Topic: Help,Still with the UTI, Angry, #13 reply more info'0n issues
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hello <<<<< LymeNet Family >>>>>,
The Nurse Prac. at the UC had the same question we are wondering, Why didn't they try to issue you another, ABX?
Even w/ the Allergies and Intolerance issue,there should be a willingness for the Drs., Uro's etc. to try one or more other ABX.
So we went with Bactrim, which I have a bad headache reaction too, with children's dose of Benydrl allergy med' to hopefully stop any serous issues.
The NP,is trying to locate an ID Doc' that will take us,thru the Amerigroup-madicaid, with the UC folk as the Doctors. Since even now there is still no return call from my PCP's clinic/office.
<<<<< Tinny >>>>>,no word from the folk you mentioned yet either. I know this is a very busy time for them.
It is discouraging, that Amerigroup is so limiting in who can help one get referrals for specialists. so we are hoping this will work.
TxCoord,is healing well, but still gets tired between grocery trips, and DR./therapist trips. His and mine [well not therapy for me].
I will try my first Bactrim in a bit w/ supper, and pray that there are no serious side effects.
At least I have something to try to fight this with now. Don't understand why it isn't going away tho'.And it is making my sinuses act up too.
I'm signing off for now...
Jus' Eeyore drifty-tired Silverwolfi... [unlike Ol' Eeyore Donkey TxC' and I are determined to find something that ...Will Work...]
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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me
Frequent Contributor (1K+ posts)
Member # 45475
posted
Glad you got Bactrim and glad TXCoord is healing well. Praying for y'all.
-------------------- Just sharing my experiences, opinions, and what I've read and learned. Not medical advice. Posts: 1431 | From USA | Registered: Mar 2015
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posted
Thanks for the update. I'm so glad you were able to get to Urgent Care .. but I hope you will grill the stupid PCP's office for lack of treatment.
Hoping and praying that the Bactrim will go OK this time.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi there <<<<< me, and Lymetoo >>>>>,
Thanks for the prayers and kind tho'ts, we still haven't heard anything from anyone to do with this mess. Aside from the UC, getting us the Bactrim, which we hugely appreciate.
TxC' is calling the UC tomorrow to see if the Nurse Prac' was able to find a ID Doc' that would take me. If they have found one we haven't been called as yet.
My concern is that they wont be allowed to, as they are not my PCP, and -A'G'Madicaid- is really strange with their regulations.
No calls from PCP's staff either. So TxC' is working on a letter, and I don't think they will like it but this has gotten ridiculous. Something has to be done... we are wondering if they are doing this to everyone in this Medicaid plan.
<<<<< Tinny >>>>>, still no communication from the One that you mentioned as of this afternoon.
So far I am handling the Bactrim ,with minor itching, but I have been getting leg cramps and cramps in my hand too. Lately my heart starts beating really fast over nothing,and anything. So I don't know if it is meds related.
TxCoord and I have decided if I have any more issues, we will just go to the nearest ER that takes my plan. I am really tired from all of this.I don't like hospitals. But, I'd like to be around for a good while longer.Provided it is in Creators plan for me to stay here on earth.
So that is where we stand for the moment.
Jus' Silverwolfi updating...
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Just communicated with the S's office AGAIN in Nevada and they are calling you right now. If they don't I am going to blow up a storm and rain all over them!
So sorry you've had to wait, but then again, it's the government!
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Oh <<<<< Tinny >>>>>,
TxCoord is on the phone with someone from your Specific Individual, explaining what has been happening... so we'll see what happens.
Will update this as soon as I can... when we find out more [and provided I can get back on, had trouble getting on to LymeNet this morning, don't know if it was our laptop or what?!].
BBL ... Jus' Silverwolfi here
Edit in: here, His office called, and a couple folks will call back tomorrow,to give and get more info' as to what is up,and what might could be done.
So we are hopeful that soon there will be some sort of resolution to all this mess.
Jus' Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Tinny >>>>>,
Haven't had today's call yet, but yesterday they called on the late side so they may still be able to call.
Because TxC' has help from a Congress-persons VA Liason. The folk that called us yesterday, don't cross that boundary.
They are researching to find out what can be done about current issue w/ me and the Drs. and staff thru my 'Madicaid' .Their person who deals with that,legislation and so on, is supposed to call, hopefully they make it today.
TxCoord briefly explained yesterday,and they will want more detail today.
As to his VA compensation for disability, between the American Legion, and the new Judge,[former one quit],we found out today,that it is no longer a court case, the new Judge is reviewing it.
Don't know the outcome, it was supposed to be finished in 2013, and the former Judge, kicked the case back to VA, for not doing due diligence in researching findings.
Quite frankly, the VA folk,trying to say he doesn't deserve the Compensation, did not research very well,and were not properly prepared. Our proof is mounting, that He is in disabled from 'Presumed Herbicide exposure'.
AO definitely was used on his base,As were a 'rainbow' [ they used all sorts of colors as code names] of other chemicals, and the Security Police were in fact exposed.
We are hopeful,of just and due compensation, this stalling, and going back and forth round and round feels like a tennis match,and we are the tennis ball.
As far as my stuff, we are waiting on the second call,and TxCoord is working hard on a letter of complaint. he took a rest break so I'm on the Laptop for a bit. This weirdness should not happen to anyone.
Gotta go for now. Thanks again so much for the help,we'll update as more news comes in.
Jus' Silverwolfi here, Tired from the meds, but glad to be getting some sort of treatment.
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hi <<<<< Tinny >>>>>,
Didn't get the follow up call today, but we know this a very busy time for those folks.
So hopefully they can return call in a day or two.
We appreciate this all so much!
Jus'silverwolfi
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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