momindeep
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posted
Today asking the Father for His providence to interceed on your behalf. Prayerfully asking that it will be well with your soul. My petitions and concerns continue for you aand your family.
Praying that your worry comes to an end and fearfulness is gone from your heart and mind...that you can have the peace that passes understanding infuse your being.
That the Lord will lay His loving touch upon you and that your countenance can be renewed and strong.
He loves you so much sammy...
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Sammi
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I am still praying for good news sammy.
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Lord, we ask you to cover sammy with your Love and your Mercy. Give her strength to go on, to continue her fight. Give her peace and courage.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Dogsandcats
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Oh Sammy, my heart aches for you. I will be praying for you. I am so proud of you to make all these phone calls and to keep trying. God hears your cries....
Hugs
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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Tracy9
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Sammy, This is horrible. I am so very sorry for what you are going through. Is there any way you can drop the Cigna insurance so that Medicare/Medicaid would pay? This is absolutely outrageous. I know when you are really sick it is so hard to do anything to fight these things; I hope your Dad is helping you.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
prayers sent your way Sammi!
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Rumigirl
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I am sending love and prayers to you, sammy. Justice MUST prevail here.
One word for you now: LAWYER!!!
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momindeep
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I will be praying for you through out the day.
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sammy
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posted
Thank you for thinking of me and continuing to pray for me. You all are true friends!
I'm sorry it's taken me so long to get back here to respond. I was so terribly sick all last week. I could hardly sit up, wasn't able to keep food down, could barely keep gatorade down sometimes...It was not a good situation. And I had the overwhelming need to sleep all the time.
I'm doing a little better now. I've been able to keep down things like white toast and plain noodles with butter, very easily digestible.
Last week we learned that the doctor's office appeal was denied. We resubmitted the appeal on Fri and should hear a decision by the end of this week.
Please pray that this new appeal/request for IVIG gets approved. We've done all they've asked us to do. They keep denying but don't give a reason for denial (I've been told that they should always give a reason so that you can fix/fulfill what is missing that they are requiring.)
Friends, I truly need a miracle. So please pray for a miracle for my IVIG to be covered. All the glory will be to God for providing this for me. Because right now this feels like an impossible task but I know in my heart that nothing is impossible for Him.
Thanks so much, more than words can express...
[ 04-08-2013, 06:21 PM: Message edited by: sammy ]
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lax mom
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Oh sammy. I am so sorry that you are still being denied.
It appears that a lawyer may need to be involved. I know that's easier said than done.
I am praying a strong prayer for God to make a way.
Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
sammy, I have been so worried about you. This is senseless. Your labs justify the IVIG. Don't they have to give you a reason for denying?
My prayers for you continue for strength and IVIG approval.
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Rumigirl
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posted
At this point, I see no reason why the state AG's office would continue to refuse to help you. That is their job! And the same for the state insurance board. But usually the AG's office is more aggressive in these matters.
I think it's true that they are REQUIRED to give you a reason for a denial, so that can be addressed.
What about the external appeal? You should also do that pronto.
Plus, as I said, it looks like you need to hire a lawyer. But first try the AG's office again, and file that external appeal.
This is just insanity.
Love, prayers, and strength to you.
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Dekrator48
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posted
Praying fervently for the new appeal to be approved.
Praying for a miracle intervention.
Praying for your complete healing.
Praying for you to feel complete trust and peace that God will work this out for the good.
Praying for God to be glorified in this situation.
Praying for the denials to crumble under the powerful and mighty hand of God who wants what is right for you.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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momindeep
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Wow...will put the pedal to the metal in prayer for you. Hang on.
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Praying you will get it! xo
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momindeep
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Continuing prayers for you sammy...and asking forthe Lord's protection while you wait.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Jane2904
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posted
Praying that the IVIG gets approved.
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lax mom
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posted
sammy: I don't know where you are finding your strength but I admire you during this battle. You haven't given up and are still making the calls necessary.
I am still praying for you. Restoration is on its way.
I pray that you will get to the point where you won't even need Cigna's approval!
I have seen miracles in my own family...you are no different.
I know God sees your struggle, how you have handled yourself with dignity despite how dirty the insurance co is playing.
He is holding you in the palm of his hand, protecting you and working behind the scenes on your behalf.
momindeep
Frequent Contributor (1K+ posts)
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posted
Bringing you to the Lord. Asking Him to stroke your brow and hold your hand. Asking Him to keep you safe and shield you from incompetence. Asking for the best outcome. For Jesus's sake and His glory.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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sammy
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posted
Dear friends, I have GOOD news to share, my appeal for IVIG was finally approved!!!
