beaches
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Member # 38251
posted
UP
Posts: 1885 | From here | Registered: Jul 2012
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Andie333
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Member # 7370
posted
Bea, you and Steve have fought so hard and so bravely. I was really sorry to read your last update.
Hopefuly someone, somewhere will come to their senses and be willing to do whatever is needed.
And in the meantime, I, like so many others, will pray for you both.
Just know we're all here supporting you and praying for you.
Posts: 2549 | From never never land | Registered: May 2005
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sparkle7
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All the best to you and Steve. My prayers are with you.
Peace.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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linky123
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posted
You are in our thoughts and prayers. Love to you both.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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beaches
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Member # 38251
posted
I continue to pray to St. Raphael, Archangel of the Saint of Illness whose feast day is tomorrow, September 29th.
I also continue to pray on Stephen Siebert's behalf that he be healed by the grace of St. Raphael as well as St. Rita, St. Jude and St. Joseph.
I say my prayers to you today and I very humbly request your intercession so that God will grant a healing miracle to Stephen Siebert and relief to his wife, Bea.
In the name of the Father, the Son, and the Holy Spirit, Amen.
Posts: 1885 | From here | Registered: Jul 2012
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Nancy2
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Praying with all my might!
Posts: 1487 | From New England | Registered: Oct 2000
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beaches
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Member # 38251
posted
St. Raphael, today, September 29th is your feast day for us Catholics.
I humbly submit before you my sister Bea Siebert and her beloved husband Stephen Siebert.
Posts: 1885 | From here | Registered: Jul 2012
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In quietness and confidence shall be your strength ~
Posts: 164 | From North America | Registered: Mar 2009
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
Oh Bea, I am so sorry. My heart goes out to you. I am praying for a miracle that Steve will get the treatment he needs to turn around. This illness is such a nightmare. May God bless you and give you the courage you need right now to get through this horribly difficult time. You have been Steve's guardian angel through all of this. Hugs and prayers sent your way...
Posts: 2387 | From New England | Registered: Aug 2011
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RZR
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Member # 20953
posted
My heart breaks as I read this. I am so very sorry.
I have been praying for days and will continue to do so. May God wrap his healing arms around Steve and give you comfort and courage.
-------------------- Tick bite May 2009 Diagnosed June 2009 Posts: 2329 | From SouthEast | Registered: Jun 2009
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Dearest Bea,
I am praying so very fervently for Steve, you and the medical team.
My heart is breaking for you. May you feel God's peace, love and comfort during this very difficult time.
Lord Jesus,
You are the God of all hope, healing and miracles.
You are the only One we can rely on for help.
I praise your holy name and ask You, dear Lord, to heal our brother, Stephen.
Please send the power of the Holy Spirit down and shine on precious Stephen's body.
Please lift him up out of the pit and breathe new life into Stephen's lungs.
Lord, please give Bea and Stephen comfort and peace like they have never felt before.
Let Bea and Steve know how much they are loved by You and all of us.
Lord, please open the minds, eyes and hearts of all of the medical team. Give them the wisdom and compassion that they are lacking.
I ask all of this in the name of the Father and of the Son and of the Holy Spirit. Amen
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
Lord, send Bea and Steve the miracle of miracles. Blessings and Prayers.
Posts: 620 | From Ks | Registered: Oct 2011
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Sammi
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Member # 110
posted
It is so upsetting the doctors will not give him the Babs meds he needs. It truly is unethical.
Bea, I am still praying hard for you both.
Posts: 4682 | Registered: Oct 2000
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poppy
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Member # 5355
posted
Any chance of having a blood slide looked at visually, some university lab? This is the way malaria can be diagnosed. Not done much in this country anymore because the automated testing has taken over. That was the way my babesia was diagnosed by the old FL lab, after a negative antibody test elsewhere.
Maybe you could arrange for this to be done, and use it as bargaining tool, or potential threat.
Posts: 2888 | From USA | Registered: Mar 2004
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posted
You and Steve are in my thoughts and prayers, praying for a miracle.
Posts: 323 | From Michigan | Registered: Sep 2006
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Tammy N.
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Member # 26835
posted
Dear Bea, Crying as I'm reading this. Words fail at times like these. So sad for you and your husband's struggles. I pray for a miraculous healing. May God be close to you both at this most challenging time. With warmth and love, Tammy
Posts: 2238 | From East Coast | Registered: Jul 2010
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So, after spending the evening crying, feeling hopeless frrantic panic and cursing out IDSA and thinking the lot belongs in jail....
this morning had this thought:
Does anyone know the hotel Bea is staying in?
