posted
Hi all, so I'm new to the forum, not to lyme. Tested positively 5 times, treated 4. Bummer about that non treated time. I'm 20 and have also been diagnosed as bipolar, which apparently now could be a result of lyme as well who really knows. But one of the ways I used to keep myself steady and "sane" if you will, was to run. I would run 3-4 miles a day 4-5 times a week. I have been re-diagnosed with lyme again since late august with joint pain and fatigue and headaches and all that loveliness and can't run. I think I might go insane. I feel weak, so weak. And so much more depressed because I basically had to cut physical activity and am reduced to bedridden whenever I am not in class (i am a college student as well) I am really loosing steam. I figure I do need to stay positive and I am trying but my doxy isn't working. My stats aren't lowering. And school is getting increasingly hard when I wake up in pain and can't go to class. I basically feel pretty useless right now. The past times I had lyme I was pretty young so I was content watching cartoons in bed, not so much anymore. does anyone have any advice? because I am mentally rapidly falling apart.
thanks
maddie
Posts: 4 | From Burlington Vermont | Registered: Oct 2009
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Welcome! I have a question for you- when you say you were treated 4 times- how long were you treated for? If you were only treated for a month, it's possible you could have the same infection you had the first time, and you just relapse repeatedly because it wasn't properly treated.
I am in such a similar situation- I am also a college student, and I have very similar symptoms to you. I never liked running though- I preferred biking.
Are you taking a reduced course load? I have reduced my courses. Some schools allow you to get a refund if you withdraw due to a medical concern.
Even with a reduced course load, I'm finding school difficult. Like you- by the time I get home, I have no energy to do anything, and I have had to miss a lot of class as well.
Unfortunately, because I'm struggling with the same situation, I don't really have advice, just empathy. Lyme sucks, and being in school with Lyme is really tough.
Hugs!
Nicole
Posts: 503 | From Alberta, Canada | Registered: Jun 2009
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posted
well the first time it was a 90 day treatment, but the next two it was a month and then there was the one that my doctor said wasn't the cause of my pain and wasn't treated until this present treatment. but yes I am in search of a good LLMD and thanks for your support and empathy it is nice to know i am not alone. Because even though I know that, sometimes I forget.
Posts: 4 | From Burlington Vermont | Registered: Oct 2009
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bettyg
Unregistered
posted
Welcome to Lymenet! I'm so glad you found us! You've come to the right place for education and support!
The following is some links that may be helpful to you:
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.
This explains the medical politics around Lyme, and why you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):
ILADS The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases. www.ilads.org
They will also send you a ``test kit'' with their required form, all the test vials, & box to ship it in. Be sure to download Igenex's required form. MD, DO, ND, AC, DC are all fine** must sign, date, and show diagnosis code on there why he's ordering the test.
Optional tests include: co-infection panel for your area of country and PCR whole blood
Igenex is pre-pay/out of network for most insurances. If you are on medicare, Igenex will file the paperwork & it's free to you.
Betty's suggested posting guidelines: Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend.
For easier reading, please edit your post by clicking the ``paper pencil' icon to right of your user name, which opens up the subject line and body text.
You can break up your longer paragraphs into smaller paragraphs. Please hit ``enter'' key twice after each paragraph, also.
Go to left hand corner and mark box to receive `all replies', and click edit send.
Thank you for posting in a manner that makes it easier for all to read and help others.
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