posted
Hi. Just been reading a bit about this lady whose had some success (quit a lot it appears) in her battle with Lyme. Seems pretty inspiring.
I found her after googling something like, 'Lyme disease, success stories'.
After reading a lot on the disease I was just starting to get pretty down and was in need of some hope.
I'm sure there are more than a few stories here on this forum as well.
I'm just starting the journey and not feeling a lot of support or understanding outside of my wife and son... and this forum:) Thank God for that.
Everyone's battle and journey is different. I got the picture that the disease is very complex and no one treatment works for all.
Just wondering if anyone got some good tips from this book. It appears she tried the conventional treatment, then went to a few more unconventional ones.
What concerned me a bit was some of what I read on the website. Not saying it wasn't right.
As someone whose just getting ready to start abx treatment it just made me a bit apprehensive.
It was mentioned that the conventional abx treatments don't have a 'kill off' measurement, i.e. when the stuff, neurotixins,etc. are out of the body (maybe I'm not explaining it right).
It was also mentioned that the Lyme bacteria can become resistant to long term Abx treatment.
As one who was told that they will soon start Abx treatment it just concerned me a bit. I already have a pretty weak immune system.
Anybody read it:)? thnx.
Posts: 128 | From California | Registered: Apr 2012
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posted
Hi - ILADS, the Lyme-literate society of medical professionals, is going to have a conference in Klagenfurt, Austria next week - May 18-19 - don't know if they would still have any room and whether you could go -
if you could, it would be a huge support boost for you to be in the midst of so many people who know what's going on, and you can learn a lot as well -
If not, don't worry about it - there's plenty of support and info here - and hopefully you can meet some folks in your area as well -
Re your question about antibiotics - mine did work, for 5 years. Then it stopped working. Antibiotics do get rotated as needed. There's also plenty of other remedies to try too, like supplements, herbs, various people's mix products, oyxgen, etc.
Treatment occurs in three categories - kill/deter the organisms, detox and fortify the body. I call it going to Lyme school, to learn what everyone does.
You can study on here by using the search function at the top of the page - type in any word or phrase and archived threads will come up of discussions of various topics.
Posts: 13116 | From San Francisco | Registered: May 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- If you have an ILADS educated LLMD, they will know how to work with the antibiotics.
Generally, borrelia does not become resistant to long term antibiotics but most LLMDs will rotate and combine. Some people require antibiotics (abx) for months or years -- and many have reached solid remissions with aggressive treatment.
Many more have failed by haphazard attempts.
Still, antibiotics are not enough alone as they do not address the cyst form of lyme. Flagyl or similar measures are also required.
Support supplements are also essential for the liver and other body systems, too.
A weak immune system? Well, as long as lyme is involved, that's just going to be challenged. By addressing the infection adequately, the immune system can then repair.
Still, pharmaceuticals certainly do have some serious considerations and there are ways to work with - or around - them.
Be sure your anti-candida methods are in place before starting antibiotics. PROBIOTICS are required.
Many good LLMDs suggest nutritional supplements that will help support (not "boost") the immune system.
The use of medical mushrooms (such as Cordyceps) is just one approach. Low Dose Naltrexone (LDN) is another of many.
I'm glad you posted the other day about your plans to attend that ILADS conference in Austria this week.
Be sure to attend the two sessions on non-antibiotic approaches and also on naturopathic methods.
You might also consider a RIFE or, as in Germany, the Bionic 880 approach. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
If it was Connie's book .she has a new one is gives the treatment protocol's of 15 doctors/healers....
Insights into Lyme Disease treatment
Sorry you have to be on this journey.. How long have you been ill ?
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
sorry different people
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Keeping all those previous links you have for ILADS, etc. here's another set that you may want to browse before attending that ILADS conference in a few days.
For herbals, it's best to consult with an ILADS-educated LL (lyme literate) doctor who has completed four years of post-graduate medical education in the field of herbal and nutritional medicine -
- and someone who is current with ILADS' research & presentations, past and present. -----------------------
Integrative / Holistic M.D., etc. (Be aware that those in this category can have various levels of formal herbal &/or nutritional education, perhaps even just a short course. Do ask first.)
Links to many articles and books by holistic-minded LL doctors of various degrees who all have this basic approach in common:
Understanding of the importance of addressing the infection(s) fully head-on with specific measures from all corners of medicine;
knowing which supplements have direct impact, which are only support and which are both.
You can compare and contrast many approaches.
