-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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posted
I do love irony. Both these institutions are in Texas, you know, the state with no Lyme.
Posts: 478 | From Third Coast | Registered: Feb 2011
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
I am tired maybe but this is good news for some.
Basically it is for symptoms caused by inflammation that are completely post infection? After you are cured of the Lyme infection and antibiotics have no effect on your symptoms, this will?
Posts: 410 | From Victoria BC, Canada | Registered: Jul 2008
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
How will this work?
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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quote:Originally posted by Lymetoo: Call me the skeptic.
--
"leading Lyme clinician at one of the nation's top medical centers"
--and who the heck is THIS referring to?
I'm assuming it will be one of the good guys, possibly Dr. F, Columbia Univ. Lyme Research Unit.
He was previously a recipient of funding by the same group that is funding these trials.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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quote:Originally posted by tricia386: How will this work?
From what I understand, the drug will remove or replace "self-peptides" with "targeted peptides". The theory is that many of the symptoms we feel are the body's over-reaction to small amounts of infection.
So I'm guessing that this drug will allow the body to kill spirochetes without attacking tissues in joints, nerves, etc.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
| IP: Logged |
tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Is it dangerous? What are the side effects??
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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lymeboy
Unregistered
posted
The video is extremely low on details. I am having a hard time feeling good about this.
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-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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posted
I will be very interested in following this. The inflammation blockade is a big part of this disease. I had positive results from the Marshall Protocol and Medsonix both of which go after inflammation.
Posts: 805 | From Utopia | Registered: Feb 2006
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'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189
posted
So how can the FDA consider a drug for "the treatment of chronic Lyme" if the IDSA sasy the condition doesn't exist??
Posts: 1233 | From Dover, NH | Registered: Sep 2008
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-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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annxyzz
Frequent Contributor (1K+ posts)
Member # 20404
posted
I am not too hopeful. I have very little inflammation and have felt fluish since 1996 .
I think they are not facing the fact that lyme is a bacteria unlike others - novel .
Almost insulting to think that we do not still have an ongoing infection, since there are thousands of us saying the same damn thing OVER and OVER and OVER .
-------------------- annxyzz Posts: 1178 | From East Texas | Registered: May 2009
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-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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posted
I am not clear about the top IBM exec that they are saying is funding this research. Indeed some have told me that he actually have taken this experimental drug therapy himself- about this I can't seem to get any real information.
If he did get a lot better from this treatment that would certainly mean something. j
-------------------- jeremy Posts: 71 | From new york city | Registered: Sep 2011
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
KT said, "So how can the FDA consider a drug for "the treatment of chronic Lyme" if the IDSA sasy the condition doesn't exist??"
Ssh, don't tell 'em, and then if it works we can say, "Told ya so!"
I have it from a LLMD that this is one of the good guys working on this, with funding through Time for Lyme. Cross your fingers.
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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quote:Originally posted by annxyzz: I am not too hopeful. I have very little inflammation and have felt fluish since 1996 .
I think they are not facing the fact that lyme is a bacteria unlike others - novel .
Almost insulting to think that we do not still have an ongoing infection, since there are thousands of us saying the same damn thing OVER and OVER and OVER .
I don't believe they are denying that there is chronic infection. They talk about targeted-peptides being able to go after borrelia.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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