posted
I recently had an extremely traumatic experience as a consequence of what we believe to be Lyme with a Bartonella coinfection.
As such, I have spent all day scouring this site for all the information I can get...and nobody seems to have any kind of success story.
My relationship and life depend entirely on beating my neurophsychological symptoms as fast as I possibly can, but everybody's posts seem to be about treating for years with little to no help! I am terrified that I will never have the life I was so close to having...does ANYbody have a success story to help me through this?
Posts: 17 | From Purcellville, VA | Registered: Mar 2012
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posted
There are sooo many success stories here, that's what keeps me going.
They will be chiming in soon. These folks could be out living their lives and forget all about Lymenet, but they come back to give us struggling folks some hope.
-------------------- aperture Posts: 551 | From Louisville, KY | Registered: Nov 2011
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jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
There are many successes, but unfortunately no quick fixes. Your treatment length can greatly depend on how long you've had the infection.
I've been treating for 4-5 years but then I've had symptoms for over 30 years.
I'm better now than I can ever remember.
Don't give up. Lyme is both a curse and a blessing. I have come to realize that my lyme diagnosis was a gift. Without it, I'd be half dead by now and I'm sure my kids would be in pretty bad shape.
I am healthier now and more in tune with myself than ever before. I didn't do everything perfectly but I did enough.
Good luck.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
My daughter got well...it took a long time, but you have to remember Lyme treatments have improved a lot in the last decade and co-infections and what-not are more understood...my daughter was a guinnea pig, so to speak...not to think it was all in vain, it wasn't.
I was mind-numbing concerned if she would even survive, let alone get her life back and she did just that...got her life back.
It is possible...but you have to keep your eye on the golden ring and do what you need to do to achieve that.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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posted
Is it hopeless to beat advanced Lyme symptoms in 6 months, probably.
Honestly its probably going to be 3-5 years before you feel better, thats usually average. But most people DO get better with an EXPERT LLMD. But it is going to be hard, take a lot of time, money and determination.
Posts: 844 | From CA | Registered: Apr 2010
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posted
I suppose what I'm really wondering is how long it has taken people to start actually feeling effects, not when whatever infection is completely clear. My life has fallen apart and I have little time to prove I am getting better.
Posts: 17 | From Purcellville, VA | Registered: Mar 2012
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posted
I am better. I was sick and bedridden for almost 6 years. I did lose the life I had and I am still rebuilding it now, but there is health at the end of tunnel. Keep on fighting. One little success at a time leads to big wins.
DT
Posts: 1044 | From Missouri, USA | Registered: Apr 2001
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
I and my kids are also well. You can do it; everyone is different, so some take longer than others.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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posted
Thats kinda the one thing you cannot ask--"how long", because everyone is really different. If it were 1 year that would be good, if it were 3 years it might be average, if it were 5 years that might be long-- but others have been treating for 5+ years and that doesn't mean they won't get better.
Also remember when talking to people, most people talk about how long they've been sick....NOT how long they've been treating for Lyme with an LLMD...very different things.
Posts: 844 | From CA | Registered: Apr 2010
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posted
What I have found, is that if you put a time limit on when you are going to get better...well ya know the old saying..."A watched pot never boils"...
I did treatment for years...(have had it for more then 30 - did 12+ years conventionally)
But, about 4 years ago, I started on my own path...my own protocol that I designed for myself...lots of trial and error...but I found my path...
Now I am entering my 3rd year of remission...
So it is possible...
-------------------- We each have a right to be healthy, and no one has the right to jeopardize that! Take Charge of your health - and your life you are the only one who will! I know what I am & I know what I am not I know what I HAVE & I know what I HAVE not Posts: 33 | From co | Registered: Aug 2008
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Christine, I love the way you think (inspiring).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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