LymeNet Flash: *~Rifabutin (Mycobutin)...Experiences?*~

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»	LymeNet Flash » Questions and Discussion » Medical Questions** » ~Rifabutin (Mycobutin)...Experiences?~**

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Topic: *~Rifabutin (Mycobutin)...Experiences?*~

tricia386
Frequent Contributor (1K+ posts)
Member # 29623

posted

I know I need to address bart again.

I can't take Levaquin. Bad reaction tendon pain when I started taking it. To scared to ever take it again even with the Magnesium. Not willing to risk it.

I did rifampin and zith for 6 months but that was it.

I dabbaled with A-Bart which I would be willing to try again.

Anyone have any experiences with rifabutin (mycobutin) ??

I heard its suppose to be less harsh on the liver.

Does it have all the same drug interactions as rifampin??

Thanks! [Smile]

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

Posts: 1752 | From Albany, NY | Registered: Dec 2010 | IP: Logged |

joysie
LymeNet Contributor
Member # 11063

posted

Bumping 'cause I am curious too!

Posts: 520 | From Maryland | Registered: Jan 2007 | IP: Logged |

dbpei
Frequent Contributor (1K+ posts)
Member # 33574

posted

I started my treatment with rifabutin and minocycline. I had an easier time handling these ABX than what I am taking now - rifampin and doxy.

My new LLNP changed these meds when she learned I tested positive for anaplasmosis and RMSF.

I am going to be talking to my LLND today about what the differences are between the two. If I have any more information, I will let you know.

Posts: 2386 | From New England | Registered: Aug 2011 | IP: Logged |

tricia386
Frequent Contributor (1K+ posts)
Member # 29623

posted

Thanks I see my LLMD on the 18th so I will be inquiring as well. Did you feel like the rifabutin helped?

And was it covered my ins?

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

Posts: 1752 | From Albany, NY | Registered: Dec 2010 | IP: Logged |

bcb1200
Frequent Contributor (1K+ posts)
Member # 25745

posted

Do a search.

It is a good drug if you are part of the 2/3rds. I unfortunatley was part of the 1/3 of people who had plummeting WBC's while on Rifabutin.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 95% +/- most days.

Posts: 3134 | From Massachusetts | Registered: May 2010 | IP: Logged |

tricia386
Frequent Contributor (1K+ posts)
Member # 29623

posted

I did do a search not to much about experiences on it BCB. A lot of people tend to use levaquin and rifampin.

Do you feel it was benefical before you had to go off it?

Do you know if it has the same drug interactions as rifampin?

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

Posts: 1752 | From Albany, NY | Registered: Dec 2010 | IP: Logged |

joysie
LymeNet Contributor
Member # 11063

posted

Bumping again.

Posts: 520 | From Maryland | Registered: Jan 2007 | IP: Logged |

canefan17
Frequent Contributor (5K+ posts)
Member # 22149

posted

It didn't really touch my Bart/BLO
Rifampin did for sure though!

Thank the lord for Houttuynia

Posts: 5394 | From Houston, Tx | Registered: Aug 2009 | IP: Logged |

bcb1200
Frequent Contributor (1K+ posts)
Member # 25745

posted

Rifabutin (Mycobutin) has less issues intreating with other drugs vs Rifampin.

There is still "some" interaction..just not as much.

THe biggest issue isn't liver issues as Rifabutin is easier on the liver.

It is the 1/3 of the people who try it who get ultra-low WBC's. I tried it twice, a year apart. BOth times, my WMC plummeted to a 1.6 within 2 weeks.

I recovered after stopping the meds.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 95% +/- most days.

Posts: 3134 | From Massachusetts | Registered: May 2010 | IP: Logged |

migs
LymeNet Contributor
Member # 16496

posted

Worked well for me...really well. Herxed when added it in then felt better. With Mino was awesome combo.

Posts: 410 | From Victoria BC, Canada | Registered: Jul 2008 | IP: Logged |

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