This was a verbal approval and we were given an authorization # but we cannot start the treatment until the infusion co gets an actual letter from the ins co.
Unfortunately, they did get a letter but it said that my IVIG was denied by the plan... very confusing. So my infusion co is trying to get them to correct the letter since we've been given the verbal approval and auth# for it.
So things are looking up. God has truly provided us a miracle
But things are still messy and I/we could still really use your prayers that this would get worked out in our favor.
Please also pray that the approval will be good at least until Dec 31, 2013. So we won't have to go through this again in just a couple months.
Thank you so much.
Thank you with my whole heart!
You all are true friends
Your encouragement and prayers have helped carry me through these most difficult 3.5 months.
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sammy
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posted
Would you pray for one more thing? I heard that my doctor was going to change my dose from 80g every 4wks to 30g every 4wks.
This is the dose that I started at when I was first diagnosed and it was not adequate. The 80g dose barely kept my IgG trough level in the low normal range. My body needs it and uses it up so fast.
So the 30g dose will not be enough, i will still feel stick and still be at risk of infection.
Please pray that my doctor will be open to going back to my old dose that was working for me. And that my ins will cover it too...
Thank you!!!
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Sammi
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posted
sammy, this is GREAT news! Your prayers, and ours, have been answered!
Why does the doctor want to lower your dose? That is a huge decrease. Maybe you can speak to the office manager about this, she seemed helpful before.
I am praying that you will get the dose you need and the infusion ASAP!!
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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momindeep
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sammy...will pray this to the final, perfect outcome...this is so encouraging and good...praises for our Father in heaven for keeping you during this adversity.
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Dekrator48
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posted
God is good!!!
He works out all things for our good!
So happy you got good news!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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lax mom
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posted
Yay sammy!!!!! So happy for your blessing and I will continue praying!!!!
This news and the news of payne getting better made my night!!!
Rumigirl
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posted
Oh, finally, finally!!! But the confusion with the letter denying it??!! And then your dr wants to drastically lower your dosage?? What the blazes? This MUST get corrected---both the letter and the dosage.
My understanding from another friend who has CVID is that every 3 weeks is the most usual protocol for CVID. Given your tough situation, I wonder why he wants it every 4 weeks.
But at least if he can give you the previous dosage, that would be good. Personally, I think more often would be much better, even if the dosage is lower per time. But I am hardly the dr here! (Wish I could rx it for you; I'd give you the higher dosage and more frequently---ha!).
Prayers for you to get this quickly corrected.
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momindeep
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Asking the Lord to fine tune the details for you sammy. He is working this out for you. Thanking the Lord for His loving care and faithfulness.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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momindeep
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Thinking about you. Praying for you ąnd asking for a superb outcome.
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payne
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prayers joined...
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
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Dekrator48
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posted
Praying for you, sammy!!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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momindeep
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In prayer for you.
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Dekrator48
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Praying for God to send all that you need to you, sammy.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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momindeep
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posted
Another day sammy. Iam thankful to the Lord that we can pray to Him without ceasing and He welcomes each and every prayer. I am thankful that He understands our need for prayer and that He encourages us to do so.
So with that in mind I ask the Father to be your present help in this trouble you are experiencing.
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momindeep
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posted
Still thinking on you and praying for things to turn around for you. Hopeful to hear positive news from you soon. Don't give up...will continue praying each day for you.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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posted
The Lord will bring you through this, sammy!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Sammi
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Still praying sammy.
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sammy
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Thank you so much for your continued prayers.
I had my first dose of IVIG last week. Unfortunately, I ended up getting the flu a day later. I had fevers for 3 days, was pretty much bed bound. I'm slowly getting better now.
I have an appt with my Immunologist this week. I'm planning on asking him to change my dose at least back to where I was before. I'm currently getting less than half my normal dose every 4 wks.
I am concerned that the dose change maybe was not what my doctor wanted but what the ins co dictated. If this is the case, we need to find out how to appeal/ change the dose because this low dose will not be adequate for me to get better and stay well.
So thank you, thank you for continuing to pray for me. I know God is listening.
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Sammi
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sammy, thanks for the update. I am so sorry you have had the flu Getting the flu is even more proof that you need IVIG and that you need the right dose.
I don't know how the insurance company can think that getting half the dose you need is adequate. I pray that you can get the proper dose ASAP and get back on track.
Hang in there okay?
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Rumigirl
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quote:Originally posted by Sammi: sammy, thanks for the update. I am so sorry you have had the flu Getting the flu is even more proof that you need IVIG and that you need the right dose.
