My bet is we can get 5,000 signatures by Valentines Day!!!! (For you guys out there, that is February 14.)
If you don't want the IDSA guidelines to be blocking your way to getting treatment- SIGN ON NOW!!!!!
Lymedisease.org (formerly CALDA) is taking the lead on this effort, so we know it is a good deal for us.
Link to petition is below... (I would advise clicking the anonymous button before submitting your name- safety first!)
LYMEPOLICYWONK: SIGN THE PETITION TO TAKE DOWN THE IDSA GUIDELINES!
24 Jan
Medical treatment guidelines are tremendously important in determining your treatment options. All important treatment guidelines are listed by the National Guidelines Clearinghouse (NGC), which is part of the US Department of Health and Human Services.
It�s the government�s way of providing updated information about different diseases to health care professionals. NGC�s own rules require that listed guidelines be updated every 5 years.
"Fibromylagia" for 8+ years Pos IgeneX WB per both Igenex and CDC Pos Neuroscience MyLymeImmuneID Started tx for Lyme in March 2011 Posts: 245 | From East Coast | Registered: May 2011
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posted
I signed already also, Glad to see it here. I was unable to copy the post proper to this site.
Posts: 50 | From Holland, MI. 49424 | Registered: Oct 2011
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posted
The signatures are pouring in - every time I look, they've jumped in number. Since this can also be signed internationally, spread the word out there!
Posts: 13116 | From San Francisco | Registered: May 2006
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lymeboy
Unregistered
posted
we'll have 5000 signatures by tommorrow....Valentine's day? maybe tens of thousands!!!!!
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posted
I see about 100 an hour have been coming in - 12 more hours, or less, for 5000 on our new Valentine's day, January 26!
Oh well, blossoms are already coming out, so why not? Today, we can send Lyme Valentines to everyone who signed it or who will...Is a Lyme Valentine a Valenlyme?
Posts: 13116 | From San Francisco | Registered: May 2006
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David95928
Frequent Contributor (1K+ posts)
Member # 3521
posted
3,844th
-------------------- Dave Posts: 2034 | From CA | Registered: Jan 2003
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I imagine the 5000th person must have had a special pleasure in doing so, and of course, following everyone else who came to the site to cast their vote against guidelines that don't work for anyone -
time to move on, as they say in Moveon and lots of other organizations for social justice...
Posts: 13116 | From San Francisco | Registered: May 2006
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
My number is 5036. Woot woot!!
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I have a new prediction - 45 minutes later, it's already at 5100 - I think we might make 6000 by midnight PST!
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
#7358. Hope it helps.
Posts: 702 | From North Eastern USA | Registered: Dec 2009
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Has CALDA had any credibility with the powers that be over the years? Obviously, I know the guidelines have not been amended, but does this organization yield any power with any important government agencies to sway things at all?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
7790 people signed this petition! We are getting there!
Lightfoot- good to see you! You too puppy! Thanks!!
Seek...
CALDA- now Lymedisease.org- is highly credible. The fact you even know what Lyme disease is, well, you can thank them for it. Why not read about them on their website?
They have done an incredible amount of work, non-stop, since the late 1980's to help sick patients, get doctors trained, work on legislation and educate the public.
I think the power they have to sway things, as you eluded to, is the truth.
They don't roll around in the mud and play kissy-face like others may do to sway people to their side, they do the honorable thing and present the facts and they don't give up.
And the best thing is... they are willing to do it.
Not many people or organizations have put in that many years working to help millions of people they don't even know.... out of the kindness of their hearts.
Have you signed the petition yet? It is something everyone, no matter how sick you are, can do!
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
GROUNDHOG DAY PREDICTION
If Punxsutawney Phil sees his shadow on Groundhog Day, legend says we will have six more weeks of winter. If he doesn't see it, spring is just around the corner!
BUT.... Phil, who lives in highly endemic Pennsylvania, told me if he comes out of his den for his midnight snack on Feb 2 and sees less than 10,000 signatures on the petition to bury the IDSA guidelines, he will start biting everyone who didn't sign on!
The good news is... if there are more than 10,000 signatures he will only bite the IDSA guideline authors! Sounds like a deal to me! ~smile~
Please sign the petition and get everyone you know to sign it! Getting more signatures surely beats having to hide from an angry groundhog and deal with the IDSA any longer!
posted
8556!! Posts: 19 | From Central Alabama | Registered: Sep 2011
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
GREAT Keith!
Since you are in Alabama, you might want to know...
I am hearing some rumblings from General Lee- the southern groundhog weather predictor. Waiting on an official message from him now. Will post when it arrives!
posted
9604 signatures. I signed it and forwarded to friends and family.
Posts: 677 | From Virginia | Registered: Sep 2002
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
TC, this is sooo exciting! And you make such a great cheerleader!
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hens you are too funny!
OK, special message from General Lee....
```````````````````````````````````````````
General Beauregard Lee, PhD., the Southern Groundhog Weather Predictor based out of Atlanta, said to tell you there will be an early spring this year in the south!
He is sorry Punxsutawney Phil in Pennsylvania wasn't able to predict the same for the rest of the country.
General Lee said he is VERY pleased to know we now have over 9,000 signatures on the petition and he wanted to thank you very much for your efforts so far.
He is concerned though that there may not be 10,000 signatures by midnight tonight- Groundhog Day.
He said he would write people directly to ask them to sign on, but as you know, he is not allowed to have a computer or phone in his den, only a TV.
He said if you could help get the 10,000 signatures on the petition by tonight (tweet, facebook, email, phone calls, whatever), he would personally send a message to the guideline authors saying "Kiss My Grits!"
We need about 300 more people (as of now) to make it to 10,000.
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