What if each person calls the hotel to pay a few dollars against her account?
At least that might be some support in this impossible time...?
What do you guys think?
Posts: 124 | From Maryland, USA | Registered: Jan 2010
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
hugs, bea. strength, fortitude, love...peace. In my thoughts and prayers. I'm glad that your sister has come to be with you.
Posts: 3975 | From usa | Registered: Aug 2007
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
What a family of support from all of us who know this madness of lyme & co. I think reality has hit many of us, just how alone we really are when it comes to the "medical knowledge" outside of the LLMD world.
I'm stunned by all of this. I'm hurt and mad.
But most of all....I wish Bea peace with all she's been thru. Lord, hold her tight.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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posted
GUYS! I know the hotel Bea is staying at. If you want to help her, email me at [email protected] and I'll can give you the hotel info.
In retrospect, it might save work and confusion to just send Bea a check for an amount.
I just spent about 30 minutes tyring to work out soemting with the hotel staff. The Manager isn't at her post until Monday. The clerk is a very sweet young lady, but it feels likely that something will go wrong...sigh.....
We're Thinking about you Bea and Steve!!!
Hang in there!!
Posts: 124 | From Maryland, USA | Registered: Jan 2010
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I "paid" for the first 3 nights. It's not "charged to my card" until Bea "checks out".
Her sister should put the room on her card for the next 2 nights.
Then the next person can reserve the room on their card for the next night or two.
Then the next person can reserve the room on their card for the next night...and so on....
Each night is $35 (hospital rate) BEFORE taxes and fees.
The problem with this is that each day Bea will need to check out and back in so the cards can be charged and changed over.
The room would be reserved over a series of nights under different names/credit cards.
It's alot of logistics and making sure your card is charged correctly.
Bea is keeping it together, but she was crying this morning. I cannot imagine what she is going through. She is one tough cookie.
It might be be easier and save hotel confusion to just send Bea a check to help cover costs. then let her know what you did.
Any thoughts?
Posts: 124 | From Maryland, USA | Registered: Jan 2010
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Dekrator48
Frequent Contributor (5K+ posts)
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posted
I agree it would be much easier to send Bea a donation at her home address.
It sounds too confusing the other way and I agree it will likely get messed up.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Just thought about mail: probably best to not send a donation to her home if she is not home to collect her mail, though.
Is there anyone who knows if she had a trusted neighbor doing that? Or if she has a USPS hold on her mail?
She may have left too quickly to make arrangements.
Last year I was able to use my card at a hotel where my aunt was staying for an ill relative. That worked out very well as all my siblings also called and they just issued a credit for her room against our various cards.
Always best when the manager (or person doing that) sounds very adept, however.
DIRECTLY to her BANK?
If someone knows her bank, her branch and (? maybe her street and town ?) . . . donations can be handled through her bank.
Anyone can deposit funds into anyone's bank account - they need not have the account number (nor should it be floating about).
But, again, a manager who is very adept is best to handle that.
PAYPAL would also be an excellent method if she has a PayPal account. That goes right to the bank account - but a private email address is needed to make the transfer. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I think we should post this question to Bea, who will be reading this.
What would be best for us to do to help you, Bea?
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
Dekrator48 - good idea! I called Bea, but I didn't ask the question. I just offered.
Posts: 124 | From Maryland, USA | Registered: Jan 2010
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posted
If Bea and Steve have a Paypal account, it is really easy to set up a paying system through ChipIn (http://www.chipin.com/) which uses Paypal.
It's easier for those donating as they don't have to go through the process of figuring out how to do Paypal to someone directly, and yet it's *clear* where the funds go to (you'll see Bea's Paypal address when donating, and it will go right there).
Just a thought to simplify, not further complicate -- but if it feels too much like the latter, never mind : )
Posts: 929 | From Massachusetts | Registered: Oct 2007
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posted
Or could money be sent to her sister's address?? (I'm thinking her sister has a husband who is at home there??)
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
Maybe prepaid Visa sent to the hospital address provided? She could use it however it's needed?
I will help. Lord if ever we've needed You we need You now. Please heal our brother Steve and let both of them know You are with them. I pray in Jesus' name. Amen.
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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posted
Keebler, great ideas!! Hope Bea logs in soon. any one have update? I called to much this morning, afriad to call more today.
Posts: 124 | From Maryland, USA | Registered: Jan 2010
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posted
Keebler, great ideas! anyone hear from Bea? i called to much this am, afraid to do more today.
