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Author Topic: Lyme Disease Obituaries
Tincup
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Dr. Burke- LLMD in Pennsylvania

Bernard S. Burke M.D.

Bernard S. Burke M.D. of Chester Springs Bernard S. Burke, M.D., 57, of Chester Springs, died Tuesday, November 16, 2010. He was the husband of Ottavia P. Chiaradonna Burke.

Born in Pottsville, he was the son of the late Bernard E. Burke and the late Angelene B. D'Antonio Burke. Bernard practiced medicine for 30 years.

He loved to ski, do water sports and many other outdoor activities. In addition to his wife he is survived by his children, Laura Rachko, of Upper Uwchlan, Christopher Burke, of Chadds Ford, Megan Burke, of State College, step-sons, Mario Miceli, of Unionville and Luca Miceli, of Unionville.

He is also survived by two sisters, Jody Gaudet, of Mass. and Donna Burke, of Pa. Relatives and friends are invited to his Funeral Mass, 10:30 a.m. Tuesday, November 23, 2010, at St. Agnes Church, 233 W. Gay St., West Chester. Visitation will be 9 to 10:30 a.m. Tuesday, November 23, 2010, at the church. Interment private.

In lieu of flowers contributions may be made to Lyme Disease Assn. of Southeastern Pa., Inc., P.O. Box 181, Pocopson, PA 19366 Arrangements by DellaVecchia, Reilly, Smith & Boyd Funeral Home Inc., West Chester 610-696-1181, www.DellaFH.com

Published in The Daily Local on November 19, 2010

http://www.legacy.com/obituaries/dailylocal/obituary-print.aspx?n=bernard-s-burke&pid=146690836

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www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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lou
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Hilary Fuller Inks
|

Hilary Inks passed on Saturday, November 13, 2010, at her home in Gotha, Florida. Hilary courageously battled the late stages of Lyme disease during the last months of her life.

Hilary was born Hilary Brooke Fuller on May 15, 1978 in McMinnville, Oregon to Catherine and Bruce Fuller. She attended elementary school and junior high school in McMinnville, Oregon before moving to Lakeway, Texas in 1991. Hilary attended middle school at Lake Travis and graduated in 1996 from Richarte High School in Georgetown, Texas. Hilary lived and worked in the Georgetown, Marble Falls, Cedar Park, Texas communities before moving to Orlando, Florida in 2002 with her husband, David Inks, and her family.

In passing Hilary will join her cousin, Brennan Jones, and her grandparents, Albert and Beverly Beeler and Lou Fuller, who preceded her in death. Hilary is survived by her husband, David Inks; her two children, her daughter, Abigail Inks, age 7, and her son, Aiden Inks, age 4; her mother, Catherine Mabry; her fathers, Bruce Fuller and Tracy Mabry; her sisters, Chanda Fuller, Alex Mabry, Samantha Doven, and Hannah Mabry; and her brother Maxwell Mabry.

Hilary was a wonderful mother, wife, daughter, sister, and caretaker of her own and other's children, and of her Boston Terrier, Hydra.

Hilary ran a day care out of her home in Gotha until she was abruptly forced to close it in February of this year during her sudden hospitalization upon manifestation of late stage Lyme disease and discovery of a lesion upon her brain stem.

Hilary enjoyed all of her kids that she cared for, and she was loved by all. Hilary was a beautiful, kind, caring, strong-willed young woman, and was very giving of herself. She was a dedicated mom to her children, and her heart was always in the right place. Hilary was fun loving and had a wonderful sense of humor; even though she was very sick in the last year of her life she said several times, regarding her experience with Lyme disease: "I wouldn't wish this disease on my worst enemy". She stayed positive and strong until the day she left us.

Hilary's final wish was to raise awareness of Lyme disease so that others would be saved from the infectious disease which often goes undiagnosed but is curable with timely assessment, diagnosis and treatment.

A remembrance and celebration of Hilary's life (with food, drink and memories) will be held at the Saddlebrook Community Meeting Hall located at 3412 Furlong Way in Gotha, Florida (the community entrance is off of Hempel just south of Old Winter Garden Road) in Hilary's neighborhood, on this Saturday, November 20, 2010, from 4:00 p.m. to 7:00 p.m. Anyone who would like to celebrate Hilary's life with her family and friends will be welcomed.

In lieu of flowers and in honor of Hilary's last wish, donations may be sent to the ILADS, the International Lyme and Associated Disease Society, a professional medical and research organization, P.O. Box 341461, Bethesda, Maryland 20827-1461, which can be located on the internet at : www.ilads.org, and contacted by e mail at: lymedocs@aol.com.

Published in Austin American-Statesman on November 18, 2010

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nenet
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quote:
Originally posted by Tracy9:
A young man on Wall Street with Lyme Disease jumped out of a window and took his own life last month. His obituary was widely posted on Facebook. He could not bear to live with the disease anymore and left behind a suicide note.

Here is more information:

http://www.nydailynews.com/ny_local/2010/10/05/2010-10-05_dead_man_found_on_greenwich_village_street_with_mouth_ducttaped_killed_himself_s.html

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Dr. C's Western Blot Explanation

Lymenet Success Stories

ILADS Treatment Guidelines

Medical & Scientific Literature on Lyme

"Long-Term Antibiotic Therapy Improves Persistent Symptoms Associated with Lyme Disease"

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nenet
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If anyone would like to give their condolences for Hilary Fuller Inks, the guest book can be found here:

http://www.legacy.com/obituaries/statesman/obituary.aspx?n=hilary-fuller-inks&pid=146682683

--------------------
Dr. C's Western Blot Explanation

Lymenet Success Stories

ILADS Treatment Guidelines

Medical & Scientific Literature on Lyme

"Long-Term Antibiotic Therapy Improves Persistent Symptoms Associated with Lyme Disease"

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Melanie Reber
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Jena Hellman Leblang, 27, Virginia


Jena Hellman Leblang, 27, of Arlington, VA, and formerly of Sarasota, FL, passed away unexpectedly on Friday, January 14, 2011.

Services and burial were in New York.

Jena was born in Brooklyn, NY and moved to Sarasota, FL in 1989. She graduated from Pine View School in 2001 where she was a member of the National Honor Society, a National Merit Finalist, an AP Scholar, a Peer Mentor, a recipient of the Kodak Young Leader's Award, and won various awards as a participant in the National Forensic League.

During her high school years, she served as an attorney in the Teen Court program which works to keep youthful violators from becoming repeat offenders. She attended Tulane University on an academic scholarship graduating Summa Cum Laude in 2005.

While there she founded the Listen, Learn and Read program to improve the reading skills of disadvantaged children in New Orleans. She was also the coordinator of the Tulane Book Giving Tree, the Community Service Chair for the Kappa Alpha Theta Sorority, a Student Senator, and also participated in Tulane's LeadershipVillage. She participated in Habitat for Humanity, Race for a Cure, was a March of Dimes Representative, and was part of the New Orleans rally for Public Schools.

Jena received the coveted Tulane 34 Award for her exemplary leadership, service, and academic excellence. Jena received her Juris Doctor degree, with Honors, from George Washington University Law School in 2008 and was a Merit Scholar. She was the recipient of the American Bar Association/Bureau of National Affairs Award for Excellence in Labor and Employment Law.

After graduation, she was an associate with the law firm of Goodwin Procter, LLP in Washington, D.C.

Jena was and always will be a beloved daughter to her parents Mindy and Mark of Sarasota, FL, wife to Jay of Arlington, VA, a loving granddaughter to Sandy and Norman and Sheldon, a loving daughter-in-law to Marge and Norman, a beloved sister-in-law, niece, cousin and friend to all who knew her. Jena brought people together with goodness in her heart and always a smile on her face. She had an everlasting impact on each life she touched and instilled in us memories that will forever keep her in our hearts. May she rest in peace.

Memorial donations may be made to the Jena Hellman Leblang Memorial Research Fund c/o The Lanford Foundation at 13039 Gopher Wood Trail, Tallahassee, FL 32312 which is a tax deductible charitable organization.

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racer
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Barbara Frances (Weisse) Weaver, Thompson, CT

Barbara Weaver, 83, died on December 26, 2010, of complications associated with Central Nervous System Lyme Disease. Born in in Boston, MA, on August 29, 1927, her parents were Leo F. Weisse and Nina M. (Durham) Weisse. She was pre-deceased by her husband, George Weaver, as well as by a brother, Leo Weisse.

Barbara graduated from Jeanne D'Arc Academy in 1945 and later earned a Bachelor of Arts in Mathematics from Radcliffe College. She also held a Masters Degree in Library Science from the University of Rhode Island, and a Certificate of Advanced Graduate Study in Education from Boston University.

In the course of her career, Barbara worked as a photographer at Edgerton, Germanhauser and Greer (EG&G), working directly for ``Doc'' Edgerton. She participated in the photography of the atomic bomb testing on the Manhattan Project. She also worked for PhotoSwitch, division of the Electronics Corporation of America.

Barbara married George Briggs Weaver, Jr. in 1951. During their marriage, she and George built and operated the 1st purpose-built private road race course in America, the Thompson Raceway. Over the course of the track's lifetime, the Weavers established a reputation for providing a combination of challenge, safety, and hospitality for competitors and guests from around the world.

Barbara and George were members of the SCCA (Sports Car Club of America). She and he remain honorary members of the Vintage Sports Car Club of America and are considered pioneers of sports car racing.

Barbara was a pilot, a gourmet cook, sports car enthusiast, an avid knitter (including work with Kaffe Fassett intarsia patterns), as well as a NY Times puzzler. She loved traveling worldwide and eventually visited every state in the US, and nearly every continent on the planet. She was an open space advocate who enjoyed the beach and the sun, and loved swimming. In her later years, she was a pioneer for aging-in-place, living in her own home until the end of her life.

Barbara's later career was in library services working as Head of the Thompson Public Library, Director of Library Services for the Connecticut State Library System where she established the Interlibrary Loan System, Assistant Head of the Central Massachusetts Regional Library System in Worcester, MA, Instructor at Simmons College, State Librarian for the State of New Jersey and State Librarian for the State of Rhode Island. She was the State of Rhode Island's first Chief Information Officer and a member of the Governor's Cabinet.

Barbara was also a Council member at the International Motor Racing Research Library in Watkins Glen, NY, a member of the Thompson Historical Society Board of Directors where she helped create the beautiful Ellen Larned Memorial Museum housed in the original Thompson Library Building and where she headed work on the East Thompson section of the Echoes of Thompson Volume I history book. She also was on the Board of Directors of the Rhode Island Historical Society, a member of the National Association of State Chief Information Officers, President of the Chief Officers of State Library Agencies from 1986-1988, a member of the Council of State Library Agencies in the Northeast, on the Board of Directors of the Northeast Document Conservation Center, Chair of the American Library Association ASCLA State Library Agency Section and the Legislative Committee, Editorial Board Member for ``The Bottom Line: A Financial Magazine for Libraries'', and held the elected position of Library Director for the Thompson Library. She was one of the original members of the Thompson Together Environmental Group and held many other volunteer positions throughout her career.

She was awarded many significant recognitions including REIMA's Presidential Award in 1998 for outstanding library service, COLA Sweetheart of the Year in 1997, University of Rhode Island GSLIS Distinguished Alumni Award, Trenton YWCA Women in Industry & Government Award, Common Cause of Rhode Island State Governing Board Award and the WHCLIST Bessie B. Moore Award. As well, Barbara had many publications to her credit.

A memorial reception, in celebration of Barbara's life, will be held on Saturday, January 15, 2011 from 1:00-5:00PM at the Inn at Woodstock Hill, Woodstock, CT.

