phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
I was wondering what were your symptoms before any treatment. Then compare to during and after.
My symptoms vary and come and go.. Treatment so far hasn't been helpful, only made me feel worse. Off of everything for now but plan to resume as soon as my body is ready.
I am so confused about treatment and chronic lyme.No cure but maybe enough improvement to be more functional ..
Posts: 1058 | From VA | Registered: Oct 2010
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It depends on how long you have had lyme and what other coinfections you have. I crashed in june 08-my face became paralyzed-hard to ignore and my brain became mush-couldn't think, barely, talk, or stand.
Treatment will make you feel worse before you are worse-it's called a herximer reaction-read about it in the newbie link
Posts: 298 | From usa | Registered: Aug 2009
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phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Thanks, didn't know there was a newbie link.. Mine started with a vertigo attack..
Posts: 1058 | From VA | Registered: Oct 2010
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I started with extreme head and neck pain and was treated for muscle pull tension headaches. Two wks aft that I became out of breath, severe fatigued, felt like someone beat me up with the body aches, all flu like symptoms. They tested me thru Labcorp and I was IgM positive. Gave me three wks of doxy 200 mgs (not enough of a dose) and that made everything worse. I started with symptoms June 2009 and actually began to feel better by Sept 2009. Then by Dec started with hip and knee pain got tested for everything under the sun, all negative and during that time my asthma kicked up so they put me on steroids. aft that was done the joint pain came bk in about two months and was all my joints. Took more tests and lo and behold positive AGAIN. Two more wks of doxy and seen and Infec Dis doc who said not Lyme go to hand doc. Went to him he said nothing wrong go to Rheumatologist. I said screw it and gave up. By Dec 2010 joints became more severe and then head and neck started again, thats when I really knew it was the Lyme. So I did what they said went to a Rheumatologist, another hand doc and another Infec Dis doc. Rheumatology all negative but he was going to treat me for chronic fatigue and fibromyalgia, which I don't have so i didn't take those meds. Hand doc did xray, emg, mri and bone scan. Only thing showed was a borderline carpel tunnel in my right hand and he said no way would that cause the symptoms i was having. Infec dis doc said not your lyme we wouldn't even test you again cause it was only IgM positive and not IgG's. I didn't know what I know now or I would've challenged that comment. So I educated myself thru this forum and found an LLMD who is finally treating me with Suprax and Azitromycian which I know is right. I figured I'd give orals another try since I did respond to the doxy but it wasn't for a long enough period to get rid of it rather than go right to IV. What a relief that I found someone who made me feel like I'm not crazy. also first two wks symptoms were worse. I follow up with him tomarrow. He is two hours away but I don't care he is like GOD to me.
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