quote:Infection-associated chronic diseases that our group studies include Chronic Fatigue Syndrome, Chronic Lyme Disease, Epilepsy, Multiple Sclerosis, and other unexplained chronic illnesses. We are interested in learning more about how infectious agents may play an etiologic role in these diseases. These infectious agents include human herpesvirus-6 (HHV-6), retroviruses such as xenotropic murine leukemia virus-related virus (XMRV), parasites such as Toxoplasma gondii, fungi such as Coccidiodes immitis, and bacteria such as Borrelia burgdorferi (the cause of Lyme disease).
Lymenet, and forums for other chronic conditions are listed in the resources section.
These tick-borne disease foundations/organizations are on the resources page as well:
* Columbia University * LDA * ILADS * And last, but not least, the beloved IDSA
quote:In summary, it is plausible that the persistent activity of intracellular pathogens or the immune response against them could lead to the complex and chronic dysfunction observed in patients with CFS. Furthermore, it is possible that if the infectious trigger is appropriately identified, significant clinical benefit can be observed with appropriate long-term antimicrobial therapy.
Posts: 967 | From A deserted island without internet access | Registered: Sep 2009
| IP: Logged |
Camp Other
Unregistered
posted
Here is a link to the team lead, in case anyone wanted more info on his background:
posted
Well, if you look at the amount of participants Montoya was recruiting for his study, it is rather insane, and the list of tests were huge.
Maybe he has gone mad. Let's hope. I suspect that when his study comes out, it is really going to shake the medical community. It will probably be the biggest study for CFS ever, and the first to look at an enormous amount of pathogens and viruses that may be involved.
I suspect he will be labeled as an outcast by the medical community for a while, and perhaps he'll then go on to receive a Nobel Prize. Isn't that how it usually works?
Posts: 967 | From A deserted island without internet access | Registered: Sep 2009
| IP: Logged |
posted
Maybe he'll discuss his findings at this talk he's giving at Stanford on March 3rd, it's free too. I'm one of the subjects so looking forward to the results.
posted
dogmom2, do you know anyone attending the talk who would be willing to give us a report?
IP: Logged |
sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
It's sad it's taken so long for these relatively small offerings to people with these illnesses... Then, they group them all together in a big lump.
I've seen lists of money spent on the various illnesses - even drug addiction - & CFS gets soooo little funding. It really makes one wonder.
posted
I don't know of anyone attending yet, but if i find out about it I will post it here.
Posts: 857 | From northern california | Registered: Dec 2009
| IP: Logged |
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
When I first came down sick and was trying to learn why I had a neuro refer me to STanford.
But, primary doc would not work with insurance to get me there.
She said she was not going to pay for it. I didn't know what she was talking about.
Later learned about how docs sign a contract stating that they will only spend so much on a patient a month.
If they go over it they loose their quarterly bonus.
She also took 3 months to see me as she keep rescheduling my appointment.
I dropped her with insurance company. CAlled manager of clinic. They said they would take care of it.
Got a letter from manager and doc at medical center stating that they were dropping me.
Ah the politics of getting help.
CAlled Stanford and learned I could not get in to see this doc unless I had a referral from primary.
Catch 22.
Then got the lyme dx
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
| IP: Logged |
sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Sorry to hear you went through all that, kam. So many of us have had the run around. It's just either insane or criminal. There's so little compassion in the world.
I hate to say it but I believe it's intentional. I never would have thought it if I didn't experience it myself.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
| IP: Logged |
posted
I don't have much info from the talk(i wasn't there) but got this from a local support site from someone who was there:
"Dr Montoya's talk will be on you tube in 6-8 wks. The link(s) will be posted on Stanford's CFS website when ready. Stanford is really trying to take this illness to the forefront. If they can achieve that, it will be the shot heard around the world where the CDC and the medical establishment can no longer claim to be in the dark and not know. The results of this large study is going to be the next BIG BOOM in the medical community.
Dr Montoya in his talk said there is going to be a lot of doctors and establishments that owe patients an apology for the injustices done to patients with this illness all these many years. He said it is tragic how badly people are suffering with this illness and doctors aren't trained. Patients having to self administer treatments at home. He hopes to change some of that."
Posts: 857 | From northern california | Registered: Dec 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic