13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
Still praying...
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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posted
They better not hold you financially responsible for everything from here on. They could list just about "anything" as a "complication."
I think we'll ALL be down there picketing if they try that on you two!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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lax mom
Frequent Contributor (1K+ posts)
Member # 38743
posted
quote:Originally posted by Lymetoo: They better not hold you financially responsible for everything from here on. They could list just about "anything" as a "complication."
I think we'll ALL be down there picketing if they try that on you two!!
I agree with Lymetoo. It's not like he was choosing to have cosmetic surgery.
AuntyLynn
Frequent Contributor (1K+ posts)
Member # 35938
posted
What a saga!
When Steve pulls through this, you two should write a book - sell for movie royalties - and pay for every dime these dingbat doctors ran up by ignoring your initial pleas, and a lifetime of treatment to boot! Maybe you can buy a small tropical island where you Both can recover!
May God Bless Steve, with a miraculous response to the meds these docs refused to give to him. May he Strengthen you both - and keep you in his protection, and bring down a glorious healing for Steve. As above, so below, Father. This we ask, in the name of Jesus, our eternal Savior. Amen.
Posts: 1432 | From New Jersey | Registered: Jan 2012
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Praying and praying!!
Wow, great article that Bea sent!!
Thanks, a mom for posting it.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
You go, Bea! That's really good news.
Continued prayers with the two of you!
Posts: 2549 | From never never land | Registered: May 2005
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Praying that Steve is improving on the meds, and Bea and Steve are filled with renewed strength.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Bea,
I'm sure you've considered this but, in the whirl there, things can get lost.
Acetaminophen blocks the liver's ability to make and manage GLUTATHIONE. Some kinds of liver support may help offset that.
I know that hospitals are known for passing out acetaminophen like candy rather than actually address the full range of other pain relief measures
[and IV Glutathione is one method to help in so many ways - as long as it's not at the same time as medicines].
Just good to keep in mind.
Hope Steve continues to improve. Hope you are feeling as well as can be expected.
Hugs. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
Before I close my eyes tonight I will lift you both up in prayer. Asking for the Lord's blessings for the two of you.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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Bea called and asked me to post a New Thread. I don't know how to do that. Can anyone start a New Thread for Bea's info:
Steve is dying from ARDS or lung failure from unknown causes. Docs think his heart will give out but can't say when. For example something as simple as turning him over in bed can cause his oxygen levels to fall -- even on a ventilator at maximum (100 % oxygen).. Other times his heart rate slows to dangerously low levels instead of the oxygen falling.
The docs are pushing for me to change Steve's code status (now at full code) or even to pull the plug on the ventilator. Undecided what to do about code status right now -- but pulling the plug is NOT an option at this time.
I am trying to decide what to do next to help Steve.
Once I get the Clongen blood smear results I need to come up with a new plan of action.
Addendum:
Babesia meds are still on, WBC down to 11,000. She did not say if he had fever.
Bea is trying to reach a doctor Dolores recommended: Dr. Thomas W. Nash (Columbia Presbyterian). Pulmonary and ID.
Bea called, but office was closed. I sent an email for HELP. Is anyone friends with him and could reach him for Bea?
Posts: 124 | From Maryland, USA | Registered: Jan 2010
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posted
Prayers needed please. When I called Bea, the Pastor was in the room with them.
Posts: 124 | From Maryland, USA | Registered: Jan 2010
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
Oh no! I am very sorry to hear this. I am praying for a miracle for Steve.
Does Dr. Nash have an emergency number? There must be a way to reach him.
a mom, I tried to copy this into a new post, but it does not look right. Hopefully a moderator can start a new thread.
Praying for a miracle.
Posts: 4681 | Registered: Oct 2000
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posted
I'll post a thread for Bea. I'll post it in the Medical Section in hopes that it will receive more views and, hopefully, some help.
Posts: 503 | From Maryland | Registered: Oct 2007
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
a mom,
I copied your last 2 posts and started a new thread in Medical Questions, only so that more people will see this update for now.
I know it will probably be moved at some point to General Support.
Saying fervent prayers for Steve and Bea!!!!!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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