Please omit flowers. For those wishing to contribute in Barbara's memory:

International Lyme & Associated Diseases Society (ILADS)
PO Box 341461
Bethesda, Maryland 20827-1461
(301) 263-1080
Email: contact@ilads.org
ilads.org (http://ilads.org )

Thompson Public Library
934 Riverside Drive (Route 12)
North Grosvenordale, CT 06255
(860) 923-9779
http://thompsonpubliclibrary.org/

The International Motor Racing Research Center at Watkins Glen
610 S. Decatur Street
Watkins Glen, NY 14891-1613
(607) 535-9044
Send e-mail to: research@racingarchives.org
http://racingarchives.org/

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Me - Igenex: IgM: 41IND, IgG: 39IND, 41+ but Plasmid PCR Positive
Kiddo - after 1 year IV - positive Lyme culture (before IV: IgM:31,34,41,83-93 IND; IgG: 41+++, 66+)

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Melanie Reber
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Alexandria Ann Hermstad, 17, Iowa

Alexandria "Alex" Hermstad, age 17, of Storm Lake, Iowa died on Monday, February 14, 2011 peacefully at her home in Storm Lake.
Alexandria Ann Hermstad was born August 22, 1993 at the Sioux Valley Hospital in Cherokee, Iowa, the daughter of Jeff Hermstad and Lori (Hadden) Hermstad. On December 12, 1993, Alex was baptized at the First Lutheran Church in Sioux Rapids, Iowa and later confirmed on May 4, 2008 at Grace Lutheran Church in Storm Lake, where she served as an acolyte.

Growing up, Alex attended school at St. Mary's Catholic School, and Storm Lake Community Schools in Storm Lake. Alex enjoyed riding horses, four-wheeling, snowmobiling, and boating. She loved playing softball, basketball and volleyball. Alex enjoyed having fun with her friends and family; especially her twin sister, Jaci. She had an infectious sense-of-humor and enjoyed practical jokes. She found pleasure in practicing skills such as wrapping and splinting as she had aspirations to become an orthopedist. She will be deeply missed by all who knew and loved her. Alex loved life as evident from her strong determination to fight her lengthy illness. Alex will forever be remembered as; ``Unable to move, but moving hearts, moving souls, and inspiring lives every day''. She stated that she never wanted anyone to feel sorry for her. Her strength gave us strength, her faith gave us faith, her hope gave us hope, and her love brought us love. Alex's site was known as "Angels For Alex" it is now known as, "Alex, our Angel."

Those left to cherish her memory include her mother, Lori (Hadden) Hermstad and twin sister, Jaci Hermstad of Storm Lake, Iowa, father, Jeff Hermstad of Storm Lake, Iowa; maternal grandparents, Dave and Jean Hadden of Storm Lake, Iowa; paternal grandmother, Colleen Hermstad of Spencer, Iowa; uncles and aunts: Mike Hadden of Indianola, Iowa; Terri (Bruce) Groen of Spencer, Iowa; Scott (Renee) Hadden of Victoria, Minnesota; Brad (Heidi) Hermstad of Sioux Rapids, Iowa; Mike Hermstad of Spencer, Iowa; Tim Hermstad of Marathon, Iowa; cousins: Kady and Brody Groen of Spencer, Iowa; Ashley and Amanda Hadden of Victoria, Minnesota; Heather and Hayley of Hartley, Iowa; Grayson and Kayley of Sioux Rapids, Iowa; extended family and many friends.

Alex was preceded in death by her grandfather, Milo Hermstad; uncle, Bruce Hermstad; and aunt, Denise Kleaveland.


Alexandria "Alex" Hermstad, age 17, of Storm Lake, Iowa died on Monday, February 14, 2011 at her home in Storm Lake. Funeral services will be 1:00 p.m., Monday, February 21, 2011 at Summit Evangelical Free Church in Alta, Iowa. Burial will be in the Storm Lake Cemetery. Visitation will be 2-7:00 p.m., Sunday, February 20, 2011 at the Fratzke & Jensen Funeral Home in Storm Lake, where the family will be present from 5-7:00 p.m. The Fratzke & Jensen Funeral Home in Storm Lake is in charge of the arrangements. In lieu of flowers, the family has established a memorial fund.

http://www.fratzkejensen.com/obit-display.php?rec_id=325

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Melanie Reber
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Vernon Dale Kyle, 55, Kansas

Vernon Dale Kyle liked a good story. Mostly about catfishing on a long forgotten Kansas lake. He was born Sept 24, 1955 in Garnett, Kansas. He had one best friend in those early days, and it was Don. They roamed the Kansas prarie like the buffalo, wild and free! He was raised by Chester and Edna Kyle with one brother and sister, Jim and Aletha. Vernon went into the US Army 82nd Airborne division and it wasn't long before he took his turn in Viet Nam in 1974, then on to Germany. He re-enlisted
into the US Army Veterinary Corps stationed at Ft. Ord, then to an outpost in San Diego, California. He met Peggy Miller
and they married at Cabrillo National Monument at the Lighthouse overlooking the ocean.

After discharge, he moved to Tulsa, Ok where two awesome kids were born, Jamie Lynn in 1985 and Jesse Dale in 1988. Vernon went to college and became a journeyman welder and stationary engineer. He specialized in boilers and high pressure systems, and stainless steel welding. He loved coin collecting, nature, and decorative engraving. He returned to Garnett, Kansas in the early 1990's to support his mother when his father was ill. He was employed at the Anderson County School District in the maintainence department until suddenly he became to ill to work in October 2007. He was life flighted twice to the KC hospitals and inICU and on a rehabilitation unit for five months.

Vernon's illness was bacterial in origin, his family was told by the doctors in Kansas City. When he received IV antibiotics, he
thrived. When the doctors took away the antibiotics, he began to fail. The doctors would never identify the name of the
bacteria that was trying to take Vernon's life. He had symptoms like abcesses in his abdomen and near his lung and kidney,
foot pain, rashes simular to a bartonella rash, and little red dots on his body, memory loss, dizziness, joint pain, loss of
feeling in his hands, feet, loss of use of fine motor skills, difficulty processing any information, body jerks (myoclonus and
severe muscle cramps) and seisures.

As time went on he experienced intense bone pain from a collapsing spinal cord,
and lost about 6 inches in height. One doctor his family consulted said that Lyme disease and bartonella can cause the bone
to not have blood supply and oxygen due to excessive fibrin production in the blood. As time progressed, Vernon
needed oxygen, had an intermittent low heart rate of 40, would pass out. He became a diabetic and experienced
hepatitis and kidney failure. By the way, his cat died of tickborne illness.

He could never understand the ``Controversy.'' Even though, his other family members were diagnosed with
Lyme disease, he was not tested by his doctors, simply because they refused. Additionally, after numerous
hospitalizations, he was denied long term antibiotics by infectious disease doctors in the hospital and his physicians in the
community; and testing when his family directly asked for Lyme testing using tickborne laboratories. More than three
years of advocacy efforts failed on his behalf.

During one hospitalization, his family asked the infectious disease doctor, ``can you help him, his family has Lyme disease,
will you test him?'' That Infectious Disease doctor said, ``No,'' firmly, immediately turned his back and walked out of the
room. The doctor discharged Vernon the next morning. But at one point, Vernon had to laugh because this bright Infectious
Disease doctor said, ``there are no ticks in Kansas.''

Several times, Vernon was too sick to leave the hospital and care for himself, and he lived alone. Even in his weakened
condition, once the hospital sent him home in a taxi without any home nursing! His insurance wouldn't pay any more for
his care. Not even Adult Protective Services would intervene, even after many calls.

Vernon learned to NOT speak about Lyme disease with anyone. No one was willing to give a correct diagnosis of Lyme disease and bartonella. Not the Veteran's Administration hospital, not the big medical centers in Kansas City, nor his local doctor. No one would test or treat his illness. They were all willing partners in his suffering and death from tickborne illnesses. He lost the war.

Vernon was left by his doctors to debilitate, and after losing balance, he had repeated traumatic brain injuries from falling. He later was able to get assistance through the TBI waiver program, but after many calls for a higher level of care, even this system failed him. His family later discovered that he had gone a month without a bath, and often didn't have food or water, and went to the hospital on his birthday after he collapsed from carbon monoxide poisening from his furnace.

Thankfully, he was with family that day and he was admitted for another time in the ICU. Those who were suppose to care
for him, didn't. Every time his family would try to intervene, those in charge of his care would fight his family. His caretakers even refused to help him to apply for full Veteran's benefits as a Viet Nam veteran, and he often suffered not having enough money to live. He took it well. He kept his doctors and caretakers laughing. He knew they were going to let him die.

He lived with the courage of a warrior, and endured and persevered through unrelenting pain to the end, which came Sunday, October 3, 2010. He left a good example of courage under fire, and joy in the midst of sorrow. At his memorial service, his son-in-law ecited ``Invictus,'' The more his body was crushed by Lyme disease and bartonella, the sweeter and more loving person he became. He gave his heart to his Savior, Jesus Christ late in life, and it was evident that his life had changed. He is already greatly missed by the love of his life, Peggy, and his children, siblings, and neighbors and friends. Now he is truly free, and we are sure- he went fishing in heaven and he caught the biggest fish this time!

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kam
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Wow. I have chills from reading this.
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Melanie Reber
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Carole A. Van Doorn, 43, Illinois

Carole A. Van Doorn, 43, of Crystal Lake, passed away Feb. 12, 2011, at home surrounded by family after a courageous battle with ALS.

She was born Sept. 21, 1967. She is survived by her beloved husband of 18 years, Dean Van Doorn; her loving children, Rachel, Joseph and Elizabeth; her cherished parents, Bruno and Patricia Grund; her dear brother, Dan (Heather) Grund; her mother-in-law, Sharon Van Doorn; her father-in-law, Bill Van Doorn; her sister-in-law. Nicole (Brad) Schwan; her brother-in-law, Dave (Nancy) Van Doorn; and many dear friends.

The visitation will be from 2 p.m. until 8 p.m. Monday, Feb. 14, at Davenport Family Funeral Home, 419 E. Terra Cotta Ave. (Route 176), Crystal Lake. The visitation will continue from 10 a.m. Tuesday, Feb. 15, until the 11 a.m. service at Willow Creek Community Church, 220 Exchange Drive, Crystal Lake. Interment will be private.

In lieu of flowers, donations may be made to the Carole Van Doorn Memorial Fund, Homestate Bank, P.O. Box 1738, Crystal Lake, IL 60039. Online condolences may be left for the family at www.davenportfamily.com.

Published in the Northwest Herald from February 13 to February 14, 2011

http://www.legacy.com/obituaries/nwherald/obituary.aspx?n=carole-a-van-doorn&pid=148621298&fhid=7618

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seibertneurolyme
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Just ran across this caring bridge site.

http://www.caringbridge.org/visit/bartfenolio

Links to a couple of news articles at site below.

http://members7.boardhost.com/RATLINE/msg/1280512885.html

Bea Seibert

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Melanie Reber
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Jon William Davis, 51, Ohio

PLEASANT HILL - Jon William Davis, 51, formerly of Covington, passed away Friday, March 4, 2011, at his residence in Pleasant Hill. He passed peacefully at home surrounded by the love of his family and friends,after a 10-year battle with Lyme Disease-induced illnesses.

He was born Jan. 21, 1960, to Harry M. and Bernice I. (Heisey) Davis of Covington. Jon is survived by his wife Nancy (Tarzinski) Davis and his wonderful children, son, Nathan L. Davis and daughter-in-law, Jenna L . (Stoner) Davis of Pleasant Hill, daughter, Sara L. Davis of Columbus, daughter, Jessica L. Hutchinson (Polson) and son-in-law, James H. Hutchinson of Covington and daughter, Jaclyn M. Prickett (Polson) and son-in-law, Nathan A. Prickett, of Union. Jon felt extremely blessed to live to see the births of his five grandchildren, Samuel Hutchinson, Andrew David Hutchinson, Luke Alexander Prickett, Magnolia Lee Davis and Isabelle Morgan Prickett.

Jon was preceded in death by brother Jeffery L. Davis of Norwich, Conn. and survived by sister-in-law, Clairlyn Davis, nephew Chad Davis and niece Jeslynne Davis. He was survived by brothers, Joe Robert (J.R.) Davis of, Fort Lauderdale, Fla. and Jay D. Davis of Piqua. Jon also is survived by several aunts, uncles, wonderful cousins and many loving friends. Also surviving were cousins Dave and Steve Heisey, who were more like brothers; special friends, Dale Smith of West Milton, Gary Evans of Houston, Buck Siler of Houston, Dave Fisher of Covington, Scott Hawk of Tipp City, Larry Shope of Bellbrook and Ed Ladd of Houston.

Before his illness Jon was owner/operator of Davis Enterprises, a furniture repair and refinishing business starting in Covington and later moving to Pleasant Hill. In 1989 ,Jon became a sales representative for Schaeffer Manufacturing of St. Louis, Mo.Jon's extended family includes all his fellow Schaeffer sales reps,the wonderful Buckeye Division, and the special friendships with all his customers that were all so dear to his heart. Jon's mission in life became to educate people about the dangers and health risks associated with Lyme Disease. He felt that his greatest work was an article entitled "Don't Lay Down and Die." "which was published in the spring 2004 issue of Buckmaster Magazine,http://www.buckmasters.com/dont-lay-down-and-die.aspx. Jon also wrote and published another article in Buckmasters Magazine August 2009 issue entitled "Fade to Black and Black " which was an update on his battle and Lyme Disease information.

