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» LymeNet Flash » Questions and Discussion » Medical Questions » Guidelines-Petition- Groundhogs are Dancing! (Page 1)

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Author Topic: Guidelines-Petition- Groundhogs are Dancing!
Tincup
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Direct Link to Petition:
http://www.lymedisease.org/petitionscript/index.php

OK! I have a dream.

My bet is we can get 5,000 signatures by Valentines Day!!!! (For you guys out there, that is February 14.)

[lol]

If you don't want the IDSA guidelines to be blocking your way to getting treatment- SIGN ON NOW!!!!!

Lymedisease.org (formerly CALDA) is taking the lead on this effort, so we know it is a good deal for us.

Link to petition is below... (I would advise clicking the anonymous button before submitting your name- safety first!)

LYMEPOLICYWONK: SIGN THE PETITION TO TAKE DOWN THE IDSA GUIDELINES!

24
Jan

Medical treatment guidelines are tremendously important in determining your treatment options. All important treatment guidelines are listed by the National Guidelines Clearinghouse (NGC), which is part of the US Department of Health and Human Services.

It�s the government�s way of providing updated information about different diseases to health care professionals. NGC�s own rules require that listed guidelines be updated every 5 years.

Full story here:

http://www.lymedisease.org/news/lymepolicywonk/901.html

Direct Link to Petition:

http://www.lymedisease.org/petitionscript/index.php

EVERYONE CAN SIGN THIS! SO PLEASE DO!!!

[ 02-03-2012, 04:27 PM: Message edited by: Tincup ]

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Tincup
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Up for the early birds... here's your worm!

[Big Grin]

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Tincup
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At 12:30 am on Wednesday, January 25, 2012 there were 48 people signed on.

I was # 16. What's your number?

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Tincup
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At 2:20 AM we hit 109 people!!!

Keep going!!!

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Garden
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I was #365

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Garden

"Fibromylagia" for 8+ years
Pos IgeneX WB per both Igenex and CDC
Pos Neuroscience MyLymeImmuneID
Started tx for Lyme in March 2011

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baileypup
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I was 505
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tickssuck
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#543!
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Tincup
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GREAT! Thanks for signing on!!!

Now YOU have a voice!

I am thrilled we are over 500 already!!!!

[Big Grin]

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www.MarylandLyme.org
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Tincup
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12:20 PM on Wed.

630 now!

Get your umbrellas out. I can feel the IDSA tear drops starting to fall.

[lol]

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Tincup
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"A small, but vocal group."

That is how the IDSA referred to us in multiple publications over the years as they tried to dismiss us to officials.

Show 'em your stuff!

[Big Grin]

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Tincup
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Hey TuTu... show 'em your tutu.

[lol]

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Tincup
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1:30 PM- 725 people!!!

Hot dawgs!

[Big Grin]

--------------------
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Tincup
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Can we get 1,000 in 24 hours????

Before 11 PM?

YES! I think we can! ????

Go, go, go!

[Big Grin]

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baileypup
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2,430 signed....
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RZR
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I was 2,572

--------------------
Tick bite May 2009
Diagnosed June 2009

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Tincup
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2,808! MY GOODNESS!

I absolutely am not good with numbers, but right now I'm happy about that!

Looks like we have not 1,000, not 2,000 but maybe THREE thousand in 24 hours?

[Big Grin] [Big Grin] [Big Grin] [Big Grin]

Bailey and RZZZZZZR...

Thanks! Glad you made your voice heard!

--------------------
www.TreatTheBite.com
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Tincup
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Drum Roll!

Absolutely amazing! I was hoping to see 5,000 signatures on the petition by Valentines Day.

It is very possible we will make it, especially considering in less than 24 hours- 11 PM last night, to 10:35 tonight- we got over ...

3,000 signatures!

Cheers and applause to you!

Having the community working together to give the IDSA guidelines the boot is wonderful!

Keep up the good work, and thank you for signing on, and for sharing this with everyone you know!

[Big Grin]

Direct Link to Petition

http://www.lymedisease.org/petitionscript/index.php

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
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steve1906
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I was number "3046"

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Everything I say is just my opinion!

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lyme in Putnam
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signed and my sister, don't know what number, and my husband.

