sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Tincup, shouldn't be squirrely .... I only deleted the posts from the end on up, didn't adjust things in the part that remains!
If people get back on topic, it can stay open, but if it turns back into a discussion of board rules, it will be closed and official warnings will be sent!
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
Well, there's a part of me that is saying to him "go for it!"
At some point, docs on the front lines treating the sickest of the sick have to stand up to this all-powerful, conflict-of-interest-laden group of thugs, er doctors.
Doc J did it. And maybe this doc will prevail too. I hope so. Godspeed to him.
Posts: 1885 | From here | Registered: Jul 2012
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Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Dr. J stated in his blog that he doesn't prescribe the drug mentioned to kill Lyme; it is to treat MCAD (Mast Cell Activation Disorder).
Doctors can legally prescribe drugs for "off label" purposes (often times it is done more frequently than for the purpose they were intended).
The FDA only regulates approval of the drug/medical device itself, NOT the way it is prescribed by doctors.
True, the ISDA has its own guidelines for treating Lyme Disease...but Lyme is not what he is purportedly treating with this drug...
Posts: 2072 | From Earth | Registered: Jul 2013
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Dr. J stated in his blog that he doesn't prescribe the drug mentioned to kill Lyme; it is to treat MCAD (Mast Cell Activation Disorder).
- Makes sense because I think a lot of Lyme patients have this.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
beaches, I so admire each and every one of the doctors who treat Lyme disease. I do. I wouldn't have spent the past 3o years fighting with everything I could muster if I didn`t. I hope you understand that, I really do.
I hurt and cry for these doctors more than they do for themselves.
You said ... Doc J did it. And maybe this doc will prevail too.
Not sure which Dr. J you are referring to, but working on both Dr. J`s situations ... CT & NC... I can assure you prevailing isn't the for word I would use for the end results, far from it.
Then I thought, well maybe folks just don't know...
Both were embarrassed and publicly shamed for years, both were taunted by their peers, both lost their cases & sometimes multiple times, both were heavily fined, both had enormous you wouldn't believe legal bills, both lost patients as a result, and both were, as well trained doctors in their fields, not to mention proud upstanding men, punished for doing what they knew was right.
Both were stressed to the point they suffered immensely, both doctors and their families were terribly hurt with their lives disrupted at best, and shattered otherwise. Both are still after all these years paying emotionally, financially and professionally for what they did.
One was sued by an insurer for a million or more dollars after the medical board case, one went bankrupt, one has nearly lost everything multiple time since, one had to pick up and move not once, but twice since then. One had to pay a bucket load of money for court ordered monitors and had to plead for money from friends and strangers, like someone on begging on the street, just to keep going.
Both stranded some of the sickest of the patients in the middle of treatment who had little to no hope of finding another doctor, some with IV lines still attached.
Both, bless their hearts, still worry every single day if this horrible nightmare will happen again.
That is what the IDSA wants to do, make them hurt and make them pay for not obeying.
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Thanks for the analogy, Tincup...but I have to disagree with its relevance to the prescribing of Claritin for MCAD.
This is not an example of committing the same offense twice.
The prescription of a drug for a condition other than Lyme (whether the patient is infected with Lyme or not), is not an ISDA guideline issue, or an FDA regulation issue for that matter.
It is a common, acceptable, and legal practice for doctors to prescribe drugs for "off label" conditions in a manner in which they see fit.
So...this action is not in violation of any laws or guidelines. To question that in a court of law would be fodder for any defense attorney, as it is the practice of virtually all doctors.
Are you saying that none of the doctors in Maryland are allowed to prescribe drugs for "off label" conditions, and/or because of this doctor's past "violations", he would be held to a "standard of care" different than his peers?
Posts: 2072 | From Earth | Registered: Jul 2013
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beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
TC, I am referring to the great Dr. J. In CT.
He was hardly embarrassed about the absurdity of it all when we visited him numerous times for appointments from '08-'11. In fact, he displayed his remarkable sense of humor time and again.
