posted
Well... today I didn't do much, but on Thursday I was able to vacuum my Grandma's house! I haven't been able to do that since March of this year! It took me two hours, but I wasn't ready to collapse from knee/ankle pain by the time I was done!
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Er-- clarification on that last post. I first started noticing something was wrong in July of 2010. It started with pain in one ankle... spread to both... then both knees. Nothing we tried helped, and nobody could tell us what was wrong. Finally found out I have Lyme around a year ago (?), but the various treatments we tried weren't working. I ended up pretty much confined to my room/ not walking/crutches. Now we're trying Rife machines, have been doing that for a couple months now, and in the last week alone we've been seeing improvement. Very exciting!
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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lpkayak
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Well tutu i know im doing too much and i am so ready to stop
After i took ibu i had two hours of being able to walk. I remember i didnt take any cuz gi was so bad yesterday
I got the offuce closet ready and bath has to be finished before bed cuz i have it all on my bed to sort...just threw away saline for cleanung after surg a year ago
I knew when i started ibu 30 yrs ago this day would come. My choice is walk or die from bleeding ulcers
Im so tired. I guess i can try more fish oil and maybe more curcumin.but i think the curcumin messes up my gi too
I hope most of construction is done next week and i can just settle down for winter
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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How much curcumin are you taking? It bothers my stomach, but it is all I take. I can't take ibuprofen or even tylenol.
So maybe if that is all you take, your stomach can handle it. I take it every 6 hours.
Praying for ya, gal!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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lpkayak
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Im ok ... or i was before this last gi thing got so bad...ok with one morning and one night
But it seems you have to take more for pain...i was going to try totake more but not sure if i c as n yet
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kam
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phase 1
When health allows:
Check weather
In my mind I thought I was going to be gone a weeek or two...then realized we are leaving Thursday am and hoping to be back friday night as far as my part of the trip.
Pack including Rosie's food, charger for power chair, portable DVD player, Rosie's working vest, intense muscle spray, ice packs, meds, poop bags, food...
I will report in when able to what i hav egotten down It helps me stay focused kind of.
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kam
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This morning my mind told me to start packing with what health i had to workw tih.
But, then my mind kept changing channels. I scooped today's cat poop out of her box and started to drive it to the VEt.
then, decided maybe I should just find another home for the cat and wrote up a sign and put it on the community bulletin board.
Then, decided I really should have her poop tested to see if she has anything. And bring the results to the LLMD.
I have been seeing posts on FB about how your cat could be causing you illnesses. But, not able to read them.
I was dx with toxoplasma in 1984 while pregnant with my younger daughter. She also was tested and it came back positive.
But, the doc did not know what to do about it. I did not even have a cat.
I know I have bartonells. I did not have a cat then either.
OK getting off topic I think.
What I did this am wore me out. Resting now and then I will get up and see if I cna do some more. But, most likely will not be able to do anything until this evening.
Also able to wash a few dishes but still have more to do.
Looked for Rosie's working vest this am but couldn't find it. It has my debit card in it also.
The dirty carpets are really bothering me thsi am adn the couch and car seats....they have been bothering me for years but no funds to get them cleaned. It is on the list.
Somedays they bother me more than other days. Today is one of those days.
Typing this with eyes closed so hope it makes sense.
The next get up besides getting something to eat is going to be to plug in the small power chai rand charge it.
I also am going to have the caregiver get the heavey raMP OUT FROM THE STORAGE WHEN SHE COMES TOMORROW. sHE WILL NEED TO MOVE SOME BOXES IN ORDER TO DO SOL.
pLANNING ON USING IT TO LOAD MY POWER CHAIR INTO THE VAN.
iT IS NOT A RAMP TO LOAD POWER CHAIRS INTO V VANS BUT A RAMP FOR DOORWAYS INTO A HOUSE....BUT MAKING DUE.
hOPE MY FRIEND CAN HANDLE IT.
hOPE WE CAN FIND A WAY TO TIE DOWN THE POWER CHAIR.
nOT SO SURE ABOUT TAKING IT IF WE CAN'T TIE IT DOWN.
iT WAS FINE WHIEL i WAS IGNORANT. bUT, NOW THAT I KNOW WHAT DAMAGE A POWER CHAIR CAN DO IF IT IS NOT TIED DOWN AND WE HAVE TO STOP SSUDENLY..I THINK WOULD RATHER NOT TAKE IT.
at ONLY 20 MPH IT CAN DO SOME BRAK THE SPINE INJURY'S IF YOU GET HIT BY IT IN THE CAR.
