I have a family friend who is an MD. This person does not believe in chronic lyme. We have been discussing the Embers paper, and he believes that the paper shows that Lyme is actually NOT persistent.
He says that this is being overlooked:
"With regard to culture of spirochetes, none of the treated animals yielded a positive culture and only one of the untreated animals was culture-positive (lung tissue). "
We still don't know whether spirochetes remain pathogenic after antimicrobial therapy. How can we tell if they are just picking up the presence of residual spirochetes or antigen?
I think that is my biggest fear. My lyme disease was cleared years ago and what I am experiencing is just auto-immune, or some other environmental illness.
-------------------- *Man did not weave the web of life, he is merely a strand in it. Whatever he does to the earth he does to himself- Chief Seattle, 1854* BullsEye 2005 Dx Lyme, Babesia, Bartonella, EBV Posts: 41 | From New England | Registered: May 2015
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- If that MD is not ILADS educated, he will not have the necessary information to make such a determination. And one paper can NEVER be enough to make such a sweeping determination.
You say in other thread that you " have done oral meds, followed by IV meds due to serious neurocognitive issues. I did great for about 2 months, then I started to regress. Kind of at a loss of what to do. . . " (end quote)
That is not likely long enough - for some it can take much longer - but I don't know the level of treatment, the expertise of your LLMD, the full range of lyme, TBD or other stealth infections that you may have on your plate.
The kinds of liver, neuro and adrenal support is also key.
Are you being treated by an ILADS educated LLMD who follows the main scope of Burrascano?
There are other ways to approach but, believe me, to jump into the "autoimmune" arena at this point is just not accurate IMO. To jump into treatment for that umbrella category, too, can spell disaster with immune suppression.
Immune SUPPORT &/or MODULATION is good but not suppression.
Be sure to read Pamela Weintraub's "Cure Unknown" about her journey.
See the documentary "Under Our Skin" and "Emergence" the followup.
Until you see those and at least glance at Weintraub's work, it's going to be impossible to get a sense of this. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
one of the links does not go through any more, still, just wanted to be sure the detail about addressing the cyst mode - and other forms of lyme - is considered.
[ 05-26-2015, 12:06 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
It seems that people who don't believe in persistent lyme cite ~4 studies that are fairly limited in scope, 2 of which where shown to be flawed.
Then Pro-persistence side, we only have animal studies, which right away is fingered as NOT human thus irrelevant.
I happen to think persistence in multiple animal models seems pretty indicative that more is going on.
As per my treatment, I was on two antibiotics at a time while doing IV, so there was only limited times when I was only on 1. The times I was on one antibiotic, I was taking herbal formulas as well, so I was never alone in one type of treatment.
-------------------- *Man did not weave the web of life, he is merely a strand in it. Whatever he does to the earth he does to himself- Chief Seattle, 1854* BullsEye 2005 Dx Lyme, Babesia, Bartonella, EBV Posts: 41 | From New England | Registered: May 2015
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