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He took u to it, He'll you through

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Tincup
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GREAT Steve and Lyme in Putnam! Thank you and yours for signing on!

You know with your help we are getting an average of 127 people per hour signing on!

More than 2 per minute!

Amazing!

[Big Grin]

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Nicole_Denise
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Hoooray! That is so exciting! I signed today and I was only 723!

I emailed it to all my friends and families.

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cht girl
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Signed tonight.... we refuse to be silenced...
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Robin123
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24 hours ago, I was #108. 24 hours later, the count is at 3381!!!
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WhitneyS
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YAY I signed too
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Hopeful in Holland
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I signed already also, Glad to see it here. I was unable to copy the post proper to this site.
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opus2828
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Just signed it.
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Robin123
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The signatures are pouring in - every time I look, they've jumped in number. Since this can also be signed internationally, spread the word out there!
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lymeboy
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we'll have 5000 signatures by tommorrow....Valentine's day? maybe tens of thousands!!!!!
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Robin123
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I see about 100 an hour have been coming in - 12 more hours, or less, for 5000 on our new Valentine's day, January 26!

Oh well, blossoms are already coming out, so why not? Today, we can send Lyme Valentines to everyone who signed it or who will...Is a Lyme Valentine a Valenlyme?

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David95928
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3,844th

--------------------
Dave

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Lymetoo
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Done... didn't look for a number .. oops [bonk]

--------------------
--Lymetutu--
Opinions, not medical advice!

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payne
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3926

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TULAREMIA/rabbit fever ?

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Tincup
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3970 people signed this petition! Yee ha!

[Big Grin]

--------------------
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Tincup
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Now it's over 4,000!

Do I hear 5?

[Big Grin]

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back2game
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#4184 - 11:45 AM

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CNS Lyme 05/08 - EIA 1.16+, IGG 18+, IGM 23+
01/11-IGM 31 Epitope Positive
01/11-IGM 31+++, 41+, 58++, 83-93+, 23-25IND, 39IND
01/11-IGG 41+
Vasculitis 01/07,MCTD 05/06,Fibro 11/04, Myofascial PS 11/03
Embedded Tick app. 1990

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Tincup
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4,470

Thursday, 3:50 PM.

Can we make it 5 thousand by 5 PM?

[Big Grin]

--------------------
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Robin123
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Reporting in:

Lymie drumroll pleeze --

5004 as of now!!

I imagine the 5000th person must have had a special pleasure in doing so, and of course, following everyone else who came to the site to cast their vote against guidelines that don't work for anyone -

time to move on, as they say in Moveon and lots of other organizations for social justice...

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kidsgotlyme
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My number is 5036. Woot woot!!

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symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections.

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Abxnomore
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Up:

http://www.lymedisease.org/petitionscript/index.php

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Robin123
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I have a new prediction - 45 minutes later, it's already at 5100 - I think we might make 6000 by midnight PST!
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Lymetoo
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We are so awesome!! [Big Grin]

--------------------
--Lymetutu--
Opinions, not medical advice!

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Tincup
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hehehehehehe ... I agree!

Look at us go! Amazing we all are!

And, if we do really good and get those numbers up, up, up, maybe we can use the IDSA guidelines for toilet paper?

Or maybe use them to line the bottom of the bird cage?

[lol]

--------------------
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Abxnomore
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Send it to everyone in your address book and as them to pass it on. I did.
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Tincup
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GREAT ABX!!! I agree, please do!

Thanks too!

[Big Grin]

--------------------
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Tincup
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5373 people signed this petition.

[Big Grin]

--------------------
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jackie81
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5533 people have signed-wow
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Tincup
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Wonderful!

It appears we are good out of the gate, but can we keep up the pace?

6,036 people signed this petition as of now. How about sending out a reminder to friends and family?

[Big Grin]

--------------------
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Tincup
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Ok weekend bunch... show us what you can do!

Current number is.... 6,451

Thanks to all who are working to get this done.

[Big Grin]

--------------------
www.TreatTheBite.com
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www.MarylandLyme.org
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Tincup
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6,709

Did you sign on?

--------------------
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17hens
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Up for the Weekend Crew!!!

Yes, show us what you can do!!!

[woohoo] [woohoo]

--------------------
"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

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