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kam
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vEG TIME. i ALSO TOOK ROSIE OUT TO THE FOREST AREA AND TO THE DOG PARK ON OUR WAY BACK FROM THE VET.
QUICK OUTINGS
ROSIE DID HAVE A GOOD RUN THIS AM WHILE I DROVE. SHE NEEDS TO BE GROOMED TOO AND THAT IS BOTHERING ME ...BUT DONT' AHVE THE FUNDS TO GET HER GROOMED.
dAM NEIGHBORS DOGS ARE YAPPING...BUT HAD MY EAR PROTECTION MUFFS IN BED WITH ME SO ALL IS GOOD..GOT THEM ON.
bOTTOM LINE IS i DI NTO TAKE EXCEDRINT HIS BUT i AM STILL VERY SHORT ON PATIENCE AND FRUSTRATED THAT I CAN'T DO THE THINGS I WOULD LIKE TO DO.
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kam
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Breathing....
Checked weather for area we are traveling too. 80 degree high. we will be in a hotel so nights willl not be a concern.
able to wash a few more dishes but need to rinse them and put them out to dry
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kam
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ok got the small power chair plugged in to charge
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LisaK
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hi everyone.
welcome SWF
I started my new job today.
4 hours and it was so exauhsting. I wanted to cry when I got in the car after my shift. my eyes wer buggy, my hands hurting, back aching, . so it felt like a total relapse.
I had no idea I would feel this way . I thought I was ready to do this, now I am not too sure. how can I do it? standing the whole time at the cash register. they put me right there. it ws so hard to remember what to do an d to deal with all the stuff.....
coupons, disctounts, rewards cards, .....how can I remember it all? I kept messing up my employee password. then I realized I mispwlled it when I first typed it in and so I had no idea what I actually typed! How embarrassing.
should I quit? I don't wanna waste their time or mine. all for $7.60 an hour! not sure it's worth it. that was 4 hours, wed it will be 5 hours. just the thought of that makes me want to cry.
mu husband says I need to get used to it. it took me 2 hours after just to start to feel ok again. and there went the whole rest of my day.
I can't find any positives in this. what was I thinking.
they told me I did really well for my first day though. haha
not by my standards, but I think I have become an dexpert by now on how to pretend I have no symptoms until I hold them in so long I wanna burst!.
I hope everyone's ok.. I read to catch up but I am too confused to remember who did what right now, sorry.
taking a nap now before it's time to take my next dose of meds.
goodnight y'all
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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Lisa .. Give it a week! Cut yourself some slack and see how it goes.
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lpkayak
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Wow kam...good luck. Its good to know you have someone helping you. I think it would be good if you could find cat a home. My fruend loves her ct so much but i read alot it can be harder to get well with cats. Dogs too but not so much. Im afraid to say anything to my friend cuz she really loves that cat
I was able to take two curcumins this morning and didnt get gi sx so im feeling good about that
I was supposed to do kitchen today but weather was good to work outside. So i did. Im.all ready for workers
Still need to finush kitchen for pest guys on thursday
Im thinking about buying a rife machine. I had a long talk with someone who has one and was able
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lpkayak
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To get a bunch of questions ansered. It can help me with the cancer things and othrr problems different than lyme. Also can do dog. And parasites...the person i talked to has me almost ready to starting the DE that has been in my cupboard for a year
So...im kinda in a better mood. Still smell cat urine. Still whreze after being in carpet room. Still out of breath from standing.
But looking forward to nov 1st...no more construction
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lpkayak
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Lisa...do they know you have chronic illness? Im wondering if there is a way to get a stool to sit on...i know when i ran a register...one of last jobs before i went out on disability...if i was sitting i was able to think better
My hands hurt from making change but other things were easier
The friend i visited last weekend at the lake is starting a register job 8.00 an hour. She has to drive 20 miles each way...i dont think she'll evenmake gas money
Hope every one is ok
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Kayak... How many mg on the curcumin? Space them out if you can.
If you decide to get a rife machine, I know where you can get one for $500 and it's worth at least $1000.
I'll be out most of tomorrow.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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LisaK
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kayak, yes a stool would be nice. I may ask.. I am shy that way. I don't know why. and they do know I have lyme. I'm sure they know nothing about it though.
