Topic: Katie Couric Show/Airing a show about Lyme 10/9/2013
CherylSue
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posted
I love this post on Katie's site from someone in New Jersey. It says it all about today's show. Here it is:
"The choice of Dr. Halpern was interesting. I know so many people who went to him once and never went back. They moved on to actual lyme literate doctors who didn't just tell them they didn't have lyme and then do nothing about their symptoms. The literate doctors they saw actually treated their symptoms and those people showed improvement. Dr. Halpern was never once put on the spot regarding if it wasn't chronic lyme then what was it. He never had to acknowledge why these people got better using protocols such as Dr. Horowitz's when he didn't even have an idea what was wrong with them or how to treat them. It is very sad but so much of what he said was not factual.
Starting a dialogue is a good thing but more stories from actual patients who had been sick for awhile would have emphasized how real this is for not hundreds of thousands but the actual millions who are fighting these horrible infections. Yes infections because Dr. H* LLMD was correct about the co infections and I have never once seen any infectious disease dr. who tested for anything except lyme."
lpkayak
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cherylsue-me too..good find
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Ellen101
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quote:Originally posted by Catgirl: I was so disappointed in Katie with her hand on her jaw (indication of disbelief) the whole time she listened to the first patient.
RH is another clueless clone. Like Doc H said, there are many scientific studies that pretty much prove current standards are antiquated and flat out wrong. Unfortunately, closed minds can't or won't see it.
Yes, by Katie's body language I got the sense she really wasn't buying into the whole chronic Lyme thing.
Posts: 1750 | From United States | Registered: Dec 2011
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droid1226
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One of the two girls featured was useless. Kelly, the first one was fine. But the other had a tingling extremity and groin pain and Horowitz got her better. Hardly a typical chronic lyme patient.
It was very revealing though as to how little headway we've made. None, if any. The IDSA guy says he uses "objective facts" when in fact that is what Horowitz uses.
When IDSA guy says "Any ID dr. will test for these co-infections" he's literally killing people. Because that sentence instills trust in those drs. Therefor the patient doesn't seek further answers. The lyme invades entire body while patient is duped by a lying, misleading system.
Harry Potter did more for us lyme patients today and he did nothing.
Dr. H. actually talked at a regular-person rate - not his peppy "auctioneer" rate he sometimes has to use to fit all of his information into the allotted time! HA! Joke, joke!
Posts: 1338 | From Above the Clouds | Registered: Nov 2000
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Kudzuslipper
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Don't hold out for FRONTLINE Keebler! I love FRONTLINE. But medical shows aren't their forte until its been solved. And then they do a very fair, emotive retelling of a long historical drama like they did with aids... But early on or still in controversy they usually come out on the side of the CDC and NIH and make the sick people look misguided. Look for a show in a few weeks on drug resistant bacteria On FL.
I wish I could watch Katie /dr. H. online. I missed it. The beauty of her doing it pros and cons is that it means the masses are interested in it and want to hear both sides even fluffy! These shows aren't for people on here they are for everyone else. It does mean the discussion is now more mainstream daily.
Posts: 1728 | From USA | Registered: May 2011
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droid1226
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Kudz. It wasn't presented like that. The show opened with Katie briefly explaining the background of lyme. Then Halperin opened with all his "facts"....literally, every one was wrong.....
-95% of lyme is on eastern seaboard between New England and virginia.
-Any ID dr tests for all the co infections.
-When lyme enters the CNS, you may need IV for up to 4 weeks.
-The double blind studies all showed ZERO improvement with antibiotics longer than 4 weeks.
-Everyone gets a bullseye, just some don't notice because it's on their back or butt.
-The tick must be attached for 48-72 hrs to transmit disease.
These were "facts" presented about lyme disease along with where it was discovered and when. Then other facts about the black legged deer tick...That were all true.
Then they went to commercial and Katie came back and said "next we are going to talk to a patient and a dr who claim that lyme can be chronic" after that it was Dr H* dodging bullets and he had less than a quarter of the time to talk than Halperin.
lpkayak
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posted
I remember it exactly as droid said
It wasnt good at all for the masses
Having the conversation could be good...but there has to be a place where both sides are heard equally
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Ellen101
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quote:Originally posted by droid1226: One of the two girls featured was useless. Kelly, the first one was fine. But the other had a tingling extremity and groin pain and Horowitz got her better. Hardly a typical chronic lyme patient.
Why was this useless?
Posts: 1750 | From United States | Registered: Dec 2011
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Abxnomore
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The show has generated 2,017 comments so far on her website. There's something to be said for that and we should keep the conversation going.
The place to voice your discontentment about the coverage is on the post -coverage link. There are 829 comments so far:
map1131
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posted
droid, right! All out and out lies!!!!!!!!!!!!!!1
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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Kudzuslipper
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Droid, I see what your saying after watching those clips. But I still think it will get people talking who wouldn't be.
Posts: 1728 | From USA | Registered: May 2011
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Abxnomore
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posted
Of course, it will. Look at the links above, there are thousands of comments there.
Sure we would all like to have a factual airing of the issues, but honestly how much could one really expect from the net work news knowing that the IDSA still holds all the strings.
She has a wide audience. Think positive that so many viewed the piece.
We can still make our voices hear and voice our disappointment directly to her on her site at the links above. Ask for her to air another more in depth piece on the all of the issues. It can't hurt.
Many have already done so.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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map1131
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posted
I just went back and watched it again. Dr H didn't get to make points during Dr Duck's points about lyme. But Duck was allowed to respond to Dr H points????????
It was really unfair interviewing. I guess I shouldn't expect anymore than what we got. I just wish I could learn not to take all this so personal.