Posts: 124 | From Maryland, USA | Registered: Jan 2010
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
So sad they are unwilling to try with some things, the way the tests work. I'm so sorry for both of you, praying - wishing - hoping for the best for you both, always!
Posts: 1927 | From se usa | Registered: Mar 2010
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posted
Dr. W of WI is a founding member of IDSA. He wrote a book about 51 cases of chronic lyme disease from his practice. Does anyone know him? Can he help Steve and Bea???
Since he is a founding memeber,IDSA, maybe the other doctors will listen to him...??
Anybody know him??
**edited name of LLMD**
[ 09-29-2012, 04:41 PM: Message edited by: Lymetoo ]
Posts: 124 | From Maryland, USA | Registered: Jan 2010
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I haven't looked at it, so I don't know how it works or if it's working right now.
Bea did not want to bother anyone and so did not say anything. But I took Dekrators' advice and jsut asked. LymeCFID , thanks for bringing up paypal. I had no idea!!
Posts: 124 | From Maryland, USA | Registered: Jan 2010
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tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
Hang in there Steve and prove them all wrong and teach them a thing or two in the process!!! Been holding my breath all day....
Posts: 2541 | From Northeast | Registered: Jan 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Great news about Steve. Hope he feels better and better. Good light and energy to Bea, too.
I can only send good thoughts and hope there is the best nutrition on hand for Bea there. Were I to live near there, I'd be bringing down some good carrot & ginger juice, Hummus and Baba Ghanouj.
I'd also order a string quartet. Virtual ambiance.
Massage therapy for patients and visitors.
I could be the concierge extraordinaire for medical centers. I know everyone would get better quicker were I to be in charge, eh?
In no way to pressure anyone, yet for those who may be in the position to help, it's a little hard to find, so:
posted
Go Steve! Keep fighting!!! We are all behind you two and praying and sending hugs and love. Thanks for the Paypal Info.
Posts: 929 | From Massachusetts | Registered: Oct 2007
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Keebler .. I'll call you for the concierge next time I'm in the hospital. Boy, do they serve &%$#!!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Jane2904
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Member # 15917
posted
Hang in there Steve!!!
HUgs to both of you.
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Thanks for the paypal info Keebler.
Bea, I hope you can feel our Lord lifting you and Steve up. We are all right there beside you, praying, and cheering you on in this fight.
Love and hugs!!!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
Keep fighting Steve!! Bea all the best wishes and prayers from my end
Posts: 183 | From ... | Registered: Oct 2011
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I don't know what to say except I'm terribly sorry for all both of you have gone through. These doctors belittle one's life w/zero remorse. If this was their family member on that bed, would this be the same with the doors closed? It's a sickening state of affairs and a true wake up call what a huge risk everything is both ways.
One puts their life, faith under a LLMDs care. This is what always has scared me terribly. When the true disasters happen, they have no power/influence to do anything for their patient. However, believe me, I realize the doing nothing route can yield disastrous results too.
Praying for the best for you and Steve.
[ 09-29-2012, 11:49 PM: Message edited by: seekhelp ]
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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jackie51
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posted
You are both in my prayers.
Hugs...
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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nefferdun
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Member # 20157
posted
I am so sorry he is doing worse and in such critical condition. I hope and pray he has a turn around. Hang in there. Everyone on lament loves both of you. You are the best.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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lax mom
Frequent Contributor (1K+ posts)
Member # 38743
posted
Even Dr H stated that the Tularemia test is also highly inaccurate and cultures cannot be done because of the risk to lab personnel.
The cure is 10 days Gentamycin...what the &%@# would it hurt for them to give him 10 days Gentamycin?
"Because of the difficulty in culturing F. tularensis, most cases of tularemia are diagnosed on the basis of CLINICAL PICTURE and/OR serology (23, 103). Serological tests for the diagnosis of F. tularensis infection are attractive because diagnostic work involving culture procedures carries a risk of infection for nonvaccinated laboratory staff (20, 88)."
Bea,
Where 2 or more are gathered in His name, He is among them....well, there are all of us on Lymenet claiming healing for Steve.
-------------------- Tick bite in 2006, bullseye rash, treated with 2 rounds of 2 weeks of doxy. (once in 2006, once in 2009) Dx with chronic Lyme May 2011. LLMD April 2012, Treating with omnicef/zith Lots of supplements! Posts: 640 | From Connecticut | Registered: Apr 2011
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posted
Praying for Steve and Bea. May your strength and health and life force increase. May all be well. Blessings to you both.
Posts: 873 | From WA | Registered: Dec 2005
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