I don't know how the insurance company can think that getting half the dose you need is adequate. I pray that you can get the proper dose ASAP and get back on track.
Hang in there okay?
Amen!! Thank God you are getting it again. But 1/2 dose??!! This is just criminal what they are putting you through. Let those insurance scrouges live in your body for a few days, then see what they would say! I wish we could do this. sigh.
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momindeep
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The Lord knows your situation sammy...He is working this out for you. Still praying for you.
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momindeep
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How are you doing sammy? Still praying for you and asking the Lord to give you protection and a great help while you wait for answers.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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posted
I know you're very ill and weak, but make sure you document how you are feeling each day. Write it down if you get the flu, a cold, etc.
God Bless You!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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momindeep
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Sammy...I pray for you each day. Don't loose hope! The Lord of the universe knows ALL things.
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payne
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sammy I had some extra Prayer Power I wanted to share with you.. look at this as you need to be here on this earth to continue your goodness and thoughts with those in need.. you go girl.. FIGHT, wayne Mighty is OUR LORD
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
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sammy
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**Update 5/4/13**
Thank you all so much for continuing to stand by me in prayerful support. I am extremely grateful, more than words can say. And I hope you don't get tired of hearing that but it's true. I don't think I could get through this without your encouragement and prayers supporting me.
I am finally getting better from the flu (It might have been a herx?!). That really knocked me down and I couldn't hardly function for quite awhile. So Thank God for pulling me through that.
I also saw my Immunologist last week. Unfortunately, that appt did not go well. Long story short, he does not want to be my doctor any longer. He is also not willing to re-prescribe my normal dose of IVIG, back to where I was (low normal trough range) in Dec before we switched ins co.
He said some very hurtful things during the appointment. Like "you're never going to get well even with IV antibiotics and high dose IVIG". I went into the appt asking for my IVIG dose to be raised back up to normal because I need my immune system supported to get off the IV antibiotics.
So my current dose of IVIG is less than half of what it used to be. I also used to get it every other week and now I get it every 4wks. I know that this dose will not be enough to help prevent or treat all infections. It will help some though so I am grateful to have it.
I have tried to think about what I want and need to do next. I really don't know for sure.
I went ahead and made an appt with another clinical immunologist at Children's Hospital because i've seen her before as a second opinion last year. I did not stay before because she was so busy, I would wait 5+hrs to see her in the clinic, I was just one of many and she didn't remember me from appt to appt.... I guess this is what you get when you see super specialist.
My appt with her is on May 15 so please pray that my new doc will go ahead and resume my previous normal IVIG treatment or come up with a better treatment plan.
Please also pray for me while all of this goes on and I continue to wait. I've really not been doing well. I've been so very sick, I need the higher dose IVIG. My body uses the small amount too quickly.
I do want to add, we have an answer to prayer My dad's company is reviewing how my case was handled (by ins co) and they are allowing any dose of IVIG that the doctor thinks is best. My new doctor just has to prescribe it!
This review may impact the way that our ins co handles future pre-certifications/ prior authorizations too.
So, now that I've overwhelmed you...Sorry! If You'd like, read it bit by bit and pray that way
Thanks so much, you all are true friends!!!
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poppy
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posted
Your former doctor is tired of having to jump thru hoops for you. Doctors do get tired of insurance company demands and it sounds like this one just wants easier patients to deal with. Not your fault.
But this is no excuse to say mean things to sick people. It always surprises me when a medical person just won't tell the truth about the situation and takes the low road instead.
Hope you find someone who will prescribe, now that it may be easier to get this approved.
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Dekrator48
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Thanks for that update, sammy.
I am also grateful for the good news and praying that your new Dr will have a new plan to prescribe larger doses more frequently.
Please do not dwell on what your old Dr said to you. He obviously does not know what God can do.
Someday when you ARE well, you can look forward to showing him what faith, hope and perseverance looks like.
I am praying for you, dear sammy, and will continue to do so until you are well.
"Our God is greater, Our God is stronger, God you are higher than any other.
Our God is healer, awesome in power, Our God, Our God..."
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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momindeep
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posted
Just made my day to read your update. Sometimes when I wake up in the wee hours of the morning I feel the Lord prodding me to pray for you.
During my work day the Lord brings you to my mind and helps me pray for you.
I am grateful that you remain stedfast in your faith and hope...it is a priceless gift from your Father in heaven.
So, I, like dekarator, will continue on this path of prayer for you till you are better.
Let us thank Him in advance for the His provision to come...He is so in love with you sammy.
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Getting the flu is even more proof that you need IVIG and that you need the right dose.
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