It truly goes to my heart and weighs on me. Every month at our lyme support meetings of which I'm a co-founder, I feel the heartache as 2-3 new members tell their story about going against the medical establishment and how it's effecting their lives.
It effects my health, because I can't let it roll off of me. I take it all personally. I guess I'm not done grieving for myself and how it took so much from me. Therefore I'm grieving for others.
So much went to cutting room floor. I would bet the second woman went to Dr H with many more sx than just a sore groin.
Listing all our sx from head to toe is very hard to anyone to accept.....except a lyme doc that's heard the same things over and over again. Not exactly something people would make up.
Oh well Our day will come. This I know.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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linky123
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I'll take it.
Even though the IDSA guy misrepresented the facts, I think the exposure was a good thing.
Dr H was very well spoken, even tho' he didn't have an opportunity to refute everything. He certainly didn't come across as a quack.
The more people hear about this, the better. And like someone said above, this could possibly lead to something with more substance.
I also thought the first lyme patient's story was very compelling.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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posted
abxnomore -- I would like to know if the comments are being moderated. I posted something to one of the threads and even printed it out proving my comment was there and 5 minutes later it had disappeared.
Also the numbers of comments keeps jumping up and down -- not just a couple of numbers -- but by hundreds.
I just checked and it is now showing 915 and 1219 comments on the 2 threads.
I hope someone out there in the lyme world is capturing the comment threads so they don't disappear in a week or so like frequently happens with tickborne newspaper articles that get lots of comments.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
There are actually a total of 5 video clips from the show. If you click on any of the links posted by OptiMisTick you should be able to view all 5 video clips.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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bcb1200
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Personally, I thought Dr. H didn't do a good job at all. He came across as if he was mainly trying to sell is book as he constantly referenced it.
It would have been better if he just focused on his approach to treating lyme, how the IDSA is wrong (cite other research) and his results.
Plugging the book constantly cheapened his value to the discussion.
posted
That's true, bcb. He should have mentioned it once.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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droid1226
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Ellen, because that's hardly the typical chronic lyme patient. It's a little diminishing to the entire disease to have a patient with groin pain and tingling, then state that Dr. H "cured her of that".
Kelly was great.
Dr. H was not his typical self.
Dr. H was our best shot at speaking up for ILADS and speaking out against the IDSA.
He didn't do that. He wasn't on his game, maybe it was terribly edited(seemed it was-a whole segment was left out), maybe the lights were too bright, or maybe he just wanted to sell his book....Idk. He wasn't the same fast speaking, genius that we've seen in person or at a podium.
It was bad all around. We need an unbiased platform.
It may have gotten the conversation going, but it gave a lot of misinformation to millions....so I'd rather Katie have just done a show about something she's good at, like a monkey riding a dog or a skiing squirrel.
lax mom
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I think he kept mentioning his book so that people would buy it and get the whole story.
It's not like he's going to get rich on a $17.99 book. I think it's a bargain for a hardcover with over 500 pgs. I just hope it's not 500 pgs of confusion (like Dr. S the mold guy's books).
posted
Agree, Droid, Halpern lied and lied. ELISA is an accurate test of all the Lyme species in the USA? Dr H gets high marks for remaining calm at that point.
There was SUCH an unfair division of time between the 2, with Halpern getting the lion's share.
Also agree that it was a mistake to plug the book. I think the book will be amazing and set a new benchmark. But it was jarring and made him sound like a salesman.
And I know this is trivial. I love irreverent, flamboyant dress. The wild multicolored floral tie would be great when among friends in an ILADS conference. But it was not the best choice in a televised debate with an ISDA zombie clone who effuses mainstream respectability.
Perhaps he wanted to say: "I refuse to shrink into the background and be marginalized. I'm an LLMD, I'm loud, and I'm in your face. Deal with it. And while you're at it, deal with Lyme." But that doesn't work when the director's cut leaves you with only a few nanoseconds of air time...
Posts: 431 | From New England | Registered: Dec 2011
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posted
I think from the shows perspective they would say the IDSA and ILADS got equal time because they would say the time given to patients counted as ILADS time.
I went back and watched the videos again today and found it less upsetting the 2nd time around. Hopefully by presenting two such opposite views the general public would at least do some research and not so readily accept the IDSA line. And patient stories are what gets peoples attention.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Abxnomore
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I agree, Bea. Of course, we all hoped for more but consider the show that this was aired on. Any information at all that gets the public to think is good and the amount of comments it generation on her site can't be overlooked.
Dr. H. is plugging his book and that's to be expected. Many authors do but for the public to know about this book is a good thing.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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lpkayak
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Good point bea. I guess they should have had a patient who suffered for a long time and then got better with idsa protocol
I wonder if katie and company are stupid, scared or just got a call from oprah
She could have pam or brooke on and set things straight but i wouldnt hold your breath
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Ellen101
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So I'm prepared to get a lot of flack for this but I have to say as much as the other doc was wrong about a lot of things he did bring up some valid points. It is important to remember its not always Lyme causing the symptoms and other possibilities need to be investigated. Also the point that all the treatment may have adversely affected the body and perhaps its not chronic Lyme, just the mess that Lyme left behind.
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lax mom
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Check out this link. The Drs answered a few of the facebook questions. Giving Dr Halperin equal time to spew more lies is going to lead to deaths.
lpkayak
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posted
it would have been so much better if they asked the same question to both docs...
i give them credit for providing a place with more equal time tho
it surprises me they did that
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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linky123
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One other thing I noticed that was great, the first lyme patient kept referring to her md as 'lyme literate'.
I think she got her point across and you know the IDSA guy had to be fuming over that.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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