I do want to add, we have an answer to prayer My dad's company is reviewing how my case was handled (by ins co) and they are allowing any dose of IVIG that the doctor thinks is best. My new doctor just has to prescribe it!
- Well, THAT part is good news!! Do you know of another Dr you could make an appointment with in case this one doesn't go well? Make two appointments!
I will continue to pray for you! We'll get this done!! God is on your side!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Sammi
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sammy, thanks for the update. It is great that your dad's employer is looking into how the insurance company handled your case. I bet this review will help others who are dealing with similar issues.
I am very sorry that your immunologist is so thoughtless and made such inexcusable comments. He should not be a doctor. I think it is likely a blessing in disguise, so you can get treated by a better doctor.
I am praying for you to get the right dose approved at your upcoming appointment and for strength to get through this difficult time. You have dealt with more challenges than anyone should have to and you have endured them with such grace.
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lax mom
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nonna05
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posted
Hi there !! Still praying for you.......
I really don't understand how your doctor just basically fired you as his patient..Lord at least give some referrals.
Or>> give you what you're asking for for the 45 days he's supposed to cover your med .needs, until you get to help..
I can say that is one good thing from my Kaiser Ins.episode...
They did miss the boat, but as I was leaving my 3 main doctors gave me scripts for outside their system to last six months..
This was so I had at least the minimum to get by.
I pray you find what and whom you need. Did your LLMD help or try to at all?????
How is your back doing.....
My four walls are still purple..meaning I'm seeing them to much...
Actually got out a couple times ,then pow with pneumonia. Took all of April, but I think I kept the ground I gained from LD treatment.
All that to say or ask how that part is going? Your protocol etc.
You sure have a lot of prayer going for you.
Wouldn't it be great if , like the king in the Bible just finally gave the woman what she wanted ,because she asked Sooooooooo often,
Take care, Nonna Posts: 2563 | From Denver,CO | Registered: Aug 2011
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momindeep
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praying for you! Hopeful that you can find goodness in your day today.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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momindeep
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Hi Sammy! Don't know where you live, but hoping springtime is helpful to your mind, soul, and body. Prayerfully talking to the Lord about you. Asking Him to keep you strong, especially deep down in your very heart.
We are standing on the promises of our Father.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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momindeep
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How are you doing, Sammy?
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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Dekrator48
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Praying for you sammy!
Waiting patiently to hear from you again.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Jane2904
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Praying for you Sammy!
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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sammy
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posted
*Update 5/16/13*
Thank you all for your prayers. God is listening!!!
Yesterday I traveled to see my new immunologist. I'm not well so just getting ready is an exhausting physical challenge for me. Then the car ride... so by the time I got to the hospital I was more than spent.
When I went to check in at the clinic and they couldn't find my appt. I was pretty devastated but sadly not surprised. Part of me was waiting for something to go wrong.
Long story short, eventually the receptionist found out that the scheduler remembered giving me that appt. So I was able to be admitted to see the doctor and I only had to wait a few hours yesterday.
I saw both a fellow and my clinical immunologist. After telling them about all the constant infections that I've suffered through this past winter and spring my doc decided that I needed to get back on a higher dose of IVIG.
Instead of having the treatments every 4 weeks I'll get them every other week. She kept my dose the same. So this should really help because my current dose was not keeping my trough levels within the normal range.
I really need this higher dose to help me fight off opportunistic infections and my chronic infections.
If you will, please continue to pray for me that my new dose will be covered by my ins co without hassle. I need to start ASAP!
Thank you so much!
Posts: 5237 | From here | Registered: Nov 2007
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Sammi
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sammy, I am SO happy your appointment went well! Your immunologist sounds like she is knowledgeable and caring.
I am thrilled that you will have more infusions!
Prayers continue that this will be covered and that you can resume ASAP.
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lax mom
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YAY!!!!! All things are working together for your good!!!! YAHOO!
momindeep
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Yahooooo! Will continue to PRAY! In His time...in His time...His plan for you is perfect.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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momindeep
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Just to let you know that I am still praying for you. Hope things are moving forward positively for you.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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Dekrator48
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posted
That's great news, sammy!
Continuing to pray for you!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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momindeep
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Each day I pray for you Sammy. I am hoping that you are okay...and wondering how you are. Talking to the Lord about you.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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nonna05
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PM......am praying
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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momindeep
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Still in my prayers every day.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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susank
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Also still praying. How are you? Any updates?
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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momindeep
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How's it going for you Sammy?
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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momindeep
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I am still praying for you...but wondering how you are? Asking the Lord to help you in all ways...so sorry things are taking so long.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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Rumigirl
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I'm really concerned with no update from sammy, and her situation being so difficult. I emailed her.
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Sammi
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Prayers continue for you sammy.
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momindeep
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Rumigirl...can you let us know if you hear from her? Thanks.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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My dad's company is reviewing how my case was handled (by ins co) and they are allowing any dose of IVIG that the doctor thinks is best. My new doctor just has to prescribe it!
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