctors, but I guess I shouldn't. Out of everything I just feel alone. I hear people complaining about little stupid things and I get so disgusted. I feel like I'm so tainted and out of touch with everyone. Does this pass with time? Thanks, Diana
-------------------- Fighter Posts: 24 | From smithtown, ny | Registered: Jan 2009
| IP: Logged |
bettyg
Unregistered
posted
welcome diana!
i understand your distrust of drs!! took 40-50 to get me correctly diagnosed, and i was the one pursuing this new unknown illness!
but once i saw the list of 300 OTHER DISEASES LYME MIMICKS, it help me to curb my anger towards all these drs. who DIDN'T PURSUE LYME!
look in medical for the 300 other illnesses in the subject line; i brought it up today; save that somewhere in your home pc files, and look at it off and on the various things they told you had including MS.
some folks are lyme & ms; others are just misdiagnosed ... it's LYME...NOT MS! many on this board, so you can learn from them.
you could go to top and click on search
type in MS and lyme medical subject line any date leave membership no. blank; hit send
read all posts/replies; you will learn a lot! ***********************************************
I hear people complaining about little stupid things and I get so disgusted. I feel like I'm so tainted and out of touch with everyone. Does this pass with time?
does this pass with time; depends on YOUR perception and how YOU CHOSE to have your illness.
are you going to let it CONTROL IT; or are you going to try to control it within the means of the llmd's guidance you get?
stay away from negative folks; they drain you; cut the ties to those folks even if it's family; they're dragging you to the bottom.
if they can't support and love you; it's THEIR LOSS!
i don't know if this answers your question or not.
me, 39 yrs. chronic lyme; 34.5 yrs./ misdiagnosed by 40-50 drs! lyme took the best years of my life.
my husband has NEVER known me healthy & in oct we celebrate 35 years together!
IP: Logged |
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
I think as long as your sick the feeling will last.
Posts: 743 | From New York | Registered: Apr 2009
| IP: Logged |
dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
Feel the same way...really annoyed at those who whine & complain. Except w/lyme, cancer, horrible crime victims, etc. - they've already and are going through personal hell.
I was 17yrs labled MS before getting proper test and diagnosis. Thank God I thought the neuros & doctors were wrong & didn't do what the tradtional MS treatments are.
You will begin to get the patience with others. Your priorities will /or have already changed. You'll only trust LL doctors & won't put up with garbage from others doctors.
You will get better & find your sense of self again. You are already on your way.
Posts: 2675 | From ct, usa | Registered: Jan 2004
| IP: Logged |
posted
While those who complain or perhaps don't take their health serious do grate on me...i prefer to internalize and channel anything negative into a positive.
Take pride in your strength and don't dwell on the weakness of others. There are important lessons to be learned with this disease. The minute we complian about others we become like them....show everyone how tough you are and use every minute of every day to fight this.
Those people were always there and some of us were those people before we got sick. If the sun comes up everday the rest is gravy. At some point everyone learns this lesson...most learn it too late in life to leverage it. Not the case for us however.
Keep the Faith,
Dave
-------------------- On my journey to wellness - One day at a time. Posts: 989 | From NJ | Registered: Sep 2008
| IP: Logged |
posted
Diana, I'm 23 and was misdiagnosed with chronic fatigue syndrome and fibromyalgia for 10 years before finding out last year that it's been Lyme all along. I saw so many doctors in between.
The process teaches you a lot- to be a good advocate for yourself, to do your own research, and also just how very tough you are.
It is so frustrating to hear others whine about their little things that seem so insignificant compared to what we deal with every day. It drives me nuts when my husband complains that he's tired (after staying up until 2 AM)! But take your energy and focus it on something else. You learn with time how to channel your time and energy to the things and people that care, understand you and will be sensitive to your circumstances.
Take care, soleil16
Posts: 236 | From Washington | Registered: Jul 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
![[Big Grin]](biggrin.gif)
Printer-friendly view of this topic