BASIC HERBAL EDUCATIONAL & SAFETY links,
BODY WORK links with safety tailored to lyme patients,
LOW HEAT INFRARED SAUNA detail,
BIONIC 880 (& PE-1) links, and
RIFE links. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- As for "the Tick Slayer" - there have been discussion threads here before about that site / book.
I recall studying that site and do not recall why but it's not one that I would suggest as a sole guide.
We can learn from others' experiences, of course. Anyone who overcomes lyme complex is to be congratulated. However, each person with lyme is very different. Very.
I think you will do best with an ILADS LLMD and/or an ILADS-educated LL ND or one of similar herbal education -- along the lines of the approaches in the thread above and those previously posted for you.
There are many ways to address this but an ILADS-educated doctor is absolutely essential. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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@Keebler-thanks, I'll be planning on attending the session on non-antibiotic approaches and I think I could use a nutritional suppl. plan, diet as well.
Consequently I have a few friends always trying to sell me these amazing nutritional MLM products.
I pretty much stay away but still would be interested in something. thnx for the link.
@nonna05-thanks. I was biten by a Tick about 30 years ago and since then have had pretty constant problems.
So, basically been sick off and on for those 30 years. I just didn't know it was Lyme.
Posts: 128 | From California | Registered: Apr 2012
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quote:Originally posted by Lymetoo: Have you read Cure Unknown?? Pamela Weintraub?
HI. No I haven't but I've heard of the book. A good one?
Posts: 128 | From California | Registered: Apr 2012
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- fred,
Some supplements can be disaster for those with lyme; some can be fantastic.
Everything will need to be cleared with your LL doctor in advance. Everything. There are reasons for this that most others would not understand.
Especially, avoid anything that promises to "boost" anything.
"Boost" is usually never good for someone with lyme as we just can't stand that much excitement, so to speak. Better terms and effects: modulate; balance.
Also stay clear of Glutamine, L-Glutamine or Glutamic acid. This can contribute to anxiety or seizures for many with lyme.
We get some in our foods but many of the supplements that promise energy contain this and some formulas may contain "okay" levels in balance but the dose is often sky high in some supplements.
L-Glutamine can help heal a "Leaky Gut" but when that's needed, it would be in lower amounts and the LL doctor would take the person's individual case into account.
Also to consider: the source; the processing; all other ingredients; additives. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Thanks again Keebler...
Posts: 128 | From California | Registered: Apr 2012
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
Hi fredO.
Yes, I ran across Perry Field's website a few years ago. I even emailed her. We corresponded a little. But she was wanting to coach me by advising me what to do, but I don't have that kind of money.
However, I find her story inspriational.
I am a little foggy, but I think this is her story:
Apparently, she is an Olympian Athlete, a runner, who collapsed during a competition (might have been the Olympics). Turns out she had Lyme.
I think she had four months of IV antibiotics from a well-respected (hmmm) Infectious Disease doc, and hadn't improved one bit, so she decided to take matters in her own hands.
She started out bedridden. Couldn't even feed herself.
After taking many expensive herbs and supplements, cleanses, etc., she claims to be well. Even healthier than she was before she got sick. However, it took her about four years.
I believe she said she will be running in this summer's Olympics, and that she is running faster than she did before she became sick.
I think she has a lot of good ideas.
I'm sticking with my LLMD's approach for now. And most likely will eventually embrace more herbs and other approaches such as her's, Cowden's and Buhner. I already include some of Buhner's herbs, and my LLMD is okay with that.
I really want to read her book, because I find her results inspirational. She has a strong will to succeed. And it worked.
Posts: 1358 | From Midwest | Registered: Apr 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- It's always good to read about anyone's success over lyme, even if that case might be very different (no two people with lyme ever have the exact same mix).
There are usually some gems that may be relevant, along with hope. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I found her book very interesting and glad I read it. It appear the integrative medicine may be the way to go. I know I am open to any and all aternative ways to get this beast out of my systems.
Posts: 620 | From Ks | Registered: Oct 2011
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posted
I found her book very interesting and glad I read it. It appear the integrative medicine may be the way to go. I know I am open to any and all aternative ways to get this beast out of my systems.
Posts: 620 | From Ks | Registered: Oct 2011
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posted
"Cure Unknown" by Pamela Weintraub is excellent! I also highly recommend it.
As a recovering chronic Lyme patient, I chose the topic of chronic Lyme to write one of my research papers on while in nursing school. Of all the books and articles I read during my research, I found this book the most informative. VERY well researched and well referenced.
Posts: 962 | From Charleston | Registered: Jan 2002
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