Posts: 1885 | From here | Registered: Jul 2012
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
This article and abstract below are setting you all up to get hit hard. This will be supporting evidence for a list of specific things that the upcoming Three Stooges & Chainsaw Gang`s Lyme Disease Guidelines will recommend against you getting, your insurance paying for, and the doctors from prescribing.
I had one doctor who wouldn't even mention a medications name. I had to bring in the bottles and even then he was really freaky about it. He ended up pointing to them so I knew what to take. And this was a simple OTC medication.
And if the forbidden items are utilized, like the Claritin, it will be another reason, or medical charge, to use to take out your doctor.
````````````````````````````````````````````````
From urine therapy to vitamins: study warns of untested Lyme disease 'cures' HELEN BRANSWELL, THE CANADIAN PRESS 05.25.2015
You know these guys are something else. Reminds me of the woman who accidentally ran over her husband in a parking lot after a heated argument. Three times.
Clin Infect Dis. 2015 Apr 6. pii: civ186. [Epub ahead of print] Unorthodox Alternative Therapies Marketed to Treat Lyme Disease.
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Beaches, so glad you only saw what he wanted you to see. In front of patients who love him it is easier to put on a smiling face. Not so much with others. We worry about him.
And like with me, sometimes this gets so totally stupid and insane, there is nothing you can do, but laugh.
If you were at some of the many hearings in CT you may have noted another side of this wonderful man. This 2 minute clip doesn't really show it all the way, but maybe you will notice a slight difference.
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
Tincup...
I appreciate all the energy and time you put into your post. I realize you have been fighting for a long time, and understand how frustrating and exhausting that kind of work can be.
I don't deny that justice isn't always served, or maintain that it will be in this case, especially where Lyme and the ISDA is involved.
However, in the scenario you describe (which again, I am not doubting the injustice of), this doctor would have to refrain from prescribing virtually anything for his patients, even, for example, something as innocuous as aspirin as a blood thinner (could be considered "off label").
As a doctor, do you realistically expect him to do that? He would be voluntarily giving up his rightful powers and duties as a practicing physician...and might as well just resign now, plead guilty without contest, and lay down belly up in submission before the ISDA.
Is this really what we want doctors to do?
In your previous post, you state "He is going down and he has no defense". Well then, if that were me, I would like to think I would have the courage to continue practicing within my rights until the very end. At least it sends a message.
Giving up and giving in ultimately doesn't do anything to further the cause...
Posts: 2072 | From Earth | Registered: Jul 2013
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Good morning!
Appreciate you not attacking me as others have done for answering their questions with facts and or my opinions. I think we are getting somewhere here, be it slow and painful, but we are both trying. Thank you.
Tell me if you will please, what you think this doctor should do. We need some fresh ideas. And not just on one topic or point.
Considering his professional practice, his personal life and possibly a family involved, the extreme amount it will cost for a defense, his age, and the assumption, in my opinion, he will not be able to win this case or come out of it unscathed.
And the fact he has not been friendly to ILADS doctors over the years which leaves him more venerable, and the fact the idiots will come back after him if he were even partially successful as they do with others, and considering he has patients that have no where to go right now, if he closes down, but travel out of state for help if they can find it.
Also, considering 13 others have been charged that I know of prior to this case, just in Maryland, with more in the line of fire here and in other states, partially depending on the outcome.
I am working on a plan, on my own, and thinking through it with all these and more factors involved. I could really use input to see the downfalls, and what and who we have to physically help move us forward.
All input, without the attacks, would be nice. Thanks!
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238
posted
I think we agree that the current system is corrupt.
The only way I know of to deal with that, is to expose it. The charges are already public record anyway.
The most powerful avenue for exposure in this day and age is the MEDIA.
This story needs to be in the hands of a national/world investigative journalist team, where the truth can be brought to light.
Grassroots efforts can be very powerful if directed to the proper sources. For example, what if 100's or 1000's of us were to fill out a simple online request-for-story form to ABC World News:
It could even be simplified for people by offering a sample request that could be copied and pasted.
If the network was deluged with enough requests for coverage of the same story, it may be considered. Stranger things have happened.
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