I drive 10 miles each way. my friend says it's not worth it. I am really getting anxious about going back tomorrow. probably psyching myself out. the other workers were not friednly at all and this makes it all worse.
not one- not one- introduced themselves or said hello or even carried a conversation when I spoke to them.
is this how people are now? I had a temp job a couple years ago (making candy! yum) and the people there were super nice and professional.
the person that hired me for this new job was super nice during interview and paper signing on Sunday (2 hours of signing papers for a $7.60/hr job!!) but yest when I started she was not nice and was kind of mean. maybe she just having a bad day?
I am just used to much more from past jobs as far as co-workers go.
just thinking about this is giving me a stomach ache and makes me feel like crying!
lymetoo, you may be right. I am just so sensative.
well, today I drive for the last day to my face cream job. it is a nice quiet drive and I get $93 for ten minutes! so THAT is worth it!!!!
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kam
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Came here to re read what i had posted and most likely delete it but vision is not doing well enough to do that righ tnow.
Typing with yes closed.
Mia, the cat, got a clean bill of health on the poop sample. Whewph.
Hoping to be able to pack my overnight bag and food and rosie's food, find her vest, make sure i pack my depends, meds, intense muscle spray, ice packs, face maks, peltor ear protection mufffs and ear plugs, cot, and hamock..guess that is about it.
just tyhping it out is too much right now.
Ah yes. need to find list of things i wanted to discuss with llmd's assistnat.
don't know if i mentioned it but with this llmd you don't see the llmd until the 3rd visit...first two are with assistants
hoping to do further appts via skype or face time or taht thing the doctors' do here which i can't recall right now..telemedicine i think it is called.
i need to find a local doc who does that.
i was able to get the power chair charged yesterday. need to double check this am to make sure it worked. sometimes the switch is off.
i didn not think of htat until righ tnow..i usually try and check it
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kam
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The person from the FB state support group who had a drawing and drew my name to help out someone to get treatment....did not follow thru on it.
So hoping the doc will allow me to make payments on my part of the medicare bill.
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kam
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got up and got the overnight bag out and started to put the shampoo and other bottles i use when camping in it then realized i didn't need to have dish soap and whatever those other bottles were. i most likely will not be using them.
rosie gave me the look so took her out to toilet in the dark this am
got back and too weak to continue trying to put things in the overnight bag.
sure hope the doc is able to get me more caregiver hours so i can start doing a better job of eating each day....although not so sure that is the issue
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kam
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OK. able to get nightgown in overnight bag, toothbrush and toothpaste...and 3 days of dog food for rosie...
resting now..brain and body are really struggling...took 2 excedrin to see if that will help
next get u pwill be to have some food
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When are you leaving, kam? When will you be back? You're taking a cot and a hammock?? Will you camp on the way?
VERY sorry that person did not come through for you on the money. DANG!
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kam
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We are leaving at dawn on Thursday if health allows.
I am taking the cot and hammock in case I need to stop along the way and just lay still and quiet some place as health usually can't handle being in the car very long.
I also can't handle being on the cot either very long for some reason. I seem to be OK if I am camping and in the tent.
But, for some reason, I don't do OK if I am laying out in the open on the cot in the forest as I try at times...20 min is the most I usually last.
Havne't figured out why yet. Maybe because I was trying to lay on my side instead of on my back as I do in the tent.
That reminds me...bring pillows and cover.
It looks like the person is going to come thru afterall. She said she got it off late so even if I don't get it in time, it will work out.
Not sure why but I feel like having a good cry. When I saw the email my friend sent me from the company she is renting the van from it brought tears to my eyes and I am not even sure why.
Fear is also a factor..but I think that is because I am so low functioning ...I am OK with that.
I also am having to face how much lower functioning I am than when made my last trip to CA to see a LLMD years ago. ..maybe 8 yrs ago..
DRove Rosie out to the forest area...I wasn't planning on it this am but she kept giving me the look..and it is something i can do..as the car moves my body
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kam
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Ok able to get some camping pants and top and shorts and top in clothing bag .....camping pants are stained but at least i know they fit kind of...might change them later whne I have what it takes to try on some other pants.
I put some pants on today that are nice but too long..i tried to cuff the bottoms but they just came off..they most likely will work as I dont need to be walking with them while riding in the car or power chair.
able to put a can of soup and a can of veggie chili in the ice chest and some nuts in a baggie
can't do restaurants or drive thru's so bringging my food....i figure we can stop along the way in a quiet place and eat
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kam
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Just noticed the happy columbus day at the start of the thread..
i saw a sign on FB that said...happy columbus day..does this mean we can take whatever we want??
Back down resting now...
