posted
THANK YOU FOR FOR BEING A BIG PART OF GETTING THE NYS BILL PASSED,
NOW WE URGENTLY NEED YOUR HELP ONE MORE TIME!
THIS FINAL PUSH IS NEEDED MAKE NY STATE BILLS S07854 AND A07558B NYS LAW!
NEW YORK STATE RESIDENTS USE THE VOTER VOICE LINK BELOW TO CONTACT GOVERNOR CUOMO TO TELL HIM TO SIGN THIS INTO LAW, TO ENSURE LYME DISEASE PATIENT RIGHTS TO TREATMENT
PLEASE SHARE THIS WITH YOUR FRIENDS AND FAMILY ASKING THEM TO JOIN US
After doing the above you may wish to read the following--------
The Press Release and Report by the NYS Senate State Lyme Disease Task Force is astounding in its breath of important initiatives proposed for combating this scourge, including adopting “a resolution calling on the Centers for Disease Control to reevaluate its guidance on Lyme and other tick-borne diseases and for the National Institutes of Health, the Department of Defense, and other federal agencies to provide more funding for these diseases.”
posted
I hope many of you will do this. This time there's a specific way for non-New Yorkers to register their opinions. But we do need many, many New Yorkers to weigh in on the bill.
Remember that this is a bill that essentially limits the power of a government agency (the OPMC, the medical disciplinary board) and we are asking the head of all state government agencies to sign it. Letting him know how serious Lyme is to so many people will help us convince him. Ellen
posted
Hi folks, As of tonight there were 400 letters from New Yorkers generated on the votervoice site. We don't know how many from out of staters , since votervoice only tracks New Yorkers. Please do everything that you can to get as many letters and phone calls to Gov. Cuomo.
We do not know where he stands on the bill and his vetoing it could really mean the end of getting help with doctor protection in NYS. A veto would make it hard to get the legislature to deal with the issue again because they would expect another veto. So please get the above request for letters out to everyone you know ASAP Thanks, Ellen
Posts: 819 | From New York, NY | Registered: Oct 2001
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I've sent the link to everyone I know, basically everyone in my address book.
We need everyone's support here.
We must make this happen. No one can afford not to act. It really takes all of four minutes.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
Thanks so much for doing this. I hope everyone else here is doing it. The attack against our doctors is one of the main ways that the IDSA used to keep us from getting the care we need. In NYS we have some of the best known Lyme doctors who treat patients from across the country. We need to make sure doctors can treat us without fear of losing their licenses.
If people are not familiar with this issue, please write here and let me know your questions. Thanks, Ellen
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Posts: 819 | From New York, NY | Registered: Oct 2001
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Special link for NY residents to ask Gov. Cuomo to sign Lyme doctor protection bill. Other contact options for those outside of New York.
Message from New York Lyme advocates:
NY state residents:
Even if you have already contacted or intend to contact Governor Cuomo via phone call or personal letter, we are requesting that all New York State residents use this link (in addition) to contact the Governor and urge him to sign S7854-A7558B. Please add a personal note concerning how Lyme disease has affected you or your friends, family, and neighbors to the beginning of the letter.
Using the votervoice site helps the NYS Coalition for Lyme and Tick-borne Diseases to document how many requests Governor Cuomo has received from NYS residents.
People who don’t live in New York: Non-NYS residents can use the contact information below to call or write Governor Cuomo and urge him to sign S7854-A7558B. The votervoice link will not work for non-NYS residents but it does contain a sample letter that users can copy and paste as part of their individual letters.
The Honorable Andrew M. Cuomo Governor of New York State NYS State Capitol Building Albany, NY 12224 (518) 474-8390
Bill S7854-A7558B - Prohibits the investigation of any claim of medical professional misconduct based solely on treatment that is not universally accepted by the medical profession:
In addition to this legislation, the NYS Senate’s Lyme Disease Task Force recently released its report. Read more here:
The Press Release and Report by the NYS Senate State Lyme Disease Task Force is astounding in its breath of important initiatives proposed for combating this scourge, including adopting “a resolution calling on the Centers for Disease Control to reevaluate its guidance on Lyme and other tick-borne diseases and for the National Institutes of Health, the Department of Defense, and other federal agencies to provide more funding for these diseases.” I am posting links to both below.
Our work is just beginning to hold the NYS legislature to its commitment on these important initiatives, including addressing insurance denials and the need to update our physicians on important new research, such as evidence that supports persistence of infection and polymicrobial infection as reason that many patients remain ill after short-term treatment.
One particular interest of mine is the fact that many of the innovative new tests that are available to Lyme patients in all of the other 50 states are denied to NYS residents. As a result of this short-sighted policy, I had to go out-of-state to get many important tests that helped our physicians to properly diagnose and treat the multiple tick-borne illnesses affecting my family members. The Task Force Report recommends that “the Department of Health re-evaluate the tests and facilities it authorizes for Lyme and other Tick-Borne diseases in order to help facilitate earlier diagnoses, and better outcomes, across the State.”
New Task Force Report & Recommendations to Address Lyme and Tick-Borne Diseases Posted by Majority Press on Wednesday, June 18th, 2014
-------------------- KarlaL Posts: 694 | From New Lebanon, NY | Registered: Dec 2010
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Excellent, share it with everyone you know across the country and in every state. Urge them to take a minute the fill out th3 form and urge the Governor to sign this Lyme Bill into law.
UP!
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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As Governor Andrew Cuomo works his way through a stack of bills approved at the end of the legislative session, people in the Lyme awareness community are hoping he'll ink a bill that will expand treatment options for people with this disease. The co-director of the Lyme Action Network says, the bill will help the many people who suffer from chronic illness after being bitten by infected ticks. . .
Posts: 819 | From New York, NY | Registered: Oct 2001
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
UP
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Come on New Yorkers, if you can't do this, no one can! Fight!!!
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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we also need everyone, whether or not they are from NYS to call the Governor at (518) 474-8390 and ask him to sign the Lyme protection bill S 07854 Ellen
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Posts: 819 | From New York, NY | Registered: Oct 2001
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
we also need everyone, whether or not they are from NYS to call the Governor at (518) 474-8390 and ask him to sign the Lyme protection bill S 07854 Ellen
Yes, non-New Yorkers need to let him know, too. Besides the fact that this affects all of us, not just New Yorkers, he has major presidential ambitions. At that point, he will need the support of non-New Yorkers, also. If he doesn't do the right thing here, he certainly won't have my vote!
Posts: 3792 | From around | Registered: Mar 2008
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
OMG, the response on the automated letters from NY State residents have been way, way too small----only something like 1,555 people as of last Thursday! Yikes, we need way more than that!
Please, please, do everything you can to get these out, including calling people, re-emailing people, re-posting, etc, etc. Whether they are in-state, or out of state.
Posts: 3792 | From around | Registered: Mar 2008
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
UP! THERE'S NO TIME TO WASTE FOLKS. THIS AFFECTS THE ENTIRE LYME COMMUNITY.
PLease fill out the form or call the governor no matter what state you live in. It takes all of three minutes
poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
Then you can call.
we also need everyone, whether or not they are from NYS to call the Governor at (518) 474-8390 and ask him to sign the Lyme protection bill S 07854Posts: 2888 | From USA | Registered: Mar 2004
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Droid, yes you could call but you probably used the wrong link. Did you use this link, the one for non-NY residents?
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
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