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» LymeNet Flash » Questions and Discussion » General Support » Hope for everyone

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Author Topic: Hope for everyone
Deshi
LymeNet Contributor
Member # 30949

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I just wanted to post something. I was a member here in 2010 and became very active as I became very sick. I'm 24 now and have been through a lot of stuff. I got down to 125 lbs/ (5' 10") a suicide attempt, IV, going nuts, feeling like there was no hope. I am off meds and living my life. I am not perfect, I still have pain, sometimes it gets worse, sometimes its better, but it never leaves. I have eaten gluten, dairy, sugar and am still alive. I have even had alcohol and not had major setbacks.

I have my life back though, I am a musician and have been gigging, practicing, and keeping up with kids my age who have no problems. Its so hard, and its taxing, and its impossible to find anyone who understands. But I am applying to universities and am likely to be accepted to some schools. I just wanted to share with everyone. I used to sit and read all day and praying that I could do what I did before. And it happened. So please never give up, and know that it will end. You can have your life back.

I wish you all the best and thank you to everyone who ever talked to me, listened to me cry, listened to me in my darkest hours. I will never ever forget what lyme has taught me. I will always keep spreading the word for us and hopefully one day no one will have to go through this, but let it make you a better person. Not a bitter one.

I have a blog about things I do or how my progress is. I would love to share whats going on in my head with you guys.

Be well

Jon

http://alvarezthegreat.blogspot.com/

Posts: 105 | From Ca | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
jessicabooklover
LymeNet Contributor
Member # 39427

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Congrats on your recovery...I needed to see this today, as I am in the thick of this crap right now, as is someone I love a lot. I am so happy for you-thanks for giving me hope! I know you still have struggles, but you have come a long way and that is amazing. I hope things continue to improve for you. Jess.
Posts: 870 | From ct | Registered: Nov 2012  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

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Hi Deshi! I remember your story because my husband is a professional musician too. I am so glad you are able to play again!!

Maybe you'd like to post your encouraging story here:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/3/15820

Thanks for coming back to help others!! [Smile]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
lpkayak
Honored Contributor (10K+ posts)
Member # 5230

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jon-its so important that you came back to tell us. as i was reading that i was thinking about jessica . she has been having such a hard time and even tho ive been thru a lot with this disease i havent known what to say to her to help.

your story is just what she needed and she saw it. great timing.

please keep coming back...and have a wonderful life!!!

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
   

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