Topic: Important Update - Why I gave up on my Lyme diagnosis
poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
I always wonder when I hear a post like this: what is an unrelated additional problem and what is caused by lyme or coinfections. We know that these diseases mess up our physiology. That is why they cause disease. And the ways they do this are many.
For instance, say that mitochondrial disease can be caused by an infection. But maybe it might be caused by other things.
I once had a doctor who said his goal was to make me whole. By that he meant not only treat the lyme but also treat the problems that the lyme caused. And also treat conditions unrelated to lyme that were discovered during the diagnosing.
Not to harp on lyme for wolfed out, but having tickborne diseases like babesia pretty much ensured that he had a tick bite.
Posts: 2888 | From USA | Registered: Mar 2004
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Previously, I said, From what I understand, B vitamins should be taken as a balanced group, so I will continue taking my B supplement, rather than just add extra Riboflavin and Thiamine.
quote:Originally posted by lpkayak: carol...you said you would keep taking your b compex instead of getting ribo or thia alone
im supposed to take 150-285 of each of them twice a day
if i do it with the b100 i would have to take 2 am and 1 pm i guess. do you think i would be taking too much of the other B's ???
You could take the B100 and then some additional other B's later. I was trying to point out that you don't want to take big doses of only certain B vitamins, as an imbalance can cause problems.
(Pffft...I cannot remember which B's and what problems. Other knowledgeable people here have discussed it before.)
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
hmmmm. so complicated when you are messed up cognitively. for yrs i have taken extra folic acid to help with weight loss and extra b6 to help with sleep. so i was sort of doing it anyway...but i didnt have numbers in front of me saying what i should take.
i guess i'll try it and see if there is a difference. good or bad.
the original pain i got from lipitor is back and it really worries me. my first hint that mitochondrial issues were a problems for me was studying about what lipitor can do to some ppl.
at first the supps i took made a big difference...but then it leveld off. the pain does not put me back in the walker...but it is a hint that if i dont take care of it it will. it also stops me from exercise -walking and riding as much as i used to. and weight is a big issue for me.
so this pain i get that i blame on mito problems is a big issue for me.
i'll try the protocol and see what happens.
carol-thank you so much for coming bqck and babysitting me
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
Read this when you have the energy. Dr. Amy Myhill has lots of excellent information.
. If you're getting the Lipitor pain again, are you taking CoEnzyme Q10. Ubiquinol is supposed to be better, you only need half as much. However, they charge TWICE AS MUCH for it, so you're no farther ahead.
That's the one I've been buying. It's dry powder in capsules, not in oil, so I take it along with my fish oil, as CoQ10 needs the oils to be absorbed properly.
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i had stopped ubiq from mercola for awhile and was using NOW brand
a lot of NOW stuff works for me - but i went backward
i am back on 200-400 of dr m's ubiq...i know i may have to put it up from that
it is expensive...but i am not ready to not be able to walk
i got mixed up when i had my regular supps then had to add mito ones (i was using graveline as resource) then another high lipid test so upped the supps to try to lower that
soooo much. hard to plan...with food-without...probiotics when abx when
and i also had worse reflux and it was hard to figure from what...
so i am trying agin...after first new batch reflux was bad...i'll have to see if i can figure that out
thanks again
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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