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kam
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able to put out some baking soda on the carpets ....for the caregiver when she vacuums them.
hoping it will help the house from not smelling when i come back home or when my neighbor comes in to check on the cat
i am not sure it was worht whhat it took out of me health wise to do that
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kam
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Ah..next get up I need to add my bib
I also put some treats in a bag for Rosie...i need to get some of the soft treats from the car and put them in a bag too...
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kam
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I found Rosie's working vest. It was right were i looked before but brain never saw it.
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kam
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OK Got the ramp out of the storage unit on the patio.
Caregiver did it. I just showed her where it was.
It is heavy duty. It is not for loading a power chair in to a van but that is what we are going to use it for.
It is for being able to go over a door into a house and to stay permanent...
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kam
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ok got the intense muscle spray packed
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LisaK
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good luck Kam. I will be thinking of you!
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lpkayak
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I wished you luck on the other thread. Sure do hope its worth what you are going thru to get there
I contacted a primary doc who takes ins and has a na who is LL in office
The severuty of my gi stuff last week and being reminded i am soclose to not being able to walk at all got me thinking i need to get some help to get organized with tx. I have just been abusing myself since may trying to make house right and my health has really suffered
I dont have appt yet. They will call me tomorrow. I also ordered a rife machine too. I made a new friend and she says she will help me set it up. Im thinking of cancer and gi and obesity and adrenals and thyroud and arrhrutis as well as lyme
I didnt get much done tody. I was dustracted with phine calls but they were productive. I did a little in kitchen but it needs a lot more. I watered flowers and i used the new truck.and this thing to tow cars out of ditches to pull the last rose bush out of the bed
I am having to movee all plants away frim house and put stones do we n to deter mice and chipmunks
It broke my kayak straps the first time i tried...so i went and bought heavy duty things. Im glad i got it done without hurting me or etta or the house
Oh...and i found the tomatoes i had wrapped in newspper and put under cabinet when we got a freeze a few weeks ago and h as f if them are red! So im still eating timatoes, kale and brocolli frim garden
Then i had the tick scare nd that took up time. And i also moved plants and did short ozone tx to crpet. It need a lot more
Anyw as y...close to bed now. Handyman didnt call...sure hope he comes thurs or fri
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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lpkayak
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Ps...and parasites? For the rife machine
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LisaK
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[QUOTE]Originally posted by lpkayak: [QB] all got me thinking i need to get some help to get organized with tx. I have just been abusing myself since may trying to make house right and my health has really suffered>
I think it is good you relise this.
Today I woke up feeling pretty ill. giant headache, nausea, aches. it's prbably my treatment.
I am ironing . that I can do sitting here. ironing folds to sew . making dog bandanas to sell. that's pretty much all I plan to do today.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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Lisa, maybe you can come up with new ideas for the bandanas to sell even more quickly. Can you personalize them with names?
Kayak.. sorry you are having to move your plants. I nope those guys aren't just making you spin your wheels for nothing.
Take care.. I will be out most of the day again.
Bon Voyage, kam!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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LisaK
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personalize. I like that. I have an old machine so I can't really make names with stitches. but maybe something else?
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kam
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ok able to take a few pictures of the sunrise...we had some color this am.
even taking pictures does me in and i need to be cautious when doing so
able to get my bib in the suitcase and the portable DVD player in the backpack
need to go down the hall and see if a netflix dvd was delivered in the mail box when able
got rosie out to pee...still need to drive her out to the forest area
able to make a cup of detox tea
able to order checks..i had high anxiety about ding this...i was all out of checks....
but alll went smoothly..brain was able to handle it on line
i had taken a couple of excerin this am which usually helps
tomorrow if health is doing ok we are leaving for the road trip to llmd
a neighbor is getting me groceries this am
i can't go thru drive thru's or sit up and eat at a restaruant so bringing food...hoping to pull over to a quiet spot when it is time to eat
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kam
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also got kleenex packets in power chair bag and suitcase and purse...
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lpkayak
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Havent really gotten started yet. Didnt go to bed til 2 am. Made myself get up at 9 so i go to bed early...hope the guys come tomorrow. It will be very stormy and my job is inside as nd othet job is outside...so i really hope they come and i can move forward
I ran ozone last night and again this morning in carpet room Dog and i are outside now while it clears out
I made appt with clinuc r That is LL...two hours away...nov 20. I need to focus on health
Its yucky here-really humid...i plan to organize kitchen and living room rest of dy
Pest guy comes tomorroe too...he wont see the bees i complain about in pouring rain
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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quote:Originally posted by LisaK: personalize. I like that. I have an old machine so I can't really make names with stitches. but maybe something else?