Private memorial services will be held at Riverside Cemetery, West Milton.

In lieu of flowers, donations can be made in Jon's name to an organization for Lyme disease awareness http://www.ilads.org and to our friends at Vitas Hospice,3055 Kettering Blvd. No. 320,Moraine, OH 45439-1965.

Arrangements are being handled by the Hale-Sarver Funeral Home, West Milton.

http://www.dailycall.com/main.asp?SectionID=119&SubSectionID=205&ArticleID=171257&TM=70412.01

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Melanie Reber
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Herbert "Bart" Fenolio, 70, california

Resident of San Marcos, CA

May 24, 1940-Dec. 16, 2010

Bart spent Christmas with Jesus. He came home from the hospital to his family with Hospice on December l6th, 2010, and passed away that evening with peace and joy. His wife of 46 years, Carol "Heidi" Fenolio, his daughter Joelle Grove & her husband Brian, and his son Dante & his wife Beth, brother-in-law Rick Hyde & wife Diane surrounded him with love as well as friends and grandchildren.

He grew up in San Jose and Fall River Mills. He graduated from SJSU and married the love of his life, Heidi, in 1964. He & his sister, Brenda Albrecht, opened the first Dolphin Aquarium in l965 which was a huge success and built into the Dolphin Pet Village, which is still owned today by Brenda. Bart developed Dolphin Design, Inc, and began to custom design aquariums for hospitals, doctors offices, and businesses in the Santa Clara valley. His love of meeting new people all the time and his love of the business made Bart so happy. His last project before selling his business was the Cupertino City Library salt water aquarium. He retired and moved to San Diego with Heidi to be close to new grandchildren.

Bart was diagnosed with Lyme Disease in August, 2009, after being misdiagnosed with ALS. He fought this horrific disease with strength and grace.

A memorial service will be held on Saturday, 01/29/2011 at 12:00pm at Calvary Chapel San Jose, 1175 Hillsdale Avenue, San Jose, Ca 95118. A dessert reception will follow the service.

We have asked that in lieu of flowers for donations be made to support Lyme Disease research. Lyme Disease is a controversial and devastating disease and very few organizations are able to do research. The family asks that donations be made in Bart's name to: NRFTD (National Research Fund for Tick Borne Disease) You can donate online and make the donation in Bart's name under the "comments" box at: www.nrftd.org.

Published in San Jose Mercury News/San Mateo County Times on January 16, 2011

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Melanie Reber
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Charlotte MacVane, 82, Washington

of Bainbridge Island

Dec. 6, 1929

to March 26, 2011

Charlotte MacVane, beloved wife of Tom, died peacefully at home in his arms on March 26, 2011 after a long struggle with Lyme disease.

Born Charlotte Jane Sears on December 6, 1929 in Boston to Charles and Helen Sears, she grew up in Somerville, Massachusetts. Charlotte graduated in 1951 from Wheelock College in Boston with a degree in elementary education, she taught kindergarten in Medford, Massachusetts and early childhood development at the University of Maryland.

While summering with friends in 1953, Charlotte met her future husband Tom MacVane in his hometown of Long Island, a small island off the Maine coast. They were married on March 5, 1954. Throughout their 57-year marriage, they enjoyed many happy summers in their Long Island cottage "The Camp." Charlotte and Tom raised 5 children while living in Maine, New York, California, Indiana and Washington. They spent the past 36 years in their home on Bainbridge Island.

She loved reading and singing to her grandchildren, driving adventures with her husband, walking the paths of Long Island, baking "goodies" and chatting with family and friends. Charlotte spent many hours volunteering at church, her children's schools, the Long Island Library and was a member of P.E.O. As a new and cautious driver at age 47, her children marveled at her ability to get to her destination without making any left turns! She dedicated her life to the care of her family and they were her joy and contentment. Her love, laughter, smile and wisdom are deeply missed.

Charlotte is survived by her husband Tom, daughters Ellen Arbour (Ron), Susan Armstrong (Vince), Beth Brundige (Mike) all of Bainbridge Island; sons Todd of Bainbridge Island and Jay (Heather) of Poulsbo and grandchildren Kyle, Scott, Grace (Alex), Dane, Lance, Ty, Troy, Cole, Emma and Cara. She was preceded in death by her parents and her sister, Marion.

A private memorial will be held on Bainbridge Island and an additional service is planned this summer on Long Island. In lieu of flowers, donations are suggested to the International Lyme and Associated Diseases Society at www.ilads.org.

It is our hope that others will learn about Lyme disease, a disease easily misdiagnosed.

Please sign the online guest book at www.CookFamilyFuneralHome.com.

© 2011 Kitsap Sun. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.

Read more: http://www.kitsapsun.com/news/2011/mar/30/charlotte-macvane-81/#ixzz1JAq3Jh7l

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Melanie Reber
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Elisabeth Marie Winterfeld, New York

Elisabeth Marie "Lilo" Winterfeld of Hurley passed away on Tuesday, March 29, 2011 after a long illness from Lyme Disease and Alzheimers.

Survived by her husband Charles, daughter Waltraud and her life companion Susan, a son Gustav and his wife Satchiko, two granddaughters, two great-granddaughters, three great-gandsons and one great-greatgranddaughter. A sister Traude in Germany and sisters-in-law, a brother-in-law and nieces and nephews also survive. Born in Zwittau, Sudetenland, now called Svavy Cz Republic to Franz and Theresia Rohatsch Jesch (je'z).

Lilo and her family were among millions of ethnic Germans who were ejected from their homeland. Little history was written or taught about ethnic cleansing of the German speaking people after World War II. A Terrible Revenge and the March of Millions are some of the few stories written about this history.

This left these people with little belongings and no homeland to return to and so were transported to Germany where they were treated like refugees. Her life during this time was incredibly hard, which made her an even stronger person.

She became a United States Citizen on June 5, 1959. Lilo worked many years in the Kingston Hospital Operating room, a job she truly loved. She baby sat, volunteered at the Hurley museum and the Hurley service club. There wasn't anything she could not do. She helped her husband build their home, sewed her children's clothes, knitted, corcheted, quilted, painted and upholstered furnitured.

She loved fishing and camping. She took great joy caring for her perennial gardens and made the best apple strudle. She will be greatly missed by all who have known her. Special thanks to Dr. Bernadette O'Hara, Susan Miller, Rose Crawley, LPN and personal care aides from Willcare.

To submit online condolences to the Winterfeld family, please visit www.SimpsonGaus.com. There will be no service. Cremation was private. Her organs were donated to Columbia University Lyme & Tick Disease Research Center. Arrangement were by Simpson-Gaus Funeral Home, 411 Albany Ave., Kingston.

Published in the Daily Freeman on April 1, 2011

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Erin Elizabeth Spillers, 30, Alabama

Beloved daughter, sister, aunt, and friend to many, Erin Spillers was born June 21, 1980 in Rapid City, SD. She died suddenly at her residence on Thursday, April 28, 2011 from complications of chronic Lyme disease.

Cremation will take place at Southern Memorial Funeral Home and a Memorial Mass will be held at Our Lady Queen of Mercy Church, Montgomery, AL, on Wednesday, May 4, 2011 at 9:30 a.m.

Erin loved Alabama football, gardening, dancing, yoga, music, animals, and spending time with her many friends. She smiled through her pain and was always ready to lend a hand or an encouraging word to everyone she met. She will be deeply missed by everyone she knew. Though her years on Earth were brief, she lived them to the fullest, bringing joy to all who crossed her path. She was beautiful on the inside and out, with a smile that sparkled, a generous sense of humor, and a deep capacity for compassion and love.

She is survived by her mother and stepfather, Dr. Michael and Anne Marie Gormley of Montgomery, AL; father and stepmother, Frank and Kimberlee Spillers, of Atlantic, IA; brother, Mick Gormley, of Montgomery, AL; sister, Jessica Winum (Jarret) of Stanley, NY; grandmother, Phyllis Kertzman, of Rapid City, SD; aunts, uncles, cousins, nephews and nieces.

In lieu of flowers, contributions can be made in her memory to the Lyme and Tick-Borne Diseases Research Center, Columbia University, Att: Barbara Strobino, PhD, 1051, Riverside Drive, Unit 69, New York, New York 10032 or at https://giving.columbia.edu/giveonline/?schoolstyle=56437

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Tincup
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Jack Colenda- Maryland- Age 8

As my heart breaks again to hear this news, my prayers and most sincere sympathy go out to John Colenda and his family from Perryville, Maryland.

They lost their 8 year old son Jack after he contracted Lyme disease.

https://sites.google.com/site/marylandlyme/memorial-page/jack-colenda

Remembering Jack
Local man's tattoo memorializes his son

CECIL WHIG PHOTO BY MATT GIVEN

Remembering Jack
John Colenda of Perryville shows the tattoo he got this spring in honor of his son Jack, who died last year.

Posted:Wednesday, June 8, 2011 1:00 am |Updated: 4:50 pm, Tue Jun 7, 2011.

By Rebecca Sewald rsewald@cecilwhig.com

Of all the things John Colenda aspired to do with his life, getting a tattoo was never one of them. But in early April, the 40-year-old Perryville resident found himself seated in a chair at House of Ponchos in Abingdon, Md., where he would leave later that day with his first tattoo.

The artistic design that now encompasses Colenda's right shoulder is more than just a tattoo. It's a memorial to his son, Jack, who passed away suddenly last November from health complications after he developed Lyme disease.

``A tattoo is not something I thought I would ever get, but under the circumstances, I decided I would do it, and I'm very pleased with the way it turned out,'' Colenda said.

While pondering the design, Colenda knew he wanted it to be something that nobody else would have.

His concept for the tattoo centered on his 8-year-old son's passion for lacrosse: ``He played football and lacrosse, but he could never wait for lacrosse to start. As soon as football was over, he had his stick ready to go.''

Colenda gave the tattoo artist, Josh Johnson, a picture of his son's lacrosse stick, shoes, helmet and gloves, which were incorporated into the design.

``He even got Jack's name in there where he wrote his name on his gloves,'' Colenda said, pointing to the tiny letters that did indeed spell out ``Jack.''

But Colenda wanted his tattoo to feature more than just his son's lacrosse equipment.

``I thought it needed some kind of background,'' he said.

``At Patterson's funeral home, they took his thumbprint because there are suppliers out there that can make jewelry with your thumbprint on it, and it just clicked - that was the background I needed.''

Colenda contacted the funeral home and had a staff member send him an electronic image of his son's thumbprint. He printed the image and gave it to Johnson, who was able to sketch the print and include it in the tattoo's design.

``This is a memorial that I can keep with me all the time,'' Colenda said.

In addition to getting a tattoo, Colenda has been busy working on another project in honor of his son. He and his wife, Jennifer, are in the process of starting a foundation in jack's name that will benefit local children in need.

The unofficially named JACK Foundation will stand for Just About Community and Kids, Colenda said, going on to explain that he is in the process of filing paperwork to have the name approved.

www.CECILWHIG.COM

Full article:

http://www.cecilwhig.com/features/article_13f13fba-9147-11e0-9b97-001cc4c002e0.html

Posted in Features on Wednesday, June 8, 2011 1:00 am. Updated: 4:50 pm

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Tincup
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Bryan Christopher Frydenberg Bower- June 28, 1982 - May 2, 2011

TOUCHED BY LYME: When pain is simply unbearable
10 June, 2011

_____ Bryan Christopher Frydenberg Bower___________ (June 28, 1982 - May 2, 2011)

As a kid growing up in southern California in the 80s and 90s, Bryan Bower was a bit of a daredevil: BMX biking, rollerblading, skateboarding, snowboarding--never a show-off, but always pursuing his jumps and thrills.

As a college student, he discovered a new passion, rock climbing. He went everywhere with his new best friend and climbing buddy Rhyan. Joshua Tree, Tahquitz, The Needles and Malibu Canyon were southern California favorites.

