posted
I am in a bitter arguement with my county department (Davidson County, TN) and trying to get my case of lyme disease reported. Has anyone in the year 2007 been diagnosed with lyme disease in Nashville? I really want to get this reported. The CDC's definition of an endemic county is a county with 2 confirmed cases of Lyme disease. TWO! Report yours!
Posts: 38 | From Chattanooga, TN | Registered: Dec 2007
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bettyg
Unregistered
posted
we have OTHER nashville members; so my answer would be YES!
why don't you copy your entire post, and put it in SEEKING DR. TOO?
BEFORE doing that, go down page by page and look for NASHVILLE, TENN. llmds!! then send a PRIVATE MESSGE to those members to ask if they were bitten there?
i think that might work the best for you; or at least it's a PLACE TO START!! good luck!
thank you for reporting it and trying to get others to report it!!
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pmerv
Frequent Contributor (1K+ posts)
Member # 1504
posted
Dear J, check out TennesseeLyme. The moderator is very knowledgeable and might be able to help you. Did you have a positive ELISA and a CDC positive blot? The counties are unlikely to count anything less.
posted
Hey! There are not any LLMDs in Tennessee as far
as I have researched. I searched Nashville,
Chattanooga, and most of the area betweeen. I
had to travel over 500 miles, like many, to get
the diagnosis from my positive ELISA and western
blot test. I actually had a feeling it was lyme
and went to a walk in clinic and told a nurse
practioner that I was in college microbiology
and would get extra credit if she would do it.
This was after being sent away from three
infectious disease docs and numerous doc offices
(general and neuro) in tears and pain. How
stupid of me to think a positive test (Now 2
positive Blots and ELISA) would start
treatment. My FORMER infectious disease doctor
that diagnosed me ONLY with rocky mountain (she told me that a tick can only have this in TN) in
2006-- laughed at me and asked why such a smart
biology student would want to pretend to have
lyme. I only pursued it so hard because I
learned about the bacteria--and got scared and
more sick. Well, pre-antibiotics the walk-in
clinic called and told me a county employee
would not stop calling asking how I had lyme in
TN?! I was very angry... and decided to call her
myself. She went on to tell me that they have
had "lyme-like" diseases but it was very
unlikely that I could have this. Yet, she could
not define: HME, HGE, and tick vector illness on
that phone call. I became angry and told her
she could report it as this if she could find a
doctor for my case-and stressed the need of long
term antibiotics. I gave her 48 hours and asked
her to wish her lucky stars she would not have a
daughter or young friend become sick with
this and NOW have an OUTSIDE PERSON telling me I
didn't have anything. She would not help me
then or now. When I got the full diagnosis I
asked if I could come down with assistance and
USE MY TIME to teach her on the threat of
coinfections and how diseases do not run from
state lines. She refused. I asked if I could
bring my papers stating my diagnosis. She again
refused. She told me to have my doctor fax my
papers and I am waiting till Monday to give my
twice-weekly call to make sure she is going to
report this. I know a lot of you understand how
lonely this disease made you... from family,
friends, and the medical community that you once
trusted. I never knew the county department
would get in my life and try to change my
diagnosis. I am pursuing actions with her
supervisor soon too. The tennesseelyme yahoo
group is so not working for me now... not
exactly sure why. Would love to join that--if
that is the correct link or error on my part?
Thanks for the input everyone!!
Posts: 38 | From Chattanooga, TN | Registered: Dec 2007
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Bugg
Frequent Contributor (1K+ posts)
Member # 8095
posted
I sent you a private message several days ago about our group in Nashville with lyme. I hope you received it. Please PM me if you need anything....
Posts: 1155 | From Southeast | Registered: Oct 2005
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pmerv
Frequent Contributor (1K+ posts)
Member # 1504
I think we really need to strategize about what can work in this type of situation so we don't have sick people beating their heads against walls.
-------------------- Phyllis Mervine LymeDisease.org Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001
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pmerv
Frequent Contributor (1K+ posts)
Member # 1504
posted
Bugg I hope you will join, too. I really feel people in each state need to get together and start talking. This has got to stop.
In CA we got a dr protection law, provided certain conditions are met.
We also got lab reporting.
Some things we tried for we haven't got yet.
Education of healthcare professionals is the main thing. The CALDA grants have been very popular and successful. A doctor from my neighborhood who went in 2007 has diagnosed 30 cases since he came back from Boston.
-------------------- Phyllis Mervine LymeDisease.org Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001
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posted
I am in Knoxville. I just joined the yahoo group.
-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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