Caryn
Frequent Contributor (1K+ posts)
Member # 366
posted
nantucket island
may also have been reinfected where i live, Yardley , PA.
roger boy niemans was quoted in the newspaper that he has never seen a case of babesia in PA. that was 6 mos after he saw me with full blown lyme and babesia. in my records he goes after the local dr in newtown who no longer treats aggressively because he has been burned by insurence co's and local ducks. goes after Igenex and writes in my records that the only pos lyme test i have is the "scientifically illegitamite" non FDA approved LUAT (which was highly , highly pos). two weeks after that visit i had a pos pcr of my spinal fluid. last yr i was finnallly tested for babs. robustly pos. taunts me that "no dr has ever seen the rash and she has no photos of it " turns out we unwittinglly took photos of it. says the '96 rash that i got on my foot may or may not have been the lyme rash. i had a recurrent rash on my foot at teh time of teh visit and he knew damned well it was a lyme rash. says if i did have lyme, i no longer have an active infection. i was still gravely ill. have several pos pcr's adn pos Igm western blot. and passed this on to my children.
i'm willing to go public with my photos , records and story.
posted
Suburban Richmond, Virginia OR at my parent's home on Clark's Hill Lake, South Carolina (about 30 miles NW of Augusta Georgia on the Savannah River).
Posts: 28 | From Richmond, VA USA | Registered: Feb 2003
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posted
up for more!
Posts: 96239 | From Texas | Registered: Feb 2001
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Big Island of Hawaii.
I then passed it to my husband.
Posts: 9834 | From Washington State | Registered: Oct 2000
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3greatkids
Frequent Contributor (1K+ posts)
Member # 3838
posted
Falls Lake,Raleigh,N.C. or Umstead State Park. We do not have Lyme in N.C., leading professor at N.C.State claims.Ha.Like to take him for a hike!
Posts: 1076 | Registered: Apr 2003
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posted
As I said before, I had babs- contracted in Brigantine, NJ, along with lyme &, ehrlichiosis. To elaborate-- I was really sick, and had trouble making much headway on the lyme until I had taken atovaquone and artimesia for a few months; after that I was back in the land of the living within 3 months. I wonder if it would have helped to go after the babs first? They said the lyme was much higher density infection, though. DS
Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
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SunRa
Frequent Contributor (1K+ posts)
Member # 3559
posted
We are not sure where my eldest son got infected... North or South New Jersey or the Pocono Mountains in Pennsylvania
Posts: 758 | From now TX | Registered: Mar 2001
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posted
NJ (well, mom did, anyway). God, it's a miracle that we didn't get it as kids with all the time we spent in the woods....
Posts: 369 | From Ohio | Registered: Mar 2002
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posted
Even though i live in MD. I believe i got bit in AZ, symptoms started when i lived in Scottsdale AZ
Posts: 740 | From frederick,md,usa | Registered: Jun 2001
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bpeck
Frequent Contributor (1K+ posts)
Member # 3235
posted
Blood transfusion (that's my best guess). Symptoms appeared ACUTELY in mid winter, 6 weeks after the transfusion. Barb
Posts: 1882 | From VT | Registered: Oct 2002
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posted
Most likely Norhtern California or Nevada. I spent weekends hikeing around Lake Tahoe. I remember one tick, a star tick, that was real hard to remove (back in those days I burnt them off - a BIG NO NO). Afterwards I had a rash, some (not doctors, never saw a doctor) called it "Rocky mountain spotted fever". Then I developed dizziness, disorientation, etc.
Posts: 505 | From Western NY | Registered: Dec 2002
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Caryn
Frequent Contributor (1K+ posts)
Member # 366
posted
infected four times that i know of since '91. definately had babs symptoms after trip to nantucket island in '91. capitol of babesiosis. would be nice if they warned the tourists. may have been reinfected on '93 trip to nantucket. got it again where i live - Yardley, PA - in '96 and '98 where i know we have it. but no way to tell if i was infecteds there too.
Posts: 1093 | Registered: Nov 2000
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posted
well, i'm going bit out on a limb here.... but i think i got it .... from my BOYFRIEND. (not sure what state that happened in... )
seriously, we both have WA1, but i've never camped or hiked in the West. i grew up on the east coast, midwest, eastern canada & hawaii, never went to CA or western US. but he grew up in CA, has camped there extensively, had several tickbites there and in midwest...
i did go to grad school in san diego, but was a beach type, not a camper. never saw a tick.
an LLMD told me there is animal research (on horses) where babesia is transmitted via semen.
flossie
Posts: 773 | From yahoo.com | Registered: Dec 2002
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posted
Got bitten in Florida Positive for babesia. Huge herxes when on mepron
Posts: 983 | From The sky | Registered: Feb 2005
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valymemom
Frequent Contributor (1K+ posts)
Member # 7076
posted
Central PA or Northern VA......nighttime paintball matches in wooded areas of both - thruout the summer - before symptoms
Posts: 1240 | From Centreville,VA | Registered: Mar 2005
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posted
My first guess is Western Oregon ...though I had just returned from Austrailia when I started getting symptoms a month later.
Posts: 208 | From Portland, OR USA | Registered: Oct 2004
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janet thomas
Frequent Contributor (1K+ posts)
Member # 7122
posted
Eastern Pa
Posts: 2001 | From NJ | Registered: Mar 2005
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posted
Not sure when I got it. tested positive for B. microti I've lived in CA (northern and southern) most of my adult life and used to go hiking a lot. But potentially have been exposed to the great outdoors in: Hawaii, MT, KS, OR, and Coba, Mexico.
Posts: 207 | From san francisco, ca | Registered: Mar 2005
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