Perhaps hand embroidery or beading or iron-on applique?
And thanks Lisa for the welcome, and you too, Lymetoo. Posts: 21 | From USA | Registered: Aug 2014
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quote:Originally posted by LisaK: personalize. I like that. I have an old machine so I can't really make names with stitches. but maybe something else?
- Look on Etsy and see how others are doing it. There may be another way.
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I got to see my husband play in the jazz band last night. It was gratifying for me to do so. Because of my horrible foot pain for the past 2 1/2 yrs, I've been unable to attend his concerts.
So .. I was also able to video his solos. He did well. It may take him a day or two to get them uploaded to You Tube, but I'll let you guys know when they go up.
I won't post them here for privacy reasons. Or I could post them and then remove them after 24 hours.
Today I went to a Christian women's luncheon. We also had a silent auction. I bought some sweets for my hubby. The speaker was really really good. I bought her book, titled "I Saw Heaven." The author's name is Patti Miller Dunham. I can't wait to read it!
She's originally from MO and lives in TX .. the opposite of me!
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lpkayak
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Its late morning and i am slow. I am finally dressed and ready for handyman. He didnt call but ut is only raining lightly now. Later itwill storm and my job is inside so i hope he will come. Im pretty sure hes working outside now
I have about three hrs before pest guy comes. I know they think i am crazy. Part is memory. Part they keep switching the guy who comes. I smell dead mice where no one else does...but i know they are there. Under the kitchen cabinets. So gross.
Etta bit me this morning. Puncture. I got my rife machine and she got one of the packing peanuts. At first i thought it was funny-she was throwing it in the air. Then when it got wet it stuck to the side of her face. When i went to get it she bit me. It must have tasted good. I never saw a peanut get all stucky like that.
I put her in office for time out when i took a shower. Shes back on my lap now
Hope kam does well. Sorry to hear about lisas niece.
Guess i better get ready for the pest guy
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
Thanks kayak.
I have been sewing as much as possible. pressing with iron.
need to go grocery shopping
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
I went to hospital last night to see my niece and sister that is sleeping there with her.
I walked from the parking lot so that was a tiny bit of exercise. My husband and I took the dog on a medium walk last night also.
today I hope to clean a little. be there is my sister needs me. and sew and get ready for a flea market tomorrow that I am going to try and sell things. For that I will need to wake by 4:00am. that I can do, but staying awake and not napping then driving home is what worries me.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3592 | From Eastern USA | Registered: Jul 2013
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Good for you lisa to do what you can to make money
How ws niece?
I had triuble getting to sleep cuz of pain. I did a lot prepping for worker and pest guy
Worker didnt come or call. He hasnt answered about five calls/messages
I sent him.big check in mail with note to please fit in my small job...probably half a day for him and i can get back in my bed. Uts si hrd sleeping on daybed now with knee and shoulder pain...i have to prop mysekf up with pillos in bed or sleep in recliner and that makes other problems
Anyesy it was pouring when pest people came so we couldnt deal with nesting bees but good report about mice. Very small hints they have been here and it could have been 3 months ago. Looks like chipmunks have mived in. They are eating all mouse bait. It doesnt kill them but it kills their babies and they have 5 or6 twice a year so i guess i amslowly getting rid of them. They dont seem to get in house but live under slab and i am afraid ticks and fleas will come up thru tiny cracks like ants do
I guess i will spray the orange guard once a month or so even if i dont see any. I usuallt only spray when i see them
Oh! I posted tht the orange guard killed the tick in two minutes but i guess it didnt when i showed it to pest people four days after i thought it was dead it had crawled about six inches up. Im pretty sure it did die...but nevet say never with a tick. They survuve a lot
So it seems orange guard is more like deet...slows them down but takes a long time to kill them...maybe when they are sick they cant attach
Gees...what do normal ppl talk about.
Also pest guys put bait in camper...they eat it-prefer it to wires andd then they go outside to tunnels to die
Smell of dead ones under cbinets made me sick yesterdy...we had a lot of rain. I have to buy. Jigsaw orhire someone else to explore under cabinets...so close to being done
Tody im trying to sort, sell, store all the clothes and linens i had stashed in camper in may when all thus started
For fun i will open my new rife machine and try to read about it
Last night i found over 100 conditions it treats that i have so i have to learn more. Im on the rife thread now
Also doing laundry and putting kitchen back together when i can breathe in there
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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