In his early 20s, Bryan started training to climb Yosemite's El Capitan, practicing with one of those folding ledges that you haul up and sleep on when you're half way up the 3,000-foot granite face. All that came to a screeching halt about six years ago when Bryan was struck by a series of bizarre symptoms: debilitating headaches, brain fog, intense pain in his spine and shoulders, night sweats, difficulties with his balance, sleep disturbance and depression.

That prompted a series of doctor appointments which, after many twists and turns, eventually led to a diagnosis of Lyme disease. By this time, the infection was deeply entrenched in his brain and central nervous system.

His was a dramatically changed personal landscape. There were different kinds of rocks to climb now, boulders named severe neuro-Lyme, co-infections, and brutal suffering.

He would try different doctors and different treatments through the years, even traveling to Mexico for alternative therapies. Sometimes, he could muster some of that old daredevil energy to dive headlong into a new treatment protocol. Sometimes he couldn't.

Occasionally, there would be some improvement in his physical situation. When it didn't last, he'd pour his agony and frustration into the written word, on his blog or in anguished poetry.

Previously a devout Christian, Bryan felt utterly forsaken by the God that had once offered solace and refuge.

In the last few years, Bryan spent most of his time in bed, trying to distract himself from blinding pain that even heavy-duty meds couldn't relieve.

He'd surf the web on his laptop, searching for alternative Lyme treatments while lying on an electro-magnetic mat. He'd keep TV, Netflix, or video games flickering on the big screen in front of him, in vain hope of even momentary diversion from the pain.

Friends and relationships from the past had pretty much fallen by the wayside. His mom and dad gave love and support and tried to lessen the isolation as much as they could.

Yet, nothing he tried could carry him away from the pain. Ultimately, according to his family, Bryan ``just wanted the pain to stop.'' On May 2, 2011, he ended his own life, leaving his parents to read the following words he'd penned for them earlier.

Don't follow my starlight
It goes well beyond and you must stay
and drift away until you too are gone
- Bryan Bower

I never knew Bryan, but his is the fourth Lyme-related fatality I've learned about recently. It makes my heart sick.

Wake up, America! Tick-borne diseases are stealing our children. While the medical establishment, insurance companies, and government health officials play politics and pretend that Lyme disease is no big deal, or worse - a complete sham - people like Bryan are abandoned by the institutions that are supposed to help them.

A speaker at the recent webinar on Lyme by the Centers for Disease Control made the astonishing assertion that long-term neuroborreliosis would eventually ``resolve'' on its own, without any treatment whatsoever.

Tell that to Bryan's heartbroken family. Tell that to untold thousands of Lyme patients who live with intractable pain and other unrelenting symptoms.

The loss of this young man makes me both sad and angry. We in the Lyme community owe it to Bryan and others like him, to channel such emotions into meaningful action. Tick-borne disease is taking a toll on our society that will not ``resolve'' on its own.

Click here to read Bryan's memorial page with some of his poetry.

The TOUCHED BY LYME blog is written by Dorothy Kupcha Leland, CALDA's VP for Education and Outreach. Contact her at dleland@lymedisease.org.

Full article:

http://www.lymedisease.org/news/touchedbylyme/bryanbower.html

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cheffer
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Donna Marie Zakszeski


Donna Marie 'Zak' Zakszeski of Beverly passed away Friday after bravely battling Lyme disease and breast cancer for several challenging years. She was 50.

Donna was a graduate of Burlington City High School, Class of 1978.


She went become a registered nurse, while settling in Maine.

Donna loved to read, learn new things, garden, the ocean, and practicing yoga.

Most of all, she loved her family.

She is survived by her children, Justin Spencer and his wife, Julie, Jennifer and her husband, Thomas Dunn, and Jordan Spencer (s/o Christopher Blake); their father, Rick Spencer; and by her siblings, Charles and his wife, Sharon, Scott and his wife, Linda, and Lynda Zakszeski (s/o Andrew Newsome), and Patricia Kramer and her husband, Kirk. She was extremely proud of her grandchildren, Cody, Chloe, Max, Casey, and Zak, due in November. Her many nieces and nephews, like all who knew her, loved, and admired Donna for the wonderful person and amazing woman that she was.

Donna now rests peacefully with her father, Charles; mother, Eleanor 'Ellie'; and brother, John 'Jack,' husband to Patricia R. Zakszeski.

Donna will be remembered most for her breathtaking smile and infectious laugh. She was beloved by those close to her and will be greatly missed.

The family invites friends to call at her viewing from 6:30 to 8:30 p.m. Tuesday, at the Page Funeral Home, 302 E. Union St., Burlington.

In lieu of flowers, donations may be made to 'Community of Hope for Donna,' c/o29 Warren St., Beverly, NJ 08010.

Page Funeral Home, Burlington

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Lymetoo
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Fran A. Piazza-Parkinson
Visit Guest Book

http://www.legacy.com/obituaries/thetimes-tribune/obituary-browse.aspx?recentdate=0&type=1

Fran A. Piazza-Parkinson, 54, of Scranton, died Aug. 1 at the Regional Hospital of Scranton after a 15-year battle with Lyme disease and other health complications.

Born on Oct. 12, 1956, in Buffalo, N.Y., she was the daughter of the late Anthony Sr. and JoAnn Kalinowski Piazza.

She was a graduate of Bishop Klonowski High School. Fran was a loving mother, sister and aunt. She was known for her kindness, generosity and her ability to bring a smile to everyone she knew. She enjoyed shopping, bingo and spending time with her friends and family. She will truly be missed by all who knew her.

Surviving are a son, Randy Anthony Piazza, at home; a brother, Anthony Piazza Jr. and wife, Nancy, Scranton; two sisters, Mary- Jo Sterling and husband, William, Scranton; and Gina M. Winger and husband, Frank, Allentown; five nephews, Michael Sterling, Las Vegas; Frank, Matthew and Joseph Winger, Allentown; and Danny Piazza, Scranton; a niece, Victoria Sterling, Scranton; a niece and goddaughter, Jessica Sterling, Scranton; aunts, uncles and cousins.

She was also preceded in death by many aunts and uncles.

Funeral services will be private at the convenience of the family. Arrangements by the Nicholas Chomko Funeral Home, South Scranton.

Published in Scranton Times on August 14, 2011

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--Lymetutu--
Opinions, not medical advice!

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map1131
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A young lady Tabatha(Tabby) Rhymers died here in Louisville, Ky in early August. She was the Fern Creek, Ky high school student who one day was healthy and then it all suddenly changed.

The medical team, family and news reporters were seeking advice for possible causes for her quickly detetiorating health. This story went out on national news broadcast.

Tabby had Lyme disease when she was 5 years old and was treated. Doctors didn't believe that past Lyme infection had anything to do with her sudden seizures, white lesions and destroying her young life.

Maybe someone else can pull up this sad sad story and post it here. I've tried and can't seem to pull what I need to do.

Thanks, Pam

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"Never, never, never, never, never give up" Winston Churchill

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lilacs48
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I've found this so far....but I'll keep looking.

http://www.mdjunction.com/forums/lyme-disease-support-forums/lyme-disease-activism/2763750-teens-life-perilousmysterious-illness

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lilacs48
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Here's another:
http://news.cincinnati.com/article/B2/20110809/NEWS01/308090095/Fundraiser-set-Saturday-help-Tabby-Rhymer-s-family

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lilacs48
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Here is the obit for Tabatha Rhymers.
http://www.legacy.com/obituaries/louisville/obituary.aspx?page=lifestory&pid=152901982

Tabbatha Leigh Rhymer


RHYMER, TABBATHA LEIGH, 17, of Fern Creek, beloved daughter of Juanita Rhymer Age and Robert Age, peacefully passed away Friday, August 5, 2011 surrounded by many who loved her.

She was to be a senior at Fern Creek High School.

Tabbatha was preceded in death by her loving father, Randy Rhymer; and grandfather, Louis Roederer.

Along with her parents, Juanita and Bobby, Tabby is survived by her grandparents, Bertha Roberts (Dennis) and Angie and Ford White; great-grandmother, Rose Roederer; brothers, Steve Ritchie, James Dylan; sisters, Nicole Roseanne and Jenna Lynn; stepsisters, Shelly and Elizabeth; fiance, Chad Kantlehner and a host of loving family and dear friends.

Funeral service will be conducted at noon on Tuesday at Schoppenhorst Underwood and Brooks Funeral Home (Preston Highway at Brooks Road) with burial in Highland Memory Gardens in Mt. Washington. Friends may pay their respects on Monday from 1-8 p.m. and after 9 a.m. Tuesday at Schoppenhorst.

The family wishes to sincerely thank Dr. Tarek M. Zakaria and the staff of Norton Brownsboro I.C.U., for their compassionate care of Tabby during her extended stay.

The family also wishes to thank all those who scheduled fundraisers, donated monies, time and prayers in hope of finding a cure for her.

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Tincup
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David Taylor

September 8, 2011

Notice from the York, PA Lyme Disease Support Group

We regret to inform you that a member of our support group has lost his battle with lyme disease. David Taylor, husband of Julie Taylor passed away on Tuesday morning September 6, 2011.

Viewing is schedule for Friday evening, September 9, 2011, 6:00 to 8:00pm at Eberly Funeral Home, 104 West Main Street, Dallastown, Pa, 17313.

The funeral will be held on Saturday morning, September 10, 2011 at 10:30 AM, at Bethlehem United Methodist Church, 109 East Main Street, Dallastown, PA. Burial will in Dallastown Union Cemetery.

Our thoughts and prayers go out to Julie and family.

``````````````````````````````````````````

Notice placed on Maryland website. York, PA is one of the "Mason-Dixon" support group listings. God bless David, his friends and family.

https://sites.google.com/site/marylandlyme/memorial-page/taylor-david

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Tincup
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Jay T. Wolfenden

Jay Thomas Wolfenden, 56, of Westminster, died Wednesday, Aug. 17, 2011, at Carroll Hospital Center. Born Jan. 12, 1955, in Baltimore.

He was the son of the late John Thomas and Shirley Leach Wolfenden. He worked at Shoppers in the seafood department.

He was an Eagle Scout with Troop No. 56 and was co-coordinator of the Central Maryland Lyme Disease Support Group.

He also was an avid fisherman, Ravens fan, and enjoyed cooking.

Surviving is a sister, Robin Ann Wolfenden, of Westminster.

A graveside service will be held at 10 a.m. Thursday at Zion United Methodist Church Cemetery, 2716 Old Washington Road, Westminster, with the Rev. Marianne Sickles Grabowski officiating.

Memorial contributions may be sent to Carroll Hospice, 292 Stoner Ave., Westminster, MD 21157. Arrangements are by Pritts Funeral Home & Chapel in Westminster. Sign this guest book online atwww.carrollcountytimes.com

Published in Carroll County Times on August 21, 2011

```````````````````````````````````````````

Jay was a long-time support group leader from Maryland.

He helped countless people over the years and was active in all aspects of Lyme disease education and prevention. His mother also passed away, several years ago, after suffering from chronic Lyme disease.

His sister Robin is co-founder of the group and has been a long time advocate for patients.

Our prayers go out for Jay, his family and friends. He will be missed, but not forgotten.

Maryland Memorial Page

http://www.legacy.com/obituaries/carrollcountytimes/obituary.aspx?n=jay-t-wolfenden&pid=153190162

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Tincup
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Please visit the National Lyme Disease Memorial Park Project

http://www.lymememorial.org/

In Memory of....

http://www.lymememorial.org/In_Memory_Of.htm

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payne
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The Lord is Our Shepherd... [bow]
may we rest in a garden of Love,
And have the sun shine on us forever.
Cover US with
"The Blood of Jesus Christ".
Bless these families with comfort and faith
to pick up where the fallen left off in rememberance of
Great Things to Come.
Passing the torch to those left behind.
walk with them daily.
And surely God has walked with you. [group hug]

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TULAREMIA/rabbit fever ?

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Tincup
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Thank you payne.

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www.DrJonesKids.org
www.MarylandLyme.org
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Lymetoo
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"Gonzo" .. Passed away on Dec 1, 2013

His friendly spirit lives on.

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=033034;p=0

[ 12-07-2013, 11:24 PM: Message edited by: Lymetoo ]

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--Lymetutu--
Opinions, not medical advice!

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Anthropologista
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Thank you, Tutu.
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GretaM
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Thank you Lymetoo.

Seeing Gonzo's name there teared me up again.

Here's his obit I found in the Hartford Courant.

