posted
dilly, thanks for showing comparisons; i was going to look into that also, but just too much going on with hubby's cataracht surgery yesterday too!!
what a good news days on 4 different areas!!
IP: Logged |
That summed it up perfectly - even for my scattered brain to comprehend
Posts: 589 | From Rhode Island | Registered: Jun 2006
| IP: Logged |
sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
you're welcome, betty and luvs.
i needed to go through both word for word to understand the important details anyway.
what i trust is that our collective brain always works best.
--d
Posts: 2507 | From lost in the maze | Registered: Aug 2006
| IP: Logged |
daise
Unregistered
posted
OK savebabe,
I wrote Michael Moore another letter.
It's a good idea, everybody, especially with so many useful links to AG Blumenthal's win and links to, for example, the 5 minute Under Our Skin video plus, on the same page, the alarming links to patients' video stories.
posted
Thanks so much Dilly! That clarified tons for me.
thanks,
Anneke
Posts: 364 | From California | Registered: Sep 2005
| IP: Logged |
sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
Anneke- your welcome.
i just went back and edited the comparison. hopefully, it is a bit easier to read
Posts: 2507 | From lost in the maze | Registered: Aug 2006
| IP: Logged |
posted
I think that Lyme activists / LDA etc needs to put more money into media relations.
I spent the whole day yesterday emailing and faxing press releases to every paper in RI, and what came out was an IDSA slanted version, seemingly against us - or belittling us - and you gotta know that they spend a fortune on their media coverage.
We need to have money raised just for those purposes so we can get the real information out to the public.
This is ridiculous what they have done! I am very disturbed by the article that came out after what I sent them. It is a minimized version of the APs article, clearly slanted.
I sent them the press release from Blumenthal's office.
Posts: 589 | From Rhode Island | Registered: Jun 2006
| IP: Logged |
bettyg
Unregistered
posted
luvdogs,
i'd be upset too after all the time you spent sending them ACCURATE info; and they printed more of idsa HOG WASH!
quote:Originally posted by luvdogs: I think that Lyme activists / LDA etc needs to put more money into media relations.
I spent the whole day yesterday emailing and faxing press releases to every paper in RI, and what came out was an IDSA slanted version, seemingly against us - or belittling us - and you gotta know that they spend a fortune on their media coverage.
We need to have money raised just for those purposes so we can get the real information out to the public.
I totally agree with this - fight fire with fire, we need some lobbyists and PR experts of our own! -karen
[ 04. May 2008, 01:10 AM: Message edited by: cs ]
Posts: 205 | From northern california | Registered: Apr 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/