Monica
Frequent Contributor (1K+ posts)
Member # 224
posted
Greetings! I haven't been here in over three years. My excuse is I found reading the posts made me horribly depressed and I thought I had finally a found a doctor who was going to help me.
I've been in a wheelchair for four years now and although I'm no longer at death's door I still would like to get up and walking again.
There are so many new members and I see some of the Oldies but Goodies too.
In a way I'm glad to be back but of course, I wish it wasn't necessary.
Wishing you all good health.
Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Hi Monica!
What's been going on with you? Have you found anything that helped you feel better?
Carol
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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Monica
Frequent Contributor (1K+ posts)
Member # 224
posted
Hi Carol!
Actually, I feel great but I can't walk! I have definitely come a long way, but ...
I saw an LLMD who prescribed various abx cocktails. I got worse and worse. Went from a cane, to a walker, to a wheelchair in a year. He kept telling me I was herxing.
I was sure I was going to die if I continued so I got off all abx and consulted another LLMD. I started to improve and can now get out of bed and take care of myself in my powerchair.
Still, I refuse to believe that I will never walk again so I'm going to have to find another LLMD.
How are you doing?
Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Monica, can you tell me what LLMD you saw that made your condition deteriorate? I'm just curious. More importantly. I'm happy to hear you're making some forward progress. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Monica
Frequent Contributor (1K+ posts)
Member # 224
posted
Seek, sent you a message.
Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Hey there Monica!
Glad you are doing better- what treatment do you feel gave you the most improvement?
Also glad you were able to find another LLMD that was a better fit (I think you remember we saw the same LLMD) guess we never got to write a letter for the wall of fame.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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Monica
Frequent Contributor (1K+ posts)
Member # 224
posted
OMG, have you changed your user name??? Yes, the wall of praise/shame!
I have been seeing another LLMD for the last 4 years but now it's time for us to part company.
I am healing but I think it's as much healing from the treatment as the illness.
How are you doing???
Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000
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