Daniel S. Gonzalez, 56, of Plainville, passed away at his home, surrounded by his family, on Sunday, December 1, 2013.

He was the beloved husband of Ellen (Sloate) Gonzalez, with whom he shared 27 years of marriage.

Born in Bristol on October 19, 1957, he was one of eight children to the late Salvadore and Jean (Pinero) Gonzalez.

A lifelong resident of Plainville, he attended local schools, and raised his family there. Daniel enjoyed many outdoor activities, and had a passion for fishing, and was very proud of his record setting bass.

He enjoyed going to the beach, spending many days at Harkness State Park, was a car enthusiast, and fan of football, especially the New York Giants.

Above all, Daniel was a reliable family man, who could be counted on for help with any task, or for sharing his love of cooking one of his delicious homemade meals made with fresh vegetables from his backyard garden.

His sense of humor and big heart will be greatly missed, leaving his family and wide circle of friends with many cherished memories.

In addition to his wife, Ellen, he leaves his daughter, Heidi and her fiancé, David Fortier of Plainville; his sister, Judy Principi, her husband, Jim and their son, James of Burlington; his brothers, Frank, his wife, Cheryl and their children, Steven and Danielle of Plainville; Michael, his wife, Sheila and their children, Christen and Matthew of Plainville; Ed, his wife, Diane, and their children, Marissa and Ed of New Britain; Phil, his wife, Ivonne, and their children, Aaron, Andrew, and Tammy of Florida; Steven and his partner, Tim of Massachusetts; and John, his wife, Teresa, and their children, Christian, Grace, and Evan of New Britain. He also leaves his mother-in-law, Ruth Sloate; his brothers-in-law, Steven Sloate, his wife, Georgie and his special nephews, Matthew and Jeremy; and Mark Sloate, his wife, Meryl and their children, Heather and Andrew.

Visitation will be on Thursday evening, from 5-7 p.m. at Bailey Funeral Home, 48 Broad St, Plainville.

A memorial service in celebration Daniel's life will be held at the conclusion of the visitation, at 7 p.m. on Thursday. Burial will be held privately at the convenience of the family. For online expressions of sympathy, please visit www.Bailey-FuneralHome.com .

Published in The Hartford Courant on Dec. 3, 2013

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map1131
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Our dear lymenet friend, Bea lost her husband Steve Oct 2012. I'm attaching the thread for those that are new to lymenet and wonder about this wonderful woman, Bea that continues to fight the fight with us.

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/120582#000005

Pam

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"Never, never, never, never, never give up" Winston Churchill

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Lymetoo
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Thank you, Greta and Pam!

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--Lymetutu--
Opinions, not medical advice!

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Tincup
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Posted by "Looking" at LymeNet on March 20, 2014

http://www.winnipegfreepress.com/local/a-crusader-for-lyme-disease-awareness-250732391.html

A longtime activist who raised awareness about the dangers of Lyme disease in Manitoba has died.

Elizabeth Wood was 65.

Lorne Wood said in an interview from Emerson his wife died Thursday of a stroke she suffered late Wednesday night.

She leaves five children and 12 grandchildren.

Wood helped found a support group in Manitoba for Lyme disease sufferers more than two decades ago -- long before the tick-borne illness became a reportable disease in the province.

"The Lyme disease community in Canada has lost a very good ally," said Jim Wilson, president of the British Columbia-based Canadian Lyme Disease Foundation.

He said Wood fought tirelessly to get the Manitoba government to take the disease seriously and acknowledge it is under-reported in Manitoba.

Asked how successful advocates have been in this regard, he replied: "It's a work in progress."

Wood said in a 2011 interview she received a tick bite in July 1985 north of Emerson. She remembered having difficulty removing the insect.

When a rash appeared, a doctor told her she had poison ivy.

She later developed severe flu-like symptoms doctors now link to Lyme disease: head and muscle aches, joint pain, fatigue.

She continued to suffer the effects of the disease throughout her life.

Her insistence -- and that of many Lyme disease research advocates -- that the disease could persist for decades put her at odds with some in the medical community.

She spent thousands of dollars of her own money seeking a diagnosis and treatment in the United States.

"She could hold her own (in debate) with politicians, professors, scientists, doctors and anyone else," Wood said.

He said Wood fought tirelessly to get the Manitoba government to take the disease seriously and acknowledge it is under-reported in Manitoba.

A week before her death, she travelled to Ottawa to support a private member's bill by Green party MP Elizabeth May that would require the federal health minister to convene a conference of provincial and territorial health ministers, representatives of the medical community and patients' groups to develop a national strategy to address the challenges of recognition, timely diagnosis and treatment of Lyme disease.

The Opposition NDP and Liberals have expressed support for Bill C-442. The governing Conservatives have said they might support the bill if amendments are introduced that satisfy jurisdictional concerns.

A provincial Health Department spokeswoman issued a statement Monday that read, in part: "Through her unwavering dedication to this cause, she has raised awareness of this condition amongst the general public and within the medical community alike, helping us all to better understand the disease.

This dedicated advocacy has led to closer collaborative efforts between the Lyme and the health community, ensuring ongoing education, improved surveillance and advancing policy to ensure improved care is an option."

-------------------------

She made a difference -- Good for her! We are still far away from proper medical treatment or acknowledgement of lyme disease in Canada.

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www.MarylandLyme.org
www.LymeDoc.org

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poppy
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I think a lot of deaths have been missed on this list. The ones that are known to be lyme, and the ones that die of stroke or heart attack that resulted from lyme. And then there are more suicides.

The recent published account of cardiac deaths that were only found because a transplant surgeon discovered them:

http://www.cdc.gov/mmwr/preview/mmwrhtml/mm6249a1.htm

The first case described here was in a car accident, veered off the road after his heart stopped. I knew of another case like this in a local lyme person who was in a one car accident after he lost consciousness. His death was due to lyme, and I am not even sure if he was being treated. How many are there like this? Probably a lot.

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poppy
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In Memory of
Beverly Lynn Mooney
April 21, 1980 - March 22, 2014

Obituary

Beverly Lynn Mooney, 33 years old, died on Saturday, March 22nd, 2014 at her home in Castle Rock, CO. Beverly's battle with Lyme Disease lasted over 4 years. Her strong will to live, unwavering faith in God and the love and prayers of family, friends and many supporters made It possible for Beverly to be a loving wife and to raise her two beautiful children, Ethan, 6 years old, and Makayla, 4 years old.

Beverly was born on April 21, 1980 and married David Mooney. She has three sisters, Deanice Zoltak and Deavina Ewert and she is predeceased by her beloved sister Lena Thompson Bell. She also leaves behind her nephews and niece, Brian Bell, Jonathon Thompson, Westley Thompson and Alice Thompson who she loved as if they were her brothers and sister.

The loss of someone so young leaves a deep hole in our hearts but we are comforted in knowing she is in the loving hands of Jesus Christ Our Savior and is reunited with her mother, June and sister Lena.

If anyone asks how I want to be remembered, please say the following about me:

A wonderful mother and wife who believed strongly in God. She loved being with her family and watching her children grow. She loved her fun, sad, hard and funny times with David…..especially how David could make her laugh. Beverly was always a lil crazy, she would do and say random things that would make you say hummmm. Some would be shocked, but those who knew Beverly wouldn't be shocked at all. She loved to dance and go out and have fun with her girlfriends. Beverly adored all children and was inspired to make a difference in the children of today…. Her ultimate dream was to teach in a Christian School where she could educate children in the name of the Lord Jesus Christ.

http://tiny.cc/o5lpdx

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SLML
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Colleen, a worship pastor, and sister of radio personality Don on the Ron and Don show passes away from lyme disease. She looks young and vibrant in this picture in the link. Don was trying to help her get better but she passed away...

http://kiroradio.com/108/2460614/Don-says-goodbye-to-his-sister-for-the-last-time

http://www.frenchfunerals.com/obituaries/Colleen-Cawthon/#!/Obituary

http://www.aerobridge.org/daystar.html

Colleen Katherine (O'Neill) Cawthon entered heaven singing and rejoicing on February 7, 2014. She was born on March 14,1970 in Waukegan, Illinois to Virginia "Ginny" (O'Neill) Edmund and John O'Neill. Colleen was the youngest of four children - brothers Jack O'Neill and Don O'Neill and sister Beth Ortega. The family moved to Albuquerque in 1978 where Colleen graduated Eldorado High School in 1988. She met and married the love of her life, Jaris at their local church and went on to have three amazing children, Annie 16, Sydney 13, and Dylan 6. Colleen, an amazingly talented singer and songwriter, used her voice to touch many lives, recording 2 praise and worship CDs with her church and 1 with her husband, and singing on many other recordings for other artists. Jesus Christ was her passion, and she served as a Worship Pastor in her local church, Believers Center of Albuquerque, for over 21 years along side her husband. She was completely devoted to her husband, children, church family, and all her extended family. Her laugh was absolutely contagious and could easily change the atmosphere of a room. Above all, her desire was to see God glorified in everything she set her hand to - her marriage, children, work, and friendships. Colleen’s life was a reflection of God’s love and joy. She fought a hard battle against Lyme disease and was an absolute champion. Colleen’s life celebration will be held Thursday February 13, 2014 at 6:30pm at Believers Center of Albuquerque, 320 Waterfall Dr. NE, Albuquerque, NM 87123. In lieu of flowers, an Education Fund has been started for Colleen’s children. Checks can be made out to Edward Jones Investing / The Cawthon Kids Education Fund, 4122 Factoria Blvd SE, Bellevue WA 98006. Credit card donations can be made over the phone to Lawrence Rude 425-644-6290.

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SLML
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I believe Dr. Hynote died of sepsis from a Picc Line infection as she was treating Lyme Disease.

Dr. Eleanor Hynote died December 17, 2013 in Napa. She was born in Brookline, MA to Francis and Rita Dimento on June 21, 1957.

Dr. Hynote graduated from Brookline High School, Vassar College and UC Irvine School of Medicine. She opened her internal medicine and clinical nutrition practice in Napa in 1989. She enjoyed snow skiing, travel, the beach at Martha’s Vineyard and, most of all, her family.
She devoted her professional life to the practice of medicine from with she received great gratification.

Dr. Hynote is survived by her husband Robert Hynote of Napa, Daughters Caroline, Julia and Olivia Hynote all of Napa; parents Francis and Rita Dimento of Boston; brothers James and Francis Dimento and sister Melissa Lang, all of Boston.

A funeral Mass will be held at Mont La Salle Chapel, 4405 Redwood Rd, Napa, CA 94558, on Saturday, December 21, 2013 at 10:00 am.

The family requests in lieu of flowers, donations be made in Dr. Hynote’s memory to organizations dedicated to infectious disease research.

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Tincup
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May they be remembered and in peace.

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lymie_in_md
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I will deeply miss you Heather, rest in peace!

 - Heather Elizabeth Johnson . Johnson, Heather Elizabeth age 33, formerly of Edina, MN, passed away unexpectedly 7/26/14.Preceded in death by mother, Judith Askeland. Survived by father, Christopher Johnson; stepmother, Susan Johnson; stepfather, Paul Del Moral; stepbrother, Nick Everhart; stepsisters, Molly Wick, and Courtenay and Donna Del Moral; grandfather, Warren Askeland; and many aunts and uncles. God bless our beautiful artist, poet, musician and activist. Services will be held at 1 PM on Fri, Aug 15 at St. John the Evangelist Episcopal Church, 60 Kent St., St. Paul. In lieu of flowers, please send memorials for continued humanitarian work including helping others affected by Lyme disease to "Morningstar Mercy Ministries," 165 E. Crumb St., Gilman, WI 54433.

Published on August 10, 2014

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Bob

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Tincup
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It is with deep sorrow I share this announcement about a wonderful lady who left us much too soon.

In Memory of Lis Heininger

https://sites.google.com/site/marylandlyme/memorial-page/lis-heininger

Please keep her family in your prayers.

[group hug]


“I don’t want anybody else to go through what I’ve been through. If I could just prevent one person from having these problems, then it’s worth it.”

Dr. Lis Heininger

Our dear friend, Lis Heininger, founder of the Corning-Finger Lakes Lyme Disease Association in New York, passed away at home on Monday, September 29, 2014. Passing at the age of 48, she leaves behind her loving parents, her dear husband Andy, and a very devoted teen-age daughter, Marisa.

