13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i didn't know him but it's always sad to hear of these things.
i'm sorry for his family and i'm sure he will be missed by all.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
I'm so sorry to hear this. Charlie's family and friends are in my prayers.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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posted
Wow. Charlie's been very close with a lot of people here. This is a great loss.
Posts: 13171 | From San Francisco | Registered: May 2006
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Oh My!!
Rest in Peace Dear Charlie.
I just saw him 3 weeks ago.
I just talked to him Saturday night.
He said he was getting better.
It sounded as if he was getting weaker.
I was making plans to go help him and Jenny get thru this bad time.
I was going to go stay and help care for him for a long while right after the first of the year.
This news IS such a shock!!
I am beyond sad.
Funeral time and place??
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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MADDOG
Frequent Contributor (1K+ posts)
Member # 18
posted
Hi Don I didn't ask about the funeral.
I think maybe Charlie didn't belive in funerals.
I will Email Jenny and ask.
MADDOG
Posts: 4083 | From Ohio | Registered: Oct 2000
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
My heart breaks to hear the sad sad news.
We will all miss him dearly, as will the love of his life, his dear Jenny.
Charlie (who I called Muffinhead) gave me permission to put his picture in the "Tribute to Lyme Friends" slide show.
You'll see him here in happier times enjoying a picnic along the Buffalo River after we had all been canoeing and site seeing. He is in the campground shot, on the left of the picnic table. He has on a blue shirt and sunglasses.
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Maddog, can you tell us what happened? Those of us who were his close friends on Lyme Chat, where he visited pretty much every night, are all devastated and full of questions.
Feel free to email me at my personal email as well. I am so, so sad.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
How sad!
I just can't believe it. He was so loving and so kind to everyone. A real friend. He will be greatly missed.
We will miss you, charlie! I'm sorry I never got to meet you in person, but hopefully I'll see you on the other side.
Posts: 4590 | From Midwest | Registered: Jun 2008
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Rocephin / Zithromax / Supps Posts: 107 | From Plainview, New York | Registered: Sep 2008
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
I agree, Amanda.
Would someone please let Jenny know how much we will miss him, and what an impact he has made? I hope that will be comforting to her, to know how much we appreciated him.
Posts: 4590 | From Midwest | Registered: Jun 2008
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sizzled
Frequent Contributor (1K+ posts)
Member # 1357
posted
I am so sad. Charlie was so very kind to me and so many others here.
He asked me to come join on Lyme Chat as well.
I will miss you, Charlie! I will miss you and remember how great your humor helped me through the days.
Rest in peace, friend.
It has been an honor to have known you.
Posts: 4258 | From over there | Registered: Jul 2001
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
So sorry for the loss of Charlie.
Prayers for all his friends and family.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
I am so sad about Charlie. I loved his humor.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
I am so upset. Charlie was close with many of us. He was so funny and kind. I miss him already.
hope he has all the corona he wants now...
RIP friend
melissa
Posts: 3905 | From USA | Registered: May 2007
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Ouch
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Thanks for posting the video TC. Hopefully, we will have more pics of him.
Address?
I would like to send Jenny a card.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
I didn't know him, but sorry to hear of it.
My condolences to his family and friends.
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Heard from Jenny this morning.
I mentioned many in the Lyme community were saddened to hear about Charlie and were also concerned for her.
If/when there is news to share publicly, one of us will post it here.
In the meantime, I hope she gets some rest and can feel some peace in her heart at this sad time.
kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Our dear Buzzard Breath and Bat Pancreas. I never met him or spoke to him in person. We only communicated through words.
We had a special Arizona connection. He once lived in a little desert town, an old mining town in the Black Canyon mountain range. There were some saloons in that area we both enjoyed visiting. In different times.
He was a straight shooter, a gentle soul, and someone you could call friend from the first conversation.
We are BLESSED to have people like Charlie come through our lives.
Posts: 2903 | From AZ | Registered: Feb 2006
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
So sad! When is the truth going to happen with this illness? Praying it's soon.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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posted
I don't know what to say except that Charlie was the warmest and most inviting person from the moment I "met" him online. Ity was instantaneous friendship and I always was happy when he was online with us.
I feel very sad about this. I just don't know what to say.
Jenny, you are in my thoughts and just remember what a wonderful man Charlie was and how much he is loved by so many people!
He always made me laugh and smile and feel like the world was a better place.
Posts: 589 | From Rhode Island | Registered: Jun 2006
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ping
Frequent Contributor (1K+ posts)
Member # 6974
posted
Oh gosh, yet another one of us! My condolences to his wife and family. Charlie will be missed a great deal by so many of us; he was a veteran of Lymenet!
