posted
Hello again. Obviously there isn't a known cure (yet) but if you could offer aome thoughts on any of the treatments which have shown the best rate of success in defeating the bateria residing past the BBB. I believe that those are the most difficult to reach and they are also the most scary (to me anyway)
Thanks in advance
-------------------- my wife and I and all 4 of our children have chronic lyme disease. My mission is to fix that. Posts: 30 | From NJ | Registered: Oct 2011
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Helping the liver to detoxify the poisons left behind by the dead Lyme bacteria will help the brain. Those poisons are neurotoxins....poisonous to the nerves. The brain is made of up nerve tissue.
Supplements to help the liver make glutathione, which it needs to detoxify poisons include:
Reducing the fibrin lining the blood vessels will increase blood supply and oxygen to the brain cells, which will help improve brain function. Look into systemic enzyme therapy. This will also reduce inflammation, which causes swelling and pain.
Also, antioxidants will help the brain, such as Mangosteen juice Resveratrol Cistus Incanus, Rock Rose tea Rooibos tea
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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posted
Thanks. That's very sound advice and I appreciate the response. What about kiling the bacteria which has been able to get past the BBB. The things you mention will help rid the toxins but if the bacteria continue to exist then the toxins will continue to be produced right?
-------------------- my wife and I and all 4 of our children have chronic lyme disease. My mission is to fix that. Posts: 30 | From NJ | Registered: Oct 2011
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96218 | From Texas | Registered: Feb 2001
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Phil, you may not be able to kill the bacteria that are in the cells, but your white blood cells can phage (eat) them when they go into the blood stream.
You need to do things that will strengthen the immune system, to make sure that there will be enough white cells to do the job.
Systemic enzymes help to strip the fibrin that may coat bunches of bacteria...known as biofilm. This way the white cells can find the Lyme bacteria and dispatch them pronto.
LLMD's often prescribe systemic enzymes to their patients along with antibiotics. The antibiotics are more effective this way.
There is a protocol for treating Lyme that calls for Wobenzym (a blend of systemic enzymes) and Cat's Claw. Cat's Claw stimulates the white blood cells to phage bacteria.
There is no way to kill all of the Lyme bacteria, as they are in too many of our cells, and the white blood cells cannot get them unless they go into the bloodstream.
Your mission, should you choose to accept it, is to do everything possible to strengthen the immune system and help the body work as well as possible. You'll need to read one to two hours per day to learn about how the body functions, how to provide all that it needs for a strong immune system.
You can do alot to reduce your symptoms, for example by replenishing nutrients that have been depleted by the Lyme bacteria.
This includes magnesium, which every cell needs for every enzyme process. The Lyme bacteria use up the magnesium in our cells, and this causes so many symptoms...
depression, anxiety, panic attacks insomnia, PMS muscle twitching and spasms cardiac arrhythmias, like tachycardia headaches, backaches, jaw joint (or TMJ) dysfunction sensitivity to bright light and loud noises
-------------------- my wife and I and all 4 of our children have chronic lyme disease. My mission is to fix that. Posts: 30 | From NJ | Registered: Oct 2011
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my GP gave me doxycyline for a bull's eye rash and after 10 days I think I had a brain Herx
pretty hard with anxiety attack(s), double vision, very blurred vision, severe mood swings within one hour without a good reason (anger/fear), dyslexia, etc.
took the doxy for 21 days total
then an LLMD put me on minocycline
I was still very scared/anxious about everything and wanted to be back on the doxy since that was somewhat familiar to me by then
and they said mino is better because it goes through the blood brain barrier better
others have since told me so, on LymeNet
I have been on the minocycline for about 8 weeks now and at first I thought "pah! this isn;t doing anyting" but just a few days ago, I thought "hey! this is nice, the anxiety attacks are gone and I feel overall much less bothered/anxious even when things get rough"
so I think the mino has helped me a lot with the brain symptoms, slow and staedy (I have been on 100mg twice a day)
I still have dyslexia and insomnia and nerve signlas that shoudl not be there (tigling sclap, etc) but it has gotten better overall
I think the mino did work well on the brain - so far so good
it did make my teeth brown but I was told that this is reversible in adults - hope so - otherwise it has caused some nausea if taken with too little food and tipsy feelings all the time but no bad side effects, so I am very happy with the drug
there may be other good one for the brain specifially, if abx is what you are asking about
I heard that Bartonella is real hard on the brain and so drugs against Bart may help the brain - you can searc LymeNet for Bart treatments
good luck to you!
-------------------- Persistence, persistence, persistence!!! "Nothing in the world can take the place of persistence... Persistence and determination are omnipotent." attributed to Calvin Coolidge Posts: 599 | From USA | Registered: Jun 2011
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
There's is a procedure called phage...Mostly from Rep. of Georgia, Former Institute there...
Was very popular but antibiotics got going around same time...Not sure if this is Stalin Era..
I was diagnosed with Brucelosis during this season in life
Anyway Googled a bunch before I knew about me and Lyme,,.. Cause it g=had been ruled out a couple of times... Anybody interested in little more info???PM , me... Thanks
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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