For those who didn't know Lis, she was a wonderfully brilliant lady and long time volunteer Lyme patient advocate who worked with many people over the years to assist them with their Lyme-related issues.

Lis spent the earlier part of her life (over 30 years) undiagnosed and untreated for Lyme disease. The first indication Lyme disease might have been the source of the various growing symptoms she experienced appeared at a very young age when she had a strange rash after camping with her family in New England.

Her symptoms began increasing in number and impacted her more over the next few years. As a gymnast, volley ball, tennis and track team member, she became concerned when her eye sight began to fail. She went on to develop numbness in her limbs and was eventually diagnosed, or mis-diagnosed, with MS.

For the twenty years Lis was told she had MS (multiple sclerosis) she was treated unsuccessfully by various physicians for a condition she did not have. As a national spokesperson dedicated to educating people on the affects of MS, she was considered a favorite "poster child" by those in the MS movement. She spent countless hours speaking to national and international audiences. Unfortunately, when she informed them of her new diagnosis, like others that have been correctly diagnosed after years of having an inaccurate MS diagnosis, she was shunned and ignored by the very people she loved and worked so hard to assist.

Once correctly diagnosed with chronic Lyme disease Lis was treated with long term antibiotics and began to improve. Unfortunately, she was in the late chronic stages of Lyme disease at that point in time and the damage that occurred prior to receiving appropriate treatment was only partially addressed. But, Lis improved as time went by and she was determined to not give up!

Lis worked tirelessly to spread Lyme disease awareness for the past decade and made many friends in the Lyme community along the way. She brought in doctors and other experts to speak at programs for local community groups. She was a guest speaker at the Corning Community College's presentation of Under Our Skin, a college where Lis once worked as a grant director for the Early Childhood Professional Development Center.

Lis actively helped with legislation designed to improve the situation for other Lyme patients. She had an extensive email distribution list and stayed up-to-date on the latest research. Many will remember Lis rolling around (and goofing around) in her wheel chair, always with a smile on her face, while attending various Lyme disease conferences over the years. She had a wonderful sense of humor and never missed the opportunity to share a funny joke.

Several years ago Phyllis Mervine of LymeDisease.org (formerly CALDA) organized an effort to collect donations to help pay for in-home nursing care for Lis while her family was at work and school. Lis, under the care of the local health department, had fallen out of her wheelchair and had to spend time in the hospital.

As a result of the accident she suffered more neurological damage; however, she was overwhelmed by the kind and generous people in the Lyme community who supported her and she truly appreciated their efforts.

Our hearts are heavy and we are filled with sadness over the loss of such a dear lady. We will pray for comfort for all of her friends and family, all the while knowing in our hearts she has finally made it to heaven where she is now dancing and singing with the angels.


Memorial Services

Phillips Funeral Home and Cremation Service, 17 West Pulteney Street, Corning, NY 14830 on Thursday, October 2, 2014 from 5:00 pm to 9:00 pm. The funeral service will be at Grace United Methodist Church, 191 Bridge Street in Corning, on Friday, October 3, 2014 at 11:00 am. A committal service for the family will follow at Chapel Knoll and they will return to the church for a luncheon.

With flower arrangements in place, the family asks that memorial gifts in Lis' honor be directed to a scholarship fund for Lis's daughter, Marisa. Checks may be made payable to: Andrew Heininger, at P.O. Box 1272, Corning, NY.

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www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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steve1906
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Dying of Lyme disease: Case fatality rate nearly 100%

I think Heather's story is here also...

http://owndoc.com/lyme/dying-of-lyme-disease-case-fatality-rate-nearly-100/

Steve

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Everything I say is just my opinion!

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Tincup
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With great sadness...

In Memory of Dr. Burgdorfer

https://sites.google.com/site/marylandlyme/memorial-page/dr-willy-burgdorfer

If you would like to leave a message at the Daly Leach Chapel in Hamilton, Montana for the family, please do.

http://obituaries.expressionstributes.com/?mobile=0a7b348292

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www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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Tincup
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More information on Dr. Burgdorfer.

www.LymeDiseaseAssociation.org

http://lymedisease.org/news/touchedbylyme/burgdorfer-gratitude.html

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www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
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Maia_Azure
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Leslie Feinberg, died on Nov. 15 at her home in Syracuse. She was 65.The cause was “complications from multiple tick-borne co-infections, including Lyme disease.”

http://www.advocate.com/arts-entertainment/books/2014/11/17/transgender-pioneer-leslie-feinberg-stone-butch-blues-has-died

She wrote about her journey with Lyme disease here:

http://www.transgenderwarrior.org/lymeseries.html

Touched by Lyme Covered it here:

http://lymedisease.org/news/touchedbylyme/feinberg-obit.html

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Sick since 2000
Bulls eye 2005
Dx Babesia, Lyme 2014

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Tincup
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up

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www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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poppy
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News Articles Here
https://sites.google.com/site/marylandlyme/lyme/als--lou-gehrigs/rhode-island-man-dies--not-als--it-was-lyme-disease

A Prayer Service for Geraghty will be celebrated on Saturday, Jan. 2 at 6 p.m. at Bellows Funeral Chapel, 160 River Road, Lincoln.

Relatives and friends are invited and may call Saturday, Jan. 2 from 2-6 p.m.

Please omit flowers. Make contributions in David’s memory to the Geraghty Lyme Foundation, P.O. Box 40873, Providence, RI 02940.

For directions and guest book, visit www.bellowsfuneralchapel.com.

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Tincup
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Wennihan, Bailee 1996-2016

May 27, 2016

Wennihan, Bailee 1996-2016

GOWER, Mo. Bailee Shennen Jontee Wennihan, 20, Gower, passed away Tuesday, May 24, 2016, in Farmers Branch, Texas, as a result of West Nile and Lyme Disease.

She was born on January 9, 1996, in North Kansas City, Missouri.

Bailee Shennen Jontee graduated from East Buchanan High School. She truly enjoyed school and music. She wrote many songs and enjoyed playing the violin. Bailee loved playing basketball, traveling, was a wonderful artist and photographer.

Her life was dedicated to serving God and she lived each day with an abundance of faith. She was able to forgive and go on with laughter, love and kindness. Her motto was Laugh as much as you breathe and love as much as you live.

Bailee Shennen Jontee was preceded in death by: her great-grandmother, Nadine Cline; and uncle, Johnny Gatewood.

She is survived by: her brother, Padrick Wennihan; mother, Gina Gatewood-Griffin; NaNa, Teena Marks; great-grandfather, Gene Cline; uncles, Tommy and Steve Cusick; grandfather John Gatewood Sr.; cousins, Lauren, Carson Nadine, and Amber; other relatives and many, many friends.

Funeral service: 11 a.m. Tuesday, May 31,at First Baptist Church, in Gower.

Burial: Dearborn Cemetery.

Visitation: 6-8 p.m. Monday, at the church.

Arrangements: Hixson-Klein Funeral Home, Gower. As published in the St. Joseph News-Press.

http://www.newspressnow.com/obituaries/article_4a5f909f-7739-58de-8262-711c2131cadb.html

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www.MarylandLyme.org
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Lymetoo
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http://thedailycougar.com/2016/05/30/update-body-missing-student-found/

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--Lymetutu--
Opinions, not medical advice!

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Lymetoo
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http://whatislyme.com/bailee-shennen-jontee-wennihan/

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--Lymetutu--
Opinions, not medical advice!

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Tincup
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With such sadness I share Robert's message with members at LN about his wife's recent passing. We knew her as HealthyWealthyWise...

healthywealthywise
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Member # 8595

posted 22 July, 2016 03:09 PM

My name is Robert, I am Marianne Scullin's husband.
I don't know how active she has been on this site recently but I know she has talked with some folks here.

I am sorry to say that I lost her on Tuesday night, Jul. 20. I am barely able to write this I am so devasted.. she was the love of my life.

We would have been married 32 years come Oct. My only relief is the knowledge her nightmare of pain is over.

I wish ALL of you the best, I understand your plight.. believe me. If anyone wants to get in touch I can be reached at wireharp16@gmail.com

