lyme in Putnam
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Member # 11561
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Feeling deeprsonalization has me mentally, emotionally detached me from loved ones, this world, friends. I talk to them but feel like strangers, even family and the closest to my heart. Feel like I have no heart anymore. This usually subsided and I came back home. Home is foreign. How can you live with no safe place, including my son and husband of 16 years. Keeping busy, on treatment, but can't help but believe I'm left like this in this purgatory life. Does anyone have it this bad. Depression is an issue, OCD/Lyme/anxiety and low salt that increase these symptoms. Did u overcome with treatment, try tapping, new, can't meditate cause of OCD, can't take OCD Meds/antidepressants cause of low salt. Taking right supplements, just live a dead life. Going to new therapist to cope with symptoms, but it's not going to take them away. Really disgusted in a sad place. I ate life up. I guess we all did. Herbal treatment since sept.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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Andie333
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Posts: 2549 | From never never land | Registered: May 2005
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I have been re-reading Osler's Web again, which describes in great detail the struggles of the CFIDS community. There are so many parallels in that story with the lyme story.
One thing that might have some bearing on your situation is that those patients were getting a variety of brain scans and correlations were made with the results and the symptoms that prevailed. These were pinpointed to various areas in the brain that had suffered from the disease. One of those symptoms that they correlated with a particular area of the brain was altered perception of reality. Wondering if that would be like your depersonalization? Another symptom was depression.
This was a way of showing that objective results from brain scans were tied to symptoms, anchored, not just random symptoms that frequently do not get enough weight because they are considered soft science and subjective.
Does this make sense to you? Maybe it doesn't fix the problem, but possibly knowing that it is tied specifically to your disease process, and if the right specialists looked with the right testing, these symptoms are as concrete as a broken leg. Brain things in organic disease have never gotten enough respect, not in CFIDS, and not in Lyme, at least in the mainstream medical establishment.
Best of luck coping with this. Hoping that treatment will help you. Not sure about herbals for this kind of brain function issue.
I remember in the movie "A beautiful mind," the scientist who won a Nobel Prize, had struggled for years with paranoid schizophrenia. He said one way he coped with this eventually was just to realize that the voices were not real, and not to listen to them. If you know your disease creates these specific feelings, perhaps it will help, and you can ask your therapist to help you devise a coping mechanism.
Posts: 8430 | From Not available | Registered: Oct 2000
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This is not a suggestion that lymed people get more brain scans, if they have already had some that were abnormal. Testing is only useful as support for diagnosis and treatment. And also for research, if any is being done that is honest.
My purpose in the above post is to show that specific symptoms can be tied to specific brain abnormalities, if anyone took the time to look for them, as they did early in the CFIDS epidemic. But as we all know, that illness is also very poorly handled by the medical establishment.
Anyone who has not read Osler's Web should do so. It is eerily like the lyme story.
Posts: 8430 | From Not available | Registered: Oct 2000
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