posted
LLMD is hitting the Babesia heavily with Mepron, Bactrim, and some Artemisinin (albeit light on the Artemisinin thank goodness).
I have a VERY low amount of Borrelia B in my body but plenty of babs that never got addressed and rampant epstein barr.
Since I began treatment two weeks ago I am sick to my stomach, I am burning up body wise my skin feels like its on fire. Some increased brain fog. Overall malaise feeling, energy waxes and wanes but overall isn't very good. I feel like I am going to just be this way forever.
Are the symptoms I am experiencing normal? What has been your experience in treating babs (and list if you have epstein barr)
I too suffer from a stubborn strain of babs with head pressure, fatigue, brain fog, muscle weakness, gut issues, and tingling and burning feet.
Weeks 5 thru 9 on my first round of Mepron were the worse. Then symptoms slowy improved.
My problem is whenever I stop Mepron the symptoms return quickly. I think I plateau at 80% and haven't found the the right combination to knock it out.
Your combo looks good. Maybe check out adding Buhner's recommended Sida Acuta and Cryptoleptis herbs once you stabilize.
i am 5.5 months into treatment..4 months on mepon and zith and then added liposomal art 6 weeks ago. Everything you describe is what i am going through...around the 4 month mark i reall ysaw some good days...then added ART which crushed me once again...now 6 weeks into that havinga couple of good days.
Dave
-------------------- On my journey to wellness - One day at a time. Posts: 989 | From NJ | Registered: Sep 2008
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Maybe this will help you figure some things out.
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Ditto BoxerMom's post, and yes, I had similar symptoms and more.
I cannot stress enough how important it is to find a really good LLMD. Babs is wicked, and mine just got worse until I went to the best Doc I could afford (couldn't really afford it, but made it happen). Babs is/was by far my worst co infection (and I have a lot). Mine is almost gone. Hang in there.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
is there a test for babs? I am pretty sure I have it, and tonight my daughter was telling me symptoms and the light bulb went off- "babs" for her too
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
There is but it's not very accurate (negative). A good doc will treat based on clinical symptoms.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
Clint, I am NO expert, but what you said about burning made me remember something I just read. I never heard about babs making you feel burning, but bartonella yes. :
"How is putting out a house fire similar to eliminating a Bartonella bacteria infection? People with a Bartonella infection can feel just like they are inside a burning house People can get this disease from insect bites,
coming into contact with infected pet saliva, or being scratched by an infected animal. As a result of tick bites, many people with Lyme disease also get Bartonella.
They can have hot, burning, painful sensations in their feet, legs, arms, and/or hands. Other symptoms can include bouts of anxiety,
irritability, and/or suicidal depression. Unfortunately, this infection can be difficult to eliminate."
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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posted
Clint, I tried to call you yesterday. I do want to talk to you.
I will be at work today until 11:30pm, but will be home tomorrow. Not sure when to call you. If you could tell me a time, I will be happy to call at that time.
quote:Originally posted by LisaK: Clint, I am NO expert, but what you said about burning made me remember something I just read. I never heard about babs making you feel burning, but bartonella yes. :
"How is putting out a house fire similar to eliminating a Bartonella bacteria infection? People with a Bartonella infection can feel just like they are inside a burning house People can get this disease from insect bites,
coming into contact with infected pet saliva, or being scratched by an infected animal. As a result of tick bites, many people with Lyme disease also get Bartonella.
They can have hot, burning, painful sensations in their feet, legs, arms, and/or hands. Other symptoms can include bouts of anxiety,
irritability, and/or suicidal depression. Unfortunately, this infection can be difficult to eliminate."
I know but the testing I had showed no Babs/Cat scratch fever/ etc.
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
The feeling that you are just going to be like this forever is what I call "babesiosis doom."
When my babs would flare during treatment, I believed that I would be that sick forever. And, there was no reasoning with my mind about it. It was a feeling of total DOOM!
It was horrible.
Posts: 9931 | From Maryland | Registered: Dec 2007
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