Posts: 866 | From PA | Registered: Jan 2006

`````````````````````````````````````````````````

Here is a link on LN if you'd like to share thoughts with Robert.

http://flash.lymenet.org/ubb/ultimatebb.php/topic/3/36371

[ 07-22-2016, 09:38 PM: Message edited by: Tincup ]

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www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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randibear
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I am deeply sorry for your loss.

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do not look back when the only course is forward

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Lymetoo
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Our own beloved "merrygirl" .. a champion for all. We will miss you, Melissa, but your causes will go forward and you spirit will carry on. God bless.

http://www.mackinnonfuneral.com/notices/Melissa-Kerins

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/3/35922?

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Opinions, not medical advice!

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Tincup
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Jennifer Hollis- Age 22 from Texas

Saturday, May 14, 2016

HOUSTON, TX (KTRK) -- A 22-year-old woman has been reported missing in the Houston area.

According to Texas EquuSearch, Jennifer Hollis was last seen leaving work in the Houston area on Thursday, May 12. She was driving a silver 2004 Toyota RAV4 with Texas plates DGG-5165.

Hollis has a distinguishing mole the right of her left eyebrow.

Anybody with information about Hollis' whereabouts is asked to contact the Houston Police Department at (713) 731-5223 or Texas EquuSearch at (281) 309-9500.

http://abc13.com/news/22-year-old-woman-reported-missing-in-houston-area/1338951/

` ` ` ` ` ` ` ` ` `
MISSING PERSON POSTER

http://www.texasequusearch.org/wp-content/uploads/2016/05/Jennifer-Hollis-Flyer.pdf

` ` ` ` ` ` ` ` ` `
UPDATE: Body of missing student found (Texas)

By The Cougar News Services May 30, 2016

The body of missing 22-year-old Jennifer Hollis was found early Monday morning. According to a Facebook page set up by her family, Hollis took her own life after a long struggle with Lyme disease.

“The problem is that Jennifer suffered an absolutely horrible illness called Lyme disease which bore a pain that is unbearable for those who are inflicted,” Hollis’ family said in a Facebook post.

“Most people didn’t realize this about Jennifer. She suffered in silence. She tried to mask her pain and suffering with her infectious smile, laughter and enduring love of life.”

After Hollis’ family raised thousands of dollars through a GoFundMe page, they hired a private investigator to help find her. After a three week search, her family was notified at 5 a.m. that her body was found.

The family asked that in lieu of flowers, Hollis’ friends and family donate to a Lyme disease awareness charity.

news@thedailycougar.com

Tags: Jennifer Hollis

Link Here

http://thedailycougar.com/2016/05/30/update-body-missing-student-found/

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Beautiful Tribute To A Beautiful Girl- Video

https://www.youtube.com/watch?v=h_GMjVGuC0E&feature=youtu.be

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OBITUARY

God just granted a beautiful young angel her wings. Jennifer Morgan Hollis was lifted to the heavens on May 30, 2016 at the age of 22.

Jennifer was born January 19, 1994 in Houston, Texas. She graduated with the class of 2013 from Memorial High School where she danced with the Marquette dance squad.

She was also active in HITS theater, MHS choir, and enjoyed singing, dancing, piano and art.

After High School Jennifer attended the University of Texas San Antonio followed by the University of Houston.

At the time of her death she was so proud to be working as a medical assistant at The Healing Space, and was hoping to dedicate her life and pursue a health and healing profession of some sort.

During her spare time Jennifer loved to read, learn, grow, and help others. She was constantly searching for ways to be a better person, to impact the lives of others, and to walk a virtuous life with Christ.

She possessed a very strong faith and was comforted by journaling her thoughts, feelings, and devotionals to God.

She is survived by her mother, Elizabeth Anne Hollis, father, Michael Scott Hollis, Jr., sister, Jessica Nicole Hollis, step-mother, Ilinka Rodriguez Hollis, step-sister, Sara Laura Hollis,

paternal grandparents, Laura Hedrick Hollis and Michael S. Hollis, Sr., 13 Aunts/Uncles, 17 cousins, and her beloved dog Ziggy.

She was preceded in death by her maternal grandparents, Carol V.S. Gossweiler and Dr. Robert Lee Gossweiler of Stewartstown, PA, and aunt, Suzanne Regina Gossweiler.

A memorial service to celebrate her life will be held at 2 PM on Saturday, June 11, 2016 at Christ Evangelical Presbyterian Church at 8300 Katy Freeway, Houston, TX 77024.

A private interment will be conducted at Woodlawn Funeral and Cemetery where Jennifer will rest in eternal peace.

In lieu of flowers, please consider a donation in memory of Jennifer to Safe Harbor Lyme.

Safe Harbor Lyme is a non-profit dedicated to provide those in need financial support, community education, awareness and to restore hope to many who suffer from Lyme disease and its co-infections.

Link Here
http://www.woodlawnfh.com/book-of-memories/2524978/Hollis-Jennifer/obituary.php

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Tincup
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Sharing this drains the life out of me. It is just so very sad.

Here it is, a brand new year and we are still losing Lyme patients and so many more are still struggling.

Eivind Markhus- Lyme Warrior

Memorial Tribute by Angelica Johansson
(Translated Into English)

https://botaborrelia.wordpress.com/2017/01/01/bota-borrelia-cure-lyme-borrelia-dodar-lyme-kills-r-i-p-eivind-markhus-and-sarabeth-hammond/

FACE BOOK PAGE TODAY- Our beloved beautiful, kind, brave dad and husband.. Half five in the night you took your last breath. You've had a strong journey through these 16 years, and you're both hero and role model in our eyes.

You've been so strong both mentally and physically so long that it's a real nightmare that this could happen to you. "I win", you wrote. In our eyes you won the fight for liberation of from the wheelchair.

Now you're in heaven. We love you all over our heart daddy. Life will no longer be the same without you.

We miss you so much. Rest in peace.

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Blog Post About Eivind Markhus

https://lookingatlyme.blogspot.co.uk/2010/08/tickbite-lyme-disease-motor-neurons.html

Another post of a letter

https://lookingatlyme.blogspot.co.uk/2012/11/motor-neuron-diseaseals-stabilised-on.html

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Tincup
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And another one has passed...

Sarabeth Rose Hammond, age 17, from Virginia

Memorial Tribute

https://sites.google.com/site/virginialyme/memorial-site/sarabeth-rose-hammond

[ 01-01-2017, 09:17 PM: Message edited by: Tincup ]

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me
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Rest In Peace, Brave Warriors.

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Just sharing my experiences, opinions, and what I've read and learned. Not medical advice.

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logmoss82
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It's truly astonishing to me how many of these deaths can be attributed directly or indirectly to Lyme. And these are just the deaths that have been discovered by the tireless research of people searching obituaries and those acquainted with people on this site and other Lyme sites. Imagine how many more test positive and pass away with no mention of Lyme or tick borne illness in their obituaries and even more that never even had a clue or indication that they might have this disease in the first place who pass and their deaths are never attributed to Lyme. It would be orders of magnitude greater than this long list. Each of these stories resonates deeply with me and I feel for those who felt so desperate and abandoned by modern medicine who saw no choice but to end it all. It's amazing to me how little our supposedly advanced medical sciences know about an insect disease, and the unwillingness to even address this is nothing short of criminal. The disproportionate number of ALS deaths of people who are testing positive and the number of deaths of young people on this list should lead to in depth examination of this disease by the medical community. You don't have to be a medical researcher to notice a pattern here. At some point it is far beyond just coincidence. I refuse to believe that all the family members would lie about what caused these deaths or exaggerate the struggles that these people faced for years on end. Where there is smoke there is fire. How much smoke do we need? I've never been one to be about 'Lyme activism' but looking through lists like these really angers me and demands some form of action. I am glad this is being tracked to some small extent even just by a small website so that not every Lyme death goes down in silence. And people who even discuss chronic Lyme are ridiculed. I am speechless. When will the medical community wake up and at least acknowledge this problem even if they have no solution? Year after year nothing changes and more people are dying and many many more are suffering greatly and have lost their quality of life. Something gotta give here in 2017.

RIP. I hope these deaths will not be in vain.

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Tincup
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Logmoss,

I agree. This should not be happening. You said it very well.

Thank you.

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HW88
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Logmoss, I agree too! It breaks my heart and yet part of me is jealous that their battle is over.
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sometimesdilly
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Am very sorry to hear of Merry Girl's death. I don't stop by here very often anymore, and seeing this news makes me afraid to read up much more...
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Tincup
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Another tragic loss. Rose passed away after 15 years of suffering, at the young age of 28. In lieu of flowers the family needs financial help to bury their daughter.

Rose Schwarz succumbs to Lyme disease

On Jan. 11, with her family by her side, Rose Schwarz passed away peacefully, after succumbing to complications from Lyme disease, which she battled for 15 years with much support from the community.

Coast Reporter first introduced Schwarz to the public in 2009 when it was thought she had gastroparesis, which kept her from being able to eat. Through fundraisers the community helped Rose have a stomach removal surgery, but it didn’t end her health issues.

Years later it would become evident that her stomach paralysis was linked to Lyme disease.

Because she had suffered for so long with the disease, there wasn’t much conventional medicine could do to help, so her family searched out other options and once again the community stepped up to help financially.

Despite special treatments and feeding formulas, Rose continued to lose weight and suffer the effects of long-term Lyme disease.

The community came to know her well and she and her family had a large group of public supporters.

Despite all efforts, this month, at the age of 28, Rose succumbed to her disease.

“On Jan. 11, 2017 with both of us [her parents] by her side, Rose passed away peacefully and with grace and dignity,” said Rose’s mother Tani.

“Over the years the community has opened their hearts to us and this kindness will not be forgotten. … To all the wonderful people who have supported Rose throughout her 15-year battle with Lyme disease, we are eternally grateful.”

Rose is survived by her mother Tani, father Gary, her nana Marti, her uncle Bill and uncle Wes, her stepbrother Bro and her stepsister Meadow.

“Rose’s bravery and persistence shone through her deep pain and inconceivable suffering. She soldiered on until her body finally gave out,” Tani said.

There will be a public celebration of Rose’s life on Feb. 12 at 3 p.m. at the Sechelt Legion.

In lieu of flowers the family is asking for donations to help cover the costs of the funeral.

Donations can be given online at tinyurl.com/jdzvosz or to The Rose Fund at any branch of the Sunshine Coast Credit Union.

You can also donate through PayPal at tani_schwarz@hotmail.com

There is also a Burger and Beer fundraiser planned at the Lighthouse Pub all day on Jan. 28, including a silent auction and live music starting at 1 p.m.

All proceeds will go to the family.

http://www.coastreporter.net/news/local-news/rose-schwarz-succumbs-to-lyme-disease-1.7999417

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Tincup
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I share this today in memory of Dr. Edwin Master's (1945-2009). He was a good man, a wonderful and compassionate doctor and ahead of the times with his research. Along with many others I still miss him.

Article in his memory, by Dr. Saleh Aldasouqi

http://tiny.cc/58i0jy

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Tincup
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May 7, 2017

Beloved LLMD- Dr. John Greg Hoffman- Waupauca, WI

The funeral arrangements have been announced.

http://www.waupacanow.com/2017/05/09/hoffmann-dr-j-greg/#_

Dr. J. “Greg” Hoffmann, age 66, of Hartford, Eagle River and Waupaca, passed away on Sunday, May 7, 2017.

He was born on July 26, 1950 in Hartford to parents Dr. J. Gregory and Marie (nee Schwartz) Hoffmann. “Doc” continued the family legacy of practicing medicine throughout the state.

He was nationally recognized as a specialist in treating Lyme Disease. Family, friends and patients will always remember his compassion, bedside manor, his “old school” approach to his profession and his “cowboy” attitude.

He loved the outdoors, spending time hunting, fishing and enjoying his cabin in the north woods.

Dr. Hoffmann is survived by two children, Erica (fiancé James Estrada) Hoffmann and Shane (Erika); one granddaughter, Madison; brother, Tom (Krista); nieces, Lindsay (Shane) Becker, Courtney (Zach) Fricke; nephew, Cassidy (Cristy); former spouse, Anne (nee Rublee) Hoffmann.

Also survived by other relatives and many friends. Dr. Hoffmann is preceded in death by his parents.

A time of visitation and support for family and friends will be held at St. Kilian Catholic Church, 264 W. State St., Hartford on Thursday, May 11 from 4:00 p.m. – 7:00 p.m. Mass of Christian Burial will be celebrated at St. Kilian Catholic Church, on Friday, May 12 at 10:30 a.m.

Committal Service will be held at Clearwater Lake Cemetery on Friday, May 12 at 4:30 p.m. A gathering will be held after the committal to continue the memories and fellowship at the Oneida Village in Three Lakes, WI.

In lieu of flowers, memorials are appreciated to St. Kilian Catholic Church, St. Theresa Catholic Church, Three Lakes, WI or www.wisconsinlymenetwork.org

Shimon Funeral Home is serving the family.


Post here about his medical board fight. He was a real contributor and trooper. He will be missed.

http://www.lymedisease.org/hoffmanwisc/

Adding Dorothy's memorial post about Dr. Hoffmann.

https://www.lymedisease.org/touchedbylyme-hoffmann-obit/

RIP

[ 05-09-2017, 09:19 PM: Message edited by: Tincup ]

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Rumigirl
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What a terrible loss!! This one was due to a car accident, not Lyme.
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Tincup
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A Memorial Tribute- Video- Dr. John Hoffmann.

Absolutely beautiful...

https://www.youtube.com/watch?v=klclti2SweE&feature=youtu.be

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Tincup
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With great sadness...

In Memory of Miguel Angel Julio Perez-lizano

Friend, Patient Advocate and A Good Man

More information here....

https://sites.google.com/site/marylandlyme/memorial-page/miguel-angel-julio-perez-lizano

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Lymetoo
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http://whatislyme.com/alex-hudson-rip-32418/

--------------------
--Lymetutu--
Opinions, not medical advice!

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Tincup
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Woman who died from Rocky Mountain spotted fever bit while camping in western Wisconsin