No more pain, Charlie... No more...
Much love and respect, ping
-------------------- ping "We are more than containers for Lyme" Posts: 1302 | From Back in TX again | Registered: Mar 2005
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
if anyone has Mo's info-i've lsot her number- please let her know the news.
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
This is very sad news! My condolences to the family.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
This makes me very sad that an old friend has left us, he to me was the very heart and soul of LymeNet. His humor would brighten the darkest thoughts and lighten many an onboard fight.
When I was a Newbie in 1998 to LN, Charlie was the first to Welcome me, when I had questions Charlie was the first to help me.
We compared notes on buying abx in Mexico, prices, what to expect. We shared words in e-mails like he did with so many, because he was always there to help.
Labrat, Maddog and Just Don, you were the closest ones to him, I wish you peace through this also.
Jenny, if you read this, I hope you know that we loved him very much and our hearts go out to you and your families.
Rest in Peace Dear Charlie, you will be so missed.
posted
I am basically new to LN and did not have the pleasure of knowing Charlie. From all I've read it certainly is my loss not knowing him.
My prayers are with his family and I am so sorry I didn't have the chance to meet him
God bless and be with you at this time,
Karen
Posts: 423 | From Virginia | Registered: Nov 2009
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
I have not been able to get out of bed all day due to my despair....Charlie was the light of Lyme chat, the 25th member of Lymenet...we shared many a phone conversation where he corrected me when I said he has a "southern drawl" and informed me it was in fact a "Texas Twang."
During Hurricane Gustav, many of us on chat stayed up all night with him, so he wouldn't be alone, chastising him every time he went outside to "check on things." He was scared, and admitted it.
Once he lost power and we lost him on chat I immediately got him on the phone to make sure he was okay. I think it was five a.m. before we all finally signed off....but he had done similar things for other members having a tough time, and we weren't going to leave him.
It's hard to explain to those of you how close we become in a chat room (which by the way, any of you are welcome to join in at any time.) Charlie was a long time regular there, he carried us all, he never engaged in any conflict, he was the wittiest, smartest, most humorous of anyone there, the most caring person anyone would ever want to come across.
I am having severe difficulty imagining life without Charlie. I loved him dearly....one dark and rainy night I was going to pick up a fellow Lymie from the airport to attend a Lyme conference and he kept me on the phone the entire time. I hadn't driven in months, and he talked to me the whole way to the airport.
He always cared. He was always the first one to send money to help pay for chat, last year to help pay for shipping when I was well enough to send gifts to several families at Christmas. He always told me if I didn't raise enough to cover the costs of Lyme chat and Lyme Friends just to let him know and he would pay the rest.
Charlie was loved by EVERYONE. There are few people in the Lyme community that no one would EVER say a negative word about, and Charlie was most definitely one of them. My heart is just broken. Though I never met him in person, it doesn't feel that way. I know I am not alone in saying that.
I don't even know how to begin to say goodbye. I dont' want to say goodbye. I just want this aching pain to go away. I want to crawl into a corner and cry. I wish we all lived closer so we could all be together and cry together and comfort one another.
I am simply in shock. Agonizing shock. I can't even begin to imagine how Jenny feels right now. My heart simply breaks for her.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
There are more pictures of Charlie on his LymeFriends page, KAM, and anyone else who would like to see them, on www.lymefriends.com.
I also have his address if anyone wants to email me for it.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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kam
Honored Contributor (10K+ posts)
Member # 3410
Thanks. Hoping this link works. I knew I had seen pics somewhere but couldn't recall where.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
Charley, Greatcod, Joe Ham, Lesley and a host of others.
When will we get some justice in this disease? When will the criminal incompetence in the IDSA, CDC, NIH be punished? It just makes me crazy that good people are suffering and dying.
Posts: 8430 | From Not available | Registered: Oct 2000
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Very sad to have lost another member. I shed some tears even tho I didn't know him personaly. Just made me sad to think that this awful disease has won.
Tracy9,
So sorry for the pain you are going through. Sounds like he was a really good friend and a kind and loving guy.
RIP Charlie,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
Kam's link will take you to Charlie's page on Lyme Friends.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
How sad to hear of another Lyme death. My condolances to all of Charlie's family & friends.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Hugs all around. This is very sad. I remember him from the old Saturday night chats and his many posts on here.
Thoughts and prayers for all of Charlie's family and friends.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
It is very easy to become a member, just answer a couple questions on the main page and you are a member.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
Charlie was a sweet man..
This is horrible sad news..
I hope he is resting in peace ....
Blessing to the family....
Such a loss to this earth.. I can not help but wonder and assume that he is in maybe a better place.. filled with peace and no pain or health issues..
To you..
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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