My bet is we can get 5,000 signatures by Valentines Day!!!! (For you guys out there, that is February 14.)
If you don't want the IDSA guidelines to be blocking your way to getting treatment- SIGN ON NOW!!!!!
Lymedisease.org (formerly CALDA) is taking the lead on this effort, so we know it is a good deal for us.
Link to petition is below... (I would advise clicking the anonymous button before submitting your name- safety first!)
LYMEPOLICYWONK: SIGN THE PETITION TO TAKE DOWN THE IDSA GUIDELINES!
24 Jan
Medical treatment guidelines are tremendously important in determining your treatment options. All important treatment guidelines are listed by the National Guidelines Clearinghouse (NGC), which is part of the US Department of Health and Human Services.
It�s the government�s way of providing updated information about different diseases to health care professionals. NGC�s own rules require that listed guidelines be updated every 5 years.
"Fibromylagia" for 8+ years Pos IgeneX WB per both Igenex and CDC Pos Neuroscience MyLymeImmuneID Started tx for Lyme in March 2011 Posts: 245 | From East Coast | Registered: May 2011
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posted
I signed already also, Glad to see it here. I was unable to copy the post proper to this site.
Posts: 50 | From Holland, MI. 49424 | Registered: Oct 2011
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posted
The signatures are pouring in - every time I look, they've jumped in number. Since this can also be signed internationally, spread the word out there!
Posts: 13171 | From San Francisco | Registered: May 2006
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lymeboy
Unregistered
posted
we'll have 5000 signatures by tommorrow....Valentine's day? maybe tens of thousands!!!!!
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posted
I see about 100 an hour have been coming in - 12 more hours, or less, for 5000 on our new Valentine's day, January 26!
Oh well, blossoms are already coming out, so why not? Today, we can send Lyme Valentines to everyone who signed it or who will...Is a Lyme Valentine a Valenlyme?
Posts: 13171 | From San Francisco | Registered: May 2006
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David95928
Frequent Contributor (1K+ posts)
Member # 3521
posted
3,844th
-------------------- Dave Posts: 2034 | From CA | Registered: Jan 2003
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I imagine the 5000th person must have had a special pleasure in doing so, and of course, following everyone else who came to the site to cast their vote against guidelines that don't work for anyone -
time to move on, as they say in Moveon and lots of other organizations for social justice...
Posts: 13171 | From San Francisco | Registered: May 2006
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
My number is 5036. Woot woot!!
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I have a new prediction - 45 minutes later, it's already at 5100 - I think we might make 6000 by midnight PST!
Posts: 13171 | From San Francisco | Registered: May 2006
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