MADISON, Wis. - A La Crosse woman has died of a disease that's considered rare in the Midwest, health officials said.

The Wisconsin Department of Health Services and the La Crosse County Health Department said Tuesday that the death is the first documented from Rocky Mountain spotted fever in Wisconsin.

Jo Foellimi, a La Crosse County public health nurse, says the woman was bit while camping in western Wisconsin in early May.

The woman was diagnosed with RMSF in mid-June and died days later. Foellimi says the woman was in her late 50s but declined to identify her.

RMSF most commonly occurs in the central and southeastern regions of the United States, according to a news release. Most tickborne diseases transmitted in Wisconsin are spread by the blacklegged (or deer) tick. RMSF, however, is spread by the bite of the American dog (or wood) tick.

Early symptoms of RMSF can be mild and typically include fever, headache, nausea, vomiting, rash and stomach pain, DHS said. If left untreated, an RMSF infection can rapidly develop into a serious illness.

DHS encouraged Wisconsin residents to take the following steps to protect themselves and their families from tick bites while enjoying the outdoors:

Use an insect repellent with at least 20-percent DEET or another EPA-registered repellent according to the label instructions.

Use 0.5-percent permethrin products on clothing, socks and shoes according to label instructions.

Stay on trails and avoid walking through tall grasses and brush.

Wear long sleeves and pants, and tuck pants into socks and shirts into pants to avoid ticks crawling under clothing.

Check your entire body for ticks after being outdoors.

Take a shower as soon as possible after coming in from outdoors.

Place clothes in the dryer on high heat for 10 minutes to kill any ticks on clothing.

Use a veterinarian-prescribed tick prevention treatment on pets.

DHS said that of the illnesses spread by ticks in Wisconsin, Lyme disease is the most common, but ticks can also spread anaplasmosis, ehrlichiosis and, more rarely, RMSF and Powassan virus.

Many people who contract a tickborne disease do not recall a tick bite, so it's also important to be aware of the common symptoms of tickborne disease, such as fever, rash, headache, body aches and fatigue.

Most diseases spread by ticks in Wisconsin can be effectively treated with antibiotics, making early diagnosis critical, health officials said. If symptoms develop after a tick bite or after possible tick exposure, see a health care provider.

https://www.channel3000.com/health/dhs-wisconsinite-dies-from-rocky-mountain-spotted-fever/766125761

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Tincup
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Aldo Pezzi, Jr.

Aldo Pezzi, Jr., age 67, of Merrill, passed away on Wednesday, December 5, 2018 at his home after an over 3 year battle with neurological Lyme disease and stroke complications.

Aldo was able to stay living at home with personal caregivers, his family, and hospice services support.

Aldo was born December 23, 1950, in Merrill, son of the late Aldo Sr. and Wanda (Widenhoft) Pezzi.

Aldo attended Merrill Senior High School and was a graduate of Northcentral Technical College, Wausau, with a degree in Automotive.

He was a self-employed logger and was often complimented for the great job he did in timber harvesting.

Earlier in his life, Aldo was an avid motocross racer and competed throughout the state of Wisconsin.

Aldo also participated in kart racing. Aldo enjoyed attending Merrill Blue Jay sporting events; open wheel and sports car races, especially at Road America; and auctions to find good buys.

Aldo enjoyed watching Badger football and basketball and shows about cars. Aldo loved his many pet dogs throughout the years and his rural lifestyle.

Aldo was an excellent mechanic and metal fabricator. Aldo had a great sense of humor that remained even during his illness.

Aldo was a great brother who taught his younger sister to ride motorcycles, use tools, fix things and he will be deeply missed.

Aldo is survived by two sisters, Christine (Bill) Burchell, Athens, Alabama, and Michelle M. (Steve C.) Plautz, Merrill; two nieces, Theresa and Angela; two great nieces, Stevie and Chrissy; two great great nieces, Aria and Presley; a great great nephew, Lane; two aunts, Lydia Bauman, Merrill, and Deana Trinitapoli of Wisconsin; his special cousin, Alfred Pezzi, Tomahawk; and many other cousins.

Thank you to all the caregivers, relatives, friends, and neighbors for their prayers, support, help, and for every kindness.

Our deepest gratitude to Fay and the team she put together to help Aldo live at home to the end – Alissa, Anna, Cassie, Denise, Kim, and Sherry.

In accordance with Aldo’s wishes, there will be no services. Taylor-Stine Funeral Home & Cremation Services, Merrill, is assisting the family.

Online condolences may be made at www.taylorstinefuneralhome.com

Memorials in Aldo’s name may be directed to a cause that is close to your heart.

Source https://www.merrillfotonews.com/2018/12/07/aldo-pezzi-jr/

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Tincup
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In Memory of Clarissa Tilghman Yost White

EASTON — Clarissa Tilghman Yost White, aged 78 years, died Saturday, Feb. 9, 2019, in Easton, Md.

Mrs. White was born in Baltimore, Md., on June 12, 1940, to Mr. John Stevenson Long Yost and Mrs. Clarissa Tilghman Goldsborough Yost.

Mrs. White was descended from several families that were settled in Talbot County in the 17th century to include the Goldsborough, Lloyd, Tilghman and Turbutt families.

Mrs. White enjoyed the majority of her life at Ferrybridge Farm on the Miles River in Easton, Md.

Mrs. White was previously married and divorced from the late John Patterson White of Easton, Md. She is survived by her sister, Julia Goldsborough Yost of Newfoundland, Pa.; and her brother, Stevenson Yost of St. Helena, Calif.

She is also survived by her daughter, Catherine Goldsborough White Murphy of Easton, Md.; and her son, John Patterson White II of Charleston, S.C.

Mrs. White is survived by her grandchildren, Hopewell Blacker Lee Murphy, Liza Michelle White, Hannah Lloyd Clare Murphy and Joseph Tilghman White; and her daughter-in-law, Kristen Watson White. Mrs. White was preceded in death by her son-in-law, Christopher W.W. Murphy of Easton, Md.

Mrs. White was a member and supporter of the National Society of the Colonial Dames of America and the Society or Lees of Virginia. When she was not at Ferrybridge Farm, Mrs. White enjoyed traveling the world and could often be found painting in Italy.

She forged many close relationships throughout her travels to parts of Asia, Australia, Africa, South America and Europe. She found happiness spending time on the water, in her garden, visiting with friends, supporting local art festival, and enjoying time with her grandchildren. Her loyal Labradors were often by her side.

Funeral services will be held on Monday, Feb. 18, 2019, at 11 a.m. at Christ Church 111 S. Harrison St., Easton, MD 21601. A family burial will be at Spring Hill Cemetery, where she will be laid to rest in the Goldsborough family plot, among her ancestors.

For online condolences, please visit www.fhnfuneralhome.com

Star Democrat Obituary

https://www.stardem.com/obituaries/clarissa-white/article_67a9d673-3ffd-56f2-a8c1-86d899f7e759.html

Sharing A Memory

When I started the first two Lyme Disease Support Groups in Maryland many years ago the majority of people and health care professionals across the state had never heard of Lyme disease.

Crissie was the first volunteer who came to help me educate and support those who were suffering. The article linked below was inspired by Crissie after her family member passed away from what was later determined to be Lyme disease.

I've highlighted in bold font the section that mentioned Crissies' loss. Of course, no names were used back then out of respect and to protect the privacy of those who passed and their families.

Crissie was very dedicated to helping others who suffered. She will be missed. Rest in peace my friend.

"Rarely Fatal" Disease Claims More Lives- Published in the Star Democrat

https://sites.google.com/site/marylandlyme/memorial-page/rarely-fatal-disease

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Tincup
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May he rest in peace...

OBITUARY
Carl J. Hamrin


Mon, 08/19/2019 - 9:15am

Carl J. Hamrin

On Aug. 14, 2019, Carl Johan Hamrin, loving husband and father, passed away at the age of almost 87.

Carl was born on Sept. 26, 1932 in Stockholm, Sweden.

He received a degree in naval architecture and marine engineering from the Royal Institute of Technology in Stockholm and was an avid sailor and computer geek, combining computer assisted design with his love of the ocean.

He served as an ensign in the Royal Swedish Navy and loved to sail the archipelagos in the Baltic, North Sea and Caribbean.

On Sept. 22, 1963, he married Jeannie at the Seaman’s Church in Copenhagen, Denmark. They raised two daughters, Kristina and Sofia in Sweden and Maine.

Carl had a passion for the sea, sailing and fishing that started as a toddler when he would ride the Djursholm ferries in Stockholm’s archipelago, fishing on the west coast, racing Finn Dinghies in the Baltic and sailing boats across the North Sea, around Scandinavia and the Caribbean.

After becoming a naturalized U.S. citizen in 1975, he owned many boats and even lobstered part-time in Cape Porpoise. His last boat was a Parker that he skippered as a proud coxswain in the Coast Guard Auxiliary.

He was known for his quick wit, his “mischievous” smile, and his kind and compassionate spirit.

Carl was preceded in death by his parents and older sister. He is survived by an older brother, his wife and their two children, one granddaughter and several cousins, nieces and nephews and their children.

He worked happily as an engineer on container ships, as a researcher at the Royal Institute of Technology, as a systems analyst, director of computer services at University of New Hampshire and University of New England and finally as vice-president at Taction.

Being Swedish, everything was “lagom” (in balance) so work/play balance was “just right.” He felt blessed to have done everything he wanted to accomplish while he was in good health.

He enjoyed exploring all seven continents, wonderful backpacking holidays in New Zealand, Iceland, Sweden, Pacific Crest, Greenland; yearly visits to Puerto Vallarta and Bermuda and hosting six international exchange students.

Later in life, Carl was active with the Coast Guard Auxiliary, Signal Point Marina, fire department, Harbor Theater and the Boothbay Region Health Center serving on boards and helping with technology.

J.K. Rowling said, “To the well-organized mind, death is but the next great adventure.”

During his planning meeting for coming home with hospice care, Carl jumped into this experience full speed ahead.

He knew that when he got home, life was no longer “hopeful of meaningful recovery,” and home care resources were “limited” and he chose not to place an “undue burden” on his family.

With his ethos of moderation and stubbornness, he decided to die on his terms. He didn’t want a funeral service.

He underwent an eco-friendly green cremation. Family and friends will celebrate his well-lived life in both Sweden and Maine at later dates.

Carl said the only advantage of dying after living with eight years of chronic Lyme Disease, is that he had time to research the effects of failure to diagnose and treat Borrellia burgdorferi, Babiosiosis and Bartonella Hensae.

He used his giant intellect and research skills to discover many unbelievable characteristics from a tick bite.

In death, he still wants to help people with Lyme. If you are moved to help those who suffer from Lyme, please make a donation in Carl’s memory to

https://lymediseaseassociation.org/donate/

The link will allow you to determine where you want your donation to go.


Obituary Here

https://www.wiscassetnewspaper.com/article/carl-j-hamrin/122971

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Tincup
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Ann OH posted...

Please read the obituary to know the story of the woman who discovered Lyme disease and was our brilliant advocate for so many years.

https://tinyurl.com/y2ttbqyn

Mary "Polly" Luckett Murray, 85, of West Orange, NJ, passed away on Tuesday, July 16, 2019, with her daughter by her side.

She was born in New York City, the daughter of the late Edward Hobbs Luckett and Mary Gardner Sayles Luckett. Polly grew up in Irvington, NY, and attended The Masters School in Dobbs Ferry. She earned a BA at Mount Holyoke College, where she graduated Phi Beta Kappa in 1954.

After Mount Holyoke, Polly was awarded a fellowship at Yale Art School, studying with the American painter Robert Brackman in Noank, Connecticut, and the Art Students League of New York.

She married the late Irvin Gillis Murray.

They raised four children in Lyme, CT: Alexander "Sandy" Gillis Murray, Dr. David Kingman Murray, Caroline "Wendy" Sayles Zeidner, and Dr. Todd Ingalls Murray.

During the 1960s and 1970s, Polly's family became stricken with a variety of unexplained symptoms ranging from rashes and joint pain to fever.

Doctors she visited were unable to effectively diagnose these ailments. It soon became clear to Polly that others in the community were having similar symptoms. I

In 1975, Polly called the Connecticut State Department of Health to report an unusual pattern of symptoms affecting her family and her community, and listed over 40 cases of what would come to be known as Lyme Disease.

The call to the State prompted a meeting between Polly and Dr. Allen C. Steere of the Department of Rheumatology at Yale University School of Medicine, who began studying the pattern of disease and wrote the first medical papers of what was initially described as Lyme Arthritis.

Following the discovery of Lyme Disease, Polly worked tirelessly throughout the 1980s and 1990s as a volunteer to raise public awareness about the disease.

She was a foundational thinker and member of many Lyme Disease support groups and foundations, in California, Connecticut, and New York, among other states.

In 1996, Polly published a book with St. Martin's Press," The Widening Circle: A Lyme Disease Pioneer Tells Her Story", and continued professional connections with many of the leading researchers on Lyme Disease.

Also, in 1996, Polly was awarded an Alumnae Honorary Degree by Mount Holyoke for her work on Lyme Disease. She also received an award from the NIH, and lectured medical students at Case Western Reserve University and Columbia University.

Polly was an avid artist, painting throughout her adult life, and also for a period of time focused her artistic talents on making dolls with faces which were hand painted, and which were a unique fusion of antique bisque doll forms and her own talent for drawing and painting children.

Her dolls were displayed at the Museum of American Folk Art in New York, and she exhibited paintings at the Lyme Academy, the Old Lyme Art Academy, the Cooley Gallery, the Essex Art Association Gallery, the Clinton Art Society, the Mystic Art Association Gallery, New Haven Paint and Clay Club, Shippee Gallery in New York, and many other venues.

Polly was known for her love of her family and friends, and for her fierce determination to overcome any obstacles in her path and to help others do the same.

She received phone calls from people all over the country and the world, and it was her greatest satisfaction to provide the support they needed and connect them to Lyme Disease clinicians and best practices.

In addition to her bouts with Lyme Disease, Polly lived for more than fifteen years after she was diagnosed with Alzheimer's. She refused to give in to any of these afflictions, and enjoyed a remarkably high quality of life until shortly before she passed.

Polly was predeceased by her brother, William Stone Luckett, II, and his wife, Diana "Dede" Ward Luckett, and her sister, Nina Luckett Anderson, and her husband, Dr. Harrison Clarke Anderson.

She is survived by her four children and grandchildren: Pramila Karki Murray, Santosh Gillis Subedi Murray, Kai Murray, America Murray, Isabelle Amelia Zeidner, Chloe Helena Duarte Murray, and Andreas Gillis Murray.

Please email pollymurray32@gmail.com for information regarding a memorial service in August.

Published in The New Haven Register & Shoreline Times from July 21 to July 26, 2019

[ 07-22-2019, 05:12 PM: Message edited by: Ann-Ohio ]

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Tincup
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Please keep this young lady Samantha K. Butterbrodt, her family and friends in your prayers...

https://sites.google.com/view/lyme-memorial/